S: Hello H: Hello everyone
S: Look who it is H: You
S: The boy who lived H: (laughs) Oh my god, oh boy
S: The survivor H: Uh huh
S: The inspiration H: (clears throat)
S: Miracle man, you might say
S: I'm alive, but for a while it was pretty rough going
[intro song] Hello, hello, welcome to the show, welcome to the show
Welcome to the show, it's time to talk about our lives [Chloe bark]
H: Now we all know that Shane is somewhat of a baby when he's sick
H: I think we can all acknowledge that, right?
S: Can we? H: Yeah, I think we can all acknowledge that
H: That you're kind of a little wimpy when it comes to sickness
S: Yeah, I think that's true of a lot of people
H: Yeah, it is, but Shane will feel a tickle and he'll be like "ohh, it's gonna be really bad"
S: "I'm dying" H: "I'm probably gonna go to the hospital"
H: All these things, and people might be like well Shane has probably been hospitalized a lot
H: Shane has not been hospitalized for sickness since he was a small child
S: Yeah H: So no, it's not based on reality
S: But the last update we gave you was I was on the mend
H: Yeah S: But then some unexpected things happened
S: And we were in a place of confusion and fear
H: Distress S: And distress
S: As all of my strength disappeared H: Yes
S: The title of this video is not clickbait
S: And we're gonna explain what happened and how I'm doing now
H: It was really weird S: And let you know what's going on
S: In the future H: Now that last video that we posted
H: Was a while ago, multiple days ago S: Was it a week ago?
H: I have no idea, I could not tell you how much time has passed
S: I think it was before Christmas H: It was before Christmas
S: Yeah H: I don't know how many days
H: It was a while S: Anyway it's been a while
H: So we've gotten a lot of people messaging, commenting
H: Asking how Shane is doing since that update, so thank you to everyone who reached out
S: And not thank you to the person that's been commenting on videos that the reason we're not posting
S: Is because we're getting a divorce H: (laughs) Is that true?
S: Yeah, they're out there posting as if they know, they're acting like it's fact
H: Oh my god S: And people are responding being like
S: "What? I didn't know that" H: Not true
S: We're not getting divorced, if you ever see a comment about some kind of
S: Insider knowledge H: Inside, uh huh
S: It's not real H: No, no one that knows us would be posting
H: If we were getting a divorce, none of our friends that we would tell
H: Would then go online and begin commenting it on videos
H: Just so you know, that's not what they would do
S: So no divorce, and the other thing that we want to say thank you for
S: Over the holidays we received a ton of Christmas cards and gifts from all of you
H: Yes S: And that continues to amaze us
S: And shock us H: Yes
S: And fill us with gratitude, we got some cool new ornaments for our tree, thank you
H: Yep S: That definitely was a bright spot
S: In an otherwise very dark couple of days
H: Slash week, slash more S: Slash week
S: So here is what happened H: So when we were laying in bed
H: Giving you that update, we said that Shane was feeling really weak
H: So he was mostly laying down throughout the day, we had just gotten home from California
H: I think the day before S: Yeah
H: And we assumed that within 24 hours he would feel better
H: Like the day after you are sick and having a stomach problem, you can be tired, whatever
H: So the next day rolls around and Shane is not better
S: Hannah just gets me out of bed, puts me in my chair
H: Yeah S: And instantly my head kinda went like this
H: Like a ragdoll, yeah S: And I was like "oh, I can't hold my head up"
S: Like maybe you put me in my chair wrong, so I was like move my butt a little bit
S: And we adjusted, adjusted, and I was like no, I can't lift my head up
H: Yeah S: My neck muscles felt dead
H: Like they were just not there S: Completely unusable
H: Yeah S: So that was weird, right?
H: Yep, and then trying to drive your chair, even from the bedroom to the kitchen
H: Took a long time, and I had to assist S: Yeah, I came out of the bedroom
S: And I have to turn right when I do that H: Yeah
S: And I couldn't, again my arm and my fingers weren't working
S: And I was like Hannah, maybe I didn't sleep well but I can't turn, I need your help
S: And that doesn't happen H: Yeah
S: So weird, but still we were like alright, maybe you slept weird
S: Or your tiredness is lingering H: And this was worse than the day before
H: Which was confusing, and then Shane was obviously hungry
H: From not eating for multiple days, which probably was contributing
H: To the muscle weakness, but trying to eat, he could not swallow anything solid
H: Like rice, mashed potatoes, nothing that was not a pure liquid
S: And that was when I began getting upset H: Yeah
S: Because it was clear that something severe was happening
H: Yeah S: When I realised I couldn't swallow solid food
S: By almost choking like eight times, I asked Hannah for tomato soup
S: And this is just to give you an idea of how weak I was
S: I would take a sip or a spoonful of the soup, and then didn't have the lip muscle
S: To keep my mouth closed and swallow it, so I was swallowing
S: But it was leaking out of my mouth H: Yeah
S: I was really upset, and I kept saying to Hannah, what is happening?
