SOMETHING
HAPPENING TOMORROW.
RIGHT?
>> AFTER YOU GO TO JAY'S SHOW,
YOU CAN PARTICIPATE IN A WALK
THAT HELPS CHILDREN WITH APPROX
SEE YA.
I MET WITH THE ORGANIZER AND
MAMA BEAR OF THE EVENT TO FIND
OUT MORE.
>> I THINK THAT HAD RIDER BEEN
BORN MAYBE 10 YEARS BEFORE HE
WAS, THEY PROBABLY WOULD'VE
ABSOLUTELY SAID HE HAD AUTISM.
BUT RIDER WAS SO ENGAGED.
HE COULD POINT TO EVERY COLOR,
EVERY BODY PART, EVERY LETTER,
EVERY EVERYTHING, BUT HE COULD
NOT SAY ONE SINGLE SOUND OF IT.
SHE SAID I AM ALMOST 100%
CERTAIN THAT YOUR CHILD HAS
APPROX SEE I CAN'T.
>> THEY LEARNED OF THIS
CONDITION WHEN HER SON WAS
10-MONTH-OLD.
IT'S NOT A WELL KNOWN CONDITION.
SHE FOUND A WAY TO RELAY IT IN
SIMPLE TERMS.
>> I RELAY IT WHEN AN ADULT HAS
A STROKE AND LOSE THE ABILITY TO
SPEAK.
WHEN A CHILD HAS APPROX SEE YA,
IT IS THE SAME THING EXCEPT
THEY'RE BORN WITH IT.
>> HERE'S HOW SHE NOTICED A
PROBLEM.
>> THE FIRST WORD AT 10 MONTHS
OLD WAS CAT.
AND THEN HE LOST IT.
IT WENT, TO HE COULD MIMIC THE
MEO
MEOW.
WE REALIZED CAT WAS GONE AND NOT
COMING BACK.
HE COULDN'T SAY CAT AGAIN UNTIL
AFTER HE RECEIVED HUNDREDS OF
HOURS OF SPEECH THERAPY.
16-MONTH-OL
16-MONTH-OLD, WE STARTED
NOTICING THAT HE WASN'T MAKING
THE VERBAL GAINS THAT HE SHOULD.
AT THE ROOT IS MOTOR DISORDER.
WHEN YOU THINK OF EVERYTHING WE
DO DAY IN AND DAY OUT THAT HAS
TO DO WITH TYING YOUR SHOES,
WHICH BUTTON DO YOU BUTTON
HAIR.
YOU KNOW, WE ALL PLAN THOSE
THINGS OUT WITHOUT EVEN THINKING
ABOUT IT.
SO FOR HIM, THINGS LIKE READING,
WHEN YOU HAVE TO REMEMBER, WELL,
TRICKY.
>> MICHELLE HAS A PRIVATE
FACEBOOK PAGE WITH 150
JACKSONVILLE FAMILIES DEALING
WITH EPOXY YA.
TO OFFER A LOCAL PERSPECTIVE.
MONEY RAISED FROM THE WALK GOES
TO THEM, WHICH HELPS KIDS AND
WAYS.
>> THEY PROVIDE iPADS FOR
CHILDREN THAT ARE NONVERBAL OR
LEARNING TO SPEAK SO THAT THEY
CAN COMMUNICATE.
THEY PROVIDE SPEECH THERAPY
GRANTS BECAUSE INSURANCE DOES
NOT COVER SPEECH THERAPY FOR
CHILDREN WITH APROXIA, IN
MULTIPLE STATES, FLORIDA BEING
AT THE TOP OF THE LIST.
THEY DO CONTINUING EDUCATION FOR
PARENTS, FOR SPEECH
PATHOLOGISTS.
AND INTO, LIKE, HOSPITALS AND
SCHOOL DISTRICTS THINGS LIKE
THAT WHERE THEY CAN REALLY TRY
HELP.
>> AFTER RAISING $80,000 FROM
THE PAST TWO WALKS, MICHELLE HAS
EVENT.
ON.
>> THE WALK, I CALL IT MORE OF A
FAMILY FUN DAY.
SOME PEOPLE WALK, SOME PEOPLE
DON'T WALK.
IT'S FOUR LAPS AROUND THE TRACK
ON SAN JOSE.
BUT REALLY IT'S A DAY FOR
PARENTS TO GET TO KNOW EACH
OTHER AND HAVE AN OPPORTUNITY TO
MEET ONE ANOTHER.
IT'S A DAY FOR THE KIDS TO BE
ABLE TO JUST BE KIDS AND PLAY
AND HANG OUT.
WE V
HAVE STORM TROOPER, PRINCESS
S, SPIDERMAN WILL BE THERE.
MOST OF ALL OF THE MATH GODS
HERE LOCALLY ARE COMING OUT.
WE WILL HAVE THE CHEERLEADERS
FROM THE JACKSONVILLE SHARKS.
HOPEFULLY THE ROAR CHEERLEADERS
SHOWING UP AS WELL.
WE HAVE GAMES FROM JACK'S PLAY
DAY, PROVIDING US WITH GIANT
THINGS AND DJ.
WHO IS FANTASTIC AND HAS SUCH A
GREAT TIME WITH THE CROWD.
AND THEN MY GYM COMES OUT AND
PLAY GAMES WITH THE KIDS.
IT'S REALLY INVOLVED.
THERE'S ABSOLUTELY SOMETHING FOR
GROUP.
>> MICHELLE WANTS TO STRESS.
>> ANYBODY CAN COME.
IT'S OPEN TO PUBLIC.
AND I PREFER THAT THE PUBLIC
COME.
BECAUSE TO ME, I ALWAYS SAY TO
PEOPLE, IF I'M ONLY SPEAKING TO
FAMILIES ABOUT APROXIA THAT HAV
PROXIA, I DIDN'T MAKE MUCH OF A
DIFFERENCE.
I NEED TO GET TO THE COMMUNITY
ON A PERSONAL LEVEL.
LIVE,".
>> SUCH AN AMAZING FAMILY, RIDER
IS AMAZING, THE CAN YOU
REMEMBERS AND ALL OF THAT STUFF.
HE'S MADE AMAZING STRIDES.
ONLINE.
BUT YOU CAN REGISTER TOMORROW
MORNING AT 8:30 FOR CHECK IN.
THE WALK BEGINS AT 10:00.
IN AN EFFORT TO CONNECT AND
SHARE MORE INFORMATION ABOUT
APPROX SEE YA.
MICHELLE CREATED A WEBSITE BLOG.
THAT DETAILS HER FAMILY'S
EXPERIENCE WITH THE CONDITION.
>> REMARKABLY BEAUTIFUL OUT.
A GREAT OPPORTUNITY.
THE CAMPUS IS GORGEOUS.
>> A LOT OF PEOPLE DIDN'T.