OMG, Ok...
We are gonna have such double chin in this video...
Oh dear...
Hello lovelies!
Welcome to my living room floor, it's very attractive
Also hilarious because my brother and I bought exactly the same rug without realising
Point to you if you can guess where this rug is from
I used to spend a lot of time on the floor- about 60% of the time.
The other 40% was lying down in bed. My mother and I used to joke that I could recognise a place by its ceilings
and it's kind of true...
I still spend a lot of time lying down but I’m a lot better now.
I can sit up in the car rather than lying down on the back seat and I can actually hold my own head up
Excellent!
Also being able to hold my head up is quite a change...
Also I can stand up for more than 2 minutes at a time without fainting.
Genuinely, my life is amazing compared to what it once was and I still only leave the house twice a week!
Normally when I’m stuck on the floor I don’t film because I can’t exactly set things up around myself
I just generally feel pretty pants.
Kind of hard for me to follow my train of thoughts
I wanted to talk to you about why I’m on the floor so often since I know I’m not the only one
and I hope it will help you explain to other people . what’s happening to you.
So you can send it to them and be like Look! not just me!
I am not the only one who lies down all the time
I have a condition called PoTS, which is
For some reason I can never remember that
It’s related to my connective tissue disorder, which I’ve explained before, card above
When a healthy person stands up their blood vessels contract
and their heart rate increases slightly to maintain the blood supply to their heart and brain.
My blood vessels can’t be arsed with that
This is what happens to me
Instead, all of my blood rushes down to my feet, turning them purple
My heart races, my face goes white and- whomp!- I’m gone. Fainted on the floor. It takes about three seconds.
If I stand up to quickly, obviously, not like every time
If I stand up slowly we are ok
Other symptoms include:
I'm saying this so cheerly! "Other symptoms include..."
I mean It’s not always that bad, things that can make it worse include being tired or ill
If I have my period...
The whole week on the floor
And I can't definitely not film in that week because lights
Light kills me
Even on days when I’m feeling at my tip-top best, I have to be very careful when I stand up
If I do it to quickly, then whoosh
I hit the floor
Fortunately my wife has the world’s best reaction speed and she tends to just grab me very quickly
Which is good otherwise there'd be blood and brains
Even if is a really bad, lying down does help
Specially for some reason, the floor
A hard floor vs a soft bed Idon't know why it just really helps me
Sorry I'm blinking so much from these lights
As do things like...
Making sure I don't get dehydrated
because wow that's bad
Dehydration murders my brain
If I could avoid my period I really would
Actually it's never even a week, it's like 9 days. Who else has a 9 day period?
Women's issues...
I can't even have children so it's a bit unfari
They also exacerbate symptoms
But fortunately I can't eat them
So I don't, there you go
I know the Chronic conditions may be all very different and have symptoms that are in no way similar
it's a whole spectrum as well
But I think the life advice is generally the same
Whatever kind of chronic illness or conditon you have
Or even if you are someone who is suffering for something short term
If it's just an illness you are getting right now so
Here are my tips, my 5 tips for living with a bad illness
If you have a goal make sure it’s achievable.
I’m not saying ‘make enough money to be entirely self sufficient and payed a maid’ isn’t possible
It's not, however ‘tango on the moon’ that might be
I mean obviously please if that happens film it
I need that footage
That would make my year
My life maybe
Someone should do that
No something that would make my life would be Fast and Furious
I want to go to a Fast & Furious premiere
Try not to fit too much into one day- don’t rush, there is always tomorrow.
and if not tomorrow then next week looks pretty free.
I talked about this in my spoons video. Learn to live within your limits and save some of yourself for later. No pushing.
Save yourself, you don't have to go all out
If there’s a date in your diary that can’t be moved then resting beforehand is actually an active doing
Equally, resting afterwards is doing because it’s recovering.
No need to feel guilty. So technically you’re achieving things left, right and centre.
I don’t care what you think you have to do.
Drop it ok? You definitely won’t be able to do it when you’re too ill to form thoughts
Stop now and you have a chance of recovering in good time.
Do I follow my own recommendations?
No
Do I overwork myself and push for things that aren’t possible?
Yes
Yes Ido
But I’m a work in progress.
I'm just trying to get on with my life like everyone else
Just got a few challanges
But hey we all do!
Just different, we'll all get there in the end
If you’re looking for more information then there is an amazing website called
that has a ‘living with pots’ section and some really great suggestions and ideas of things!
Also, ice cubes!
I live in England and Istill get overheated and fail to maintain a normal body temperature
I hope you enjoyed this video, hope you can take something from it
Share it with a friend
If you feel they needed
Specially if they feel like they are all alone, and they are the one who just needs to lay down on the floor alone
It's not true, I am lying on the floor too
Studying the celling...
I should get more interesting lights in my house...