Hey what's up I'm Rachel Star schizophrenic so let's talk about
tardive dyskinesia what is it tardive dyskinesia is a side effect of a lot of
different antipsychotic and antidepressant medications it's
characterized by excessive movement of the lips tongue and jaw also by feelings
of inner like restlessness rhythmic movements of the hands and feet and
shaking it falls under EPS symptoms of movement and muscle control problems
also a form of drug-induced Parkinson's tardive dyskinesia occurs days to weeks
after starting a new medication atypical antipsychotics tend to have a lower risk
of developing it as a side-effect after stopping the medication most people's
symptoms will go away however 10 to 50 percent of people it is
permanent much like antidepressants and antipsychotics medications they don't
really know how they work they don't really know what causes tardive
dyskinesia a theory is that it's caused somehow by the dopamine being blocked
from the medications if you take any antidepressants or antipsychotics you
need to be checked once a year by a doctor using the abnormal and voluntary
movement scale exam pretty much where they check to see if you're starting to
have any signs of tardive dyskinesia then they know they can take your
medication down or maybe even switch you to a different one a form for that is
actually in the descriptions and a link so check that out you can easily print
it off and take it to your next physical exam
okay so we're done with like the shiny nice part of the video okay let's just
like actually talk some TD so I started having issues with tardive
dyskinesia um back like maybe I don't know six years ago mmm um and I noticed
it first I don't know I was doing something in my bed like I was reading
or working on something in my tongue I noticed my tongue was like moving all
around in my mouth like a snake and I thought that was weird and I wasn't
doing it and pretty much it started from there
then the shaking and pretty much I would have like really bad fits of shaking to
full-on like jerking movements I'm pretty much constantly in pain in my
neck my shoulders up in here jaw I'm always like popping my jaw and I
think it has a lot to do with that because when I'm not like actively like
paying attention um apparently like I do that stuff
yay it can be like a little bit embarrassing I've gotten to the point
now where I'm like I'm used to it I'm more I think I get more embarrassed
about the shaking because it tends to come out at work and I'll be like
talking and shaking so it looks like I'm nervous and I'm actually like not it's
just like suddenly I'm like my hands are out of control and I guess the point
where like I can't even um write and it just like like gibberish and yeah so
that that's that's really the only embarrassing thing sometimes in the gym
like I'll notice and doing it the tongue thing with my mouth and I'm thinking a
lot of crap like how many people saw me over here like you know then what am i
doing that's life um for me I don't really know which medication caused it I
was on so many um for so many years I did a me on tons of different
antipsychotics trying to find one that worked none of them really did and then
I was on like a really high did dosage of antidepressants I was on the
highest dosage of prozac for years until it just couldn't work anymore so I
don't know which one caused it it kind of comes and goes it never like
fully goes away but like as far as like the jerking motions I noticed like when
I mentally get off so when I'm not as mentally here the jerking like the
full-on like jerking movements come out more I don't know maybe that's just part
like as my brain gets weaker is like right now it is just I don't know I
don't know why um I don't think it's gonna go away I'm pretty sure I got it
um it may get worse I mean I'm still on one like four different antidepressants
right now this is my little flag on waiting um so it's not like it could get
a lot worse just because of that but I definitely don't see it going anywhere
um I'm fine with that you know I've kind of accepted it down it just happens
Rachel shakes um Rachel does weird tongue stuff Oh
with the tongue stuff I only notice it when I'm in my MMA class because we have
to wear mouth guards because you do like a lot of sparring and stuff yeah I
notice it in there because like I keep flipping it out of my mouth like I'll
just constantly like it's kind of just going all around my mouth like the guard
that's the only time I can like myself notice it so these are actually own some
clips I found of me exhibiting this while I was filming and again it usually
the mouth stuff comes out when I'm like doing some sort of like physical
activity right we're like my body I'm like focusing my body on doing something
what's really interesting home is how I go from doing it I then talk and I go
like right back into doing it with like out skipping a beat
Ok move around, come in out, make it interesting
researching the other thing that kind of stood out to me I had no idea this was a
form of Parkinson's I did never I'd never heard of drug-induced Parkinson's
in my life um I just kind of like really threw me um just how tardive is actually
very close to Parkinson's and Huntington's and I'm just like really
crazy it just never occurred to me and the
fact that there were multiple types of Parkinson's and one of them was the
drug-induced kind I do know there are some medications you can take for TD but
I don't push him or anything because I've never taken them um and if you're
like me I don't want any more medication like I have I have the TD as a side
effect from a medication so I'm kind of worried about what side effect I'm gonna
get from that new medication like this is a big one um so yeah that I don't
know I haven't tried any of the medications and you know they they have
some out now um I've heard people tell you oh you should meditate and stuff
like that but like it doesn't really bother me enough to do that now what
point let's say the the jerking lets say was happening all the time the tongue
thing got to the point I couldn't eat or even like talk then yes I would totally
be open to let's let's find some medication for this at what point like
I've gotten like I need help with this like it's affecting my life then yeah I
totally will jump on that medication train but right now I don't feel like
mine's bad enough to really go through anything else on top of what I'm already
going through with schizophrenia and depression it's been really crazy for me
because the tardive I mean I had to go to my doctor and say
hey this has been happening to me and he was like oh yeah yeah yeah that happens
anyway okay like I no point no doctor no psychiatrists psychologists no normal
doctor no therapist all who knew I was taking all these medications ever said
in anything to me that I could develop this I could develop tardive um and
that's crazy to me especially when 80% of people apparently develop some form
like that blows my mind like that really blows my mind
um and I'm not saying don't take antidepressants or antipsychotics
because for me I'm still on them but I think it's very important for someone
who's getting treated for something to be aware that it could happen so when it
does happen you don't like freak out especially if you're being treated for
schizophrenia oh but yeah it's been interesting though
to me how many people over the past like two three years have come to me with
questions about TD and stuff and been pulling up past videos where I've
touched on it and just been like so many people having it and that's pretty crazy
also that that form I mentioned that exam no one has ever talked to me or
given me that exam in my life um I found that when I was like googling the exact
definitions of stuff to make this video and I found that exam and I was like
what what is this um like that's crazy to me and it's such a like if you read
over the exam it's like a super easy thing to do it's not like a like some
crazy like you're running a mile like they're literally like just checking for
things it's just crazy
so yeah I'm Rachel Star thank you so much for watching
maybe you learned some new facts about tardive dyskinesia I don't know like
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*outtro music*
lips tongue and jaw lips tongue and jaw lips tongue and jaw excessive movement
of the lips tongue and jaw