S: Like I was scared H: Yeah
H: And you knew that you needed food but you couldn't eat it
H: So we didn't really know what to do, so it was just a lot of soup
H: Like constantly throughout the day, to try to get it down
S: Little sips here and there H: Yeah
H: And this is absurd, just a side note, when Shane was sick, those nights
H: He would be laying down a lot and he would get thirsty
S: Oh yeah H: And he couldn't suck from a straw
H: Because his muscles couldn't suck, it takes muscles to suck in to pull on the straw
S: Not a lot, but a little bit H: Just a little bit of muscle that was not there
H: And when he was laying down he couldn't drink from a cup, obviously
S: So Hannah was putting it in her mouth and then baby birding it into my mouth
H: No but I was baby birding it via a straw, I would take a straw
H: I would put my finger on the top, lift it up and then release into Shane's mouth
H: Literally like a dropper, and that's how you would drink liquid
S: So that was really fun, I enjoyed that, so this day happens and by night time
S: Again, my head is sideways, I'm in a lot of pain because my neck muscles hurt
S: When they're sideways like this H: Yeah
S: So I was upset, and I was telling Hannah about how upset I was
S: And she was amazingly reassuring, like "maybe you're still weak, it'll go away"
H: It'll go away, yeah S: The next day, it didn't
H: No, it didn't, it was the same S: And that is when I really began to worry
H: And I still was just like, I think you need food
H: Like I said at the beginning, Shane goes to worst case scenario
H: And I tend to go to best case scenario so it really ends somewhere in the middle
H: In a compromise, but I was like you'll be fine, it's gonna end
S: And on this day, I laid around all day, I stopped trying to hold my head up
S: I used a neck brace to hold my head up for a while, but it was scary
S: Couple days later, after going through all this, I'm sure that I've permanently lost strength
S: And I'm in a very low place and I'm like making mental plans for how I'm going to
S: Continue on, in our work and in life, everything was different
H: Adaptations S: Yeah
S: I was like how can I use my laptop now? How can I use my phone?
S: All those things were now difficult H: Exactly, like that's the thing
H: Getting weaker wasn't necessarily the only cause of your upsetness
S: Oh yeah H: It was also the fact that now all of a sudden
H: Everything that is tailored to you and works for you in your life no longer worked
S: Yeah, even my chair H: Even your chair, nothing was right anymore
H: And so it was just like there was nothing you could do, so that was the most frustrating part
S: As I was approaching the climax of this weakness and upsetness
S: Just not knowing what to do H: And this was an evening
H: The weirdest part about this is was I came home from something, the grocery store
S: Oh yeah, you were picking up some Christmas presents last minute, I think
H: Oh I went to the store, this was like the day before Christmas
H: It was literally the 24th
H: I have Bella here now, sorry, anyway I was Christmas shopping, whatever
H: I came home and it was 6pm, maybe 7, when I left Shane was sitting with his laptop
H: He was watching a show, neck brace on, whatever
H: I came home, Shane was in a different spot, I think my mom was home
H: Sitting without a neckbrace, head upright, and he was eating a sandwick or something
H: Like eating something bizarre and I was like... what? He was like "I feel better"
S: I was eating Poppables H: Yeah, you were eating a snack
S: Which by the way, we made that horror movie about Poppables in October
S: We are still going through all the bags that we bought for that movie
H: Yeah, we are S: Anyway yeah, I was eating Poppables
H: Yep, skewering them, putting them in your mouth
S: Literally in an hour's time, all of my strength came rushing back into me
H: At the end of the day S: It was so weird
H: I was like why in the world would that not happen after a night's sleep
H: You get up and you're better, it was like tired tired tired oh I feel better
S: And I was like Liz, can you get me some Poppables? I think I can eat them
H: And take off my neck brace S: And she was like, are you sure?
S: Are you gonna die? Are you gonna choke on me? And I was like no, I feel good
S: And my speech was improved H: Yep
S: And I did, I ate them, and I ate dinner, I had rice or something like that
H: Yeah S: It was crazy how quickly it all came back
S: I was texting my family like "I'm better! I'm suddenly better!"
S: And they were like, are you lying? So yeah, very odd
H: It was so bizarre
S: And the next day I was able to drive my chair normally once again
S: Held my head up the whole day H: Yep, and since then you've been normal
S: I've been back to normal, so weird weird week or two that we went through
H: Yeah S: Very grateful that I'm back to where I was
S: Very grateful for Hannah and the family for taking care of limp lip me
H: Limp lip (laughs)
H: So yeah, now we're back, back to making our videos, we're ready to go
S: I can talk again H: Had a little rest
S: So yeah, we're gonna do a really big Q&A before the end of the year
H: Yes S: We got lots of questions
H: We're actually gonna film that right now so we're gonna look the same
S: Are we really? H: Oh, I thought we were filming it
S: I thought we were gonna do it tomorrow H: Oh, okay, nevermind, sorry
H: I was under the impression we'd do it now
S: See, this is how we do business, people Both: (laugh)
H: We're gonna have to put this in S: Anyway yeah, everything's back to normal
S: But for a while I lost all my strength H: Yep
S: It was freaking weird H: It was
S: Alright everyone, see you soon H: Bye
(music)