[Music]
welcome back to River City live we have
a special edition of our no excuses own
for you right now when Malia Kariba
started to feel strange she had no idea
what the next few months would mean for
her she thought maybe it was something
minor and it turned out to actually be a
four month and then some nightmare and
Malia and her daughter Noelle marks are
here right now to talk about something
that I didn't realize I had never heard
it spoken before I must have only read
it because I thought it was pronounced
stuff I didn't know gilead guilt say it
dion beret kion beret syndrome it's a
neurological disease that rendered you
Malia from being fine one day to having
to relearn to walk that's correct
and use all of your motors in a day
within a day than a day scary sir so
what happened well I was um we had been
out clearing a motor a path for our
mountain bikes in her backyard and I was
using a chainsaw over my head cut a tree
and I had a backache and but it was
really bad but I thought that's what it
was from and so I ended up in the
emergency room and they did tests and
sent me home and and then then over the
weekend I could just got progressively
worse where I couldn't I was getting up
and and fall down and so back to the
went to the doctor on Monday and then
back to the emergency room on Monday
night and they wanted to send me home
and I couldn't walk I mean my legs were
completely numb and I'm I had no core it
was just like a weeble wobble and they
wanted to send us home again and
everybody said no and and apparently
that's very common with Gyan bere that
it's often goes undiagnosed okay so no
well here's your mom who goes from being
lively and fun and zippy and the next
thing you know she's on a harness trying
to relearn walking and we're Facebook
friends were friends and we're Facebook
friends and I the reason I wanted you
all here today is because well for two
reasons one because I had never heard of
this before and it was stunning to me
and secondly just because the outpouring
of love and your determination Maliha
and Noelle even going on Facebook and
saying if anyone and I don't care if
you've ever even met her
to go visit my mom in the hospital like
it was just the most inspiring
courageous fighting I've ever witnessed
I mean it was so moving that's why I
wanted to hear for the no excuse tone
and then also we found out and you don't
even know this but we found out that
today was your birthday your birthday
weekend is you didn't so and your your
granddaughters are here too and I think
there was a little while there where
they didn't know it's Oh
sitting here on TV so it says what does
it say survivor oh I love it I love it
and and I know you guys were really
scared when this was all happening with
your mana and so we we just really
wanted to have you here to say that this
is this is a thing yeah again the name
of it is Gyan beret kion beret and it's
GBS GBS four hundred twelve thousand
cases a year 20,000 20,000 twenty pieces
a year yeah seven hundred that you're an
inspiration so I guess I would ask you
this in closing your words to somebody
who's going through something that seems
impossible because I know your doctors
didn't see you at this point I knew you
were kayaking recently what would you
say to somebody who has something that
seems unimaginable going on in their
life attitude you know it's a into the
think you can or you think you can't
either way you're right and you know the
power of prayer and love and friends I
mean I couldn't have gotten through it
without without all of this it's just
been incredible do you feel like these
ladies had probably um almost as much as
the doctors to do and you're absolutely
that's absolutely I mean when Noel put
it out there on Facebook and it you know
it went you know we had we were kidding
in saying we had prayer groups from the
the Christians the Catholics the Muslims
a Buddhist you know and we had the whole
everybody and you know I think all that
positivity surrounding me before it was
even awake and knew what was going on
when I woke up it was just like okay we
were doing it you know there's never any
thought not to well thank you for
sharing your story
thank you
ladies you're so beautiful and the cake
and we're eating this yes okay burrito
send it over to mark now