as flatbreads high school and calmness
oh hi I'm senior yeah me I have
everything spun epidermolysis bullosa
and I had balloons all over my body and
I had a bad wound that was causing me a
lot of pain so I haven't um I just had
many surgeries like over 40 surgeries
and had to stop getting iron infusions
and now I have to get blood transfusions
right now I'm in here because of the
painting from the wound I told my mom
that I wanted to go to prom um really
bad and she she was trying to make that
happen
I know Tasha has been WA head up I want
to go to prom even last year when she
was a junior and you know at home and
she wasn't even nearly this sick I had
no idea where to start with it so just
didn't happen for it started out with a
sort of a what-if kind of kind of
feeling and then well can take you know
yes this would be a good idea not just
not a good idea in in a loose way but
really seriously
more we got to talking about it the more
we could see that it wasn't the idea of
getting dressed up it was going to a
school prom I mean just because she's in
the hospital she's still 19 so what our
19 year olds doing what are seniors in
high school doing they're going to prom
they're getting their nails done and
their hair done and they're putting on
makeup and getting all dolled up and
they're enjoying that night that girls
dream up there was some partly just
because everybody goes but it's just
like something we do it huh it's a
normal thing that people do so like when
Tosh is in the hospital because she's in
isolation she has to stay in her room
all of the time so after hours I've
taken her downstairs and to watch a
movie or something whenever it's
lighting in the Cinderella maybe I think
it's wet
I saw that movie and I just wanted to be
like she knew that she wanted to go to
prom and she knew that she needed a
fight through being off her pain pump
you know what we were gonna try for it
but there was no pressure so if it
really was not destined to happen that
there would be no bad feelings that hey
we were gonna give it a shot
so each day that we did something and it
went well was an accomplishment after
the first trial of six hours that was
going to be the tell-all like can she do
this or can she not and she did it and
that night I'll never forget walking in
and being like so it's over and she was
like I'm going to prom after I found out
that it was transit gonna happen maybe
right and I remember my daughter doing
the same thing it's one of those
traditions that you know when you get a
chance to do it is really cool she
needed to know some dance moves that she
could do so each of us showed her a
different dance moves and we practice
the dance moves and then we presented
her with her crown the person that
cleans our room every day is always
checking on how she's doing and she
brought a brooch in and she wanted Toto
to wear in her hair for prom my nurse
the night before she gave money to Sara
this house I specialist she's in the
news one of the nurses on our unit
McCole her daughter has the same size
shoe right yeah so she brought in a
couple pairs to try eyes over here when
I got home
felt so pretty yeah it was fun yeah I
don't yeah I don't always feel like
Freddy and always be so dressed up like
that so it was really fun to get to
dress up the problem is it was very
fancy I got to meet some girls and so
they were very nice and I enjoyed that
was fun and the answer to know that she
was out on a dance floor
socializing just getting the total
experience and loving it and feeling
confident in it every bit of that
logistical planning all the effort was
easily worth it everyone's so excited
there gotta be dreams and they gotta be
things that you do it or fun and good in
the in the deep sense