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I have Tourette syndrome and basically it's a neurological condition
or brain thingy as I like to call it that causes me to do certain
movements and blurt things out and shout things out that I can't control at all.
For me Tourette's is really hard. I have more of the severe side of it and
it really hurts. A part of my Tourette's is Echolalia and Coprolalia. I don't know
if you know what they are but echolalia is the compulsion or like the tic to
repeat words I've said or phrases that I've heard other people say and
coprolalia is a really hard one - it's a a part of my Tourette's. Only 10% of
people with Tourette's have coprolalia and it's that you shout and
swear rude and obscene language and rude and socially unacceptable words and
phrases. I'm in therapy for Tourette's and we do stuff like we retrain
my tics to be something else so they don't hurt or so that it's not as
bothersome. A lot of the swearing tics my therapist would help me change
so for instance the "B-word" I would change that into bench so I'd still shout out,
it would still have the same effect but I'm not suppressing it which causes more harm.
Suppressing tics is basically where I'm holding it in deep down inside me and I
can hold it in for a while but not for long. I usually hide it with smaller tics
like eye blinking or rolling of the eyes and suppressing my tics for me
makes me feel really ill afterwards and it just makes me feel really sick and
tired. Some of my short and simple tics are I blink or I roll my eyes to the back
of my head or a shoulder shrug and I move my head and I'd like kick my
leg out, another tick that I used to have is I'd get my hand and I'd click my
knuckles but they wouldn't need clicking so I'd push my knuckles down and down
and I'd have all swollen and bruised fingers.
It wasn't very nice. My teachers know and my class knows and I do get help if I can't focus
or if I'm tic'ing a lot in lessons I'll have this thing called a tic room and
I'd go int here alone and I just let it out and then go back up to lessons.
It's really hard to concentrate in lessons I feel like everyone's staring at me
looking at me like think I'm really weird because I do these random movements that I really can't control.
My friends at school are really accepting
of my Tourette's and they do sometimes point it out which is annoying. My family
also is really accepting but I just wanted to tell people with any
disability or struggle with anything in life just remember that it will get
better they're all there is light at the end of the tunnel and we just have a
little faith.
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