Eight years ago I was living in the U.S. I suddenly
lost my biceps. Of course this was actually through
well, after a time that I went through a lot of stress
Yeah, I was taking care of my daughter's diabetes, diabetic daughter and everything a lot of things happen our lives so that
trigger
What happened to me? I
loss the biceps and
the doctors took six months to
tell me what was going on with me because it was not only the biceps. I could not lift myself. I
lost strength from being super athletic to being not able to
walk for like five minutes because I was exhausted and then I was in a zumba class,
you know dancing like I used to dance for an hour burn like 400 calories,
like crazy African moves and everything and suddenly when I went back to my class
I could not move... is like so weak so...
then I was running a gym and
one minute and I could not sustain my legs. So it was they felt so tired like if I was running a marathon,
but it was just one minute
So my husband actually told me that maybe I was getting depressed because we did go through a lot of things
So I was like no. No, I'm not unhappy. I'm just weak. My body is weak. Not me, my body and then
so I went to the doctor and the doctor said all you need to do more exercise, do more gym and I like ...no... I can't lift my arm
So he said no
no, you have to try.So I went to the gym and I tried and I could not lift
my my arm my you know, my nothing with my arms this arm and then
so I went from the
neurologists in Greenwich Connecticut to..
they send me to a rheumatologist to
so many
MRIs of my my arms, my back, my brain. I was really scared
you know, what It was. Then they sent me to Columbia university where they diagnosed me with
Facioscapulohumeral muscular dystrophy, a weird condition
So I
have no idea what that was. I
learned that it was a genetic condition. Nobody had it in my family
Maybe my mom had some symptoms, but she passed away before she knew what was going on with me fortunately and then
From then on the instructions were okay
you can't exercise much, because a you exercise you are not going to build any muscles. You're gonna waste your muscles
so
If you feel if you start exercising and you feel the burn then, stop, because you're burning your muscles
You're not building any muscle anymore. So well, okay, so of course, I went to the gym and I was so tired like I have
now I know it's called chronic fatigue and
that is kind of part of the
muscular dystrophy
So there were days that I could not really
like do my normal life because I had to be in the couch like or in the bed all day like really it was
so tiring
Anyway
So I try to do my normal life with my taking care of my daughters, taking care of my family and everything,
but me. I have no idea exactly how to manage my care. So
Then we moved from Washington DC to
Maryland and I went to John Hopkins and the same so the neuromuscular
team there
just continued the follow up with my follow-up says like there is no medication for FSHD
There is no communication and no nothing to do
So every year I felt like they were only recording my deterioration.
Yeah, I was deteriorating every year I put on weight a lot I had to stop doing
exercise so I am 20 kilograms more than when I was diagnosed, but now it's because I live in Spain but
at that time it was really because I couldn't exercise so
And I used to be very athletic. So my whole body was getting used to it. So then
when we moved to Maryland
I tried acupuncture the acupuncturist with you know, take rid of any pain.
Sometimes I have pain and they would give me it would give me some energy
And I try yoga, but I couldn't do any yoga moves because my body it was not responding well
And I took all the supplements and I took everything but you know every year they would I would go to John Hopkins
and they'd just
do an exam of my deterioration, let's say ..So then
actually, they also measure my lungs strength and
I don't remember how I started but I remember two years ago
It was in 70% my lungs
strength and then they they give numbers to every
muscle that they measure for strength. So they've measured my legs and they've measured my arms and my scapula and
I have to... I can't drink from a straw
Well, I couldn't, now I can whether I couldn't before and blow a balloon
it was very difficult with the
condition in the mouth. My dad was sick in Mexico, so I have to
go but he's he was 90 years old already, so I didn't think I was going to make it and
that stress created a cervical hernia not maybe not related with FSHD,
but the pain was terrible, so I went to the doctor and they gave me opioids for for the for the pain
and I never take
medicine I don't like I like liked alternative medicine, but he was so much in pain that I had to take it
but then it was worst because then my my brain wouldn't function and I was just like laying down and my whole body was not
responding ,so
so I went back and I told the doctor this medication is not
helping me, so he duplicated the dosage. It was going to be Christmas
So I was like, oh no no, no. No, I'm not gonna take this
So I searched. I was new in Barcelona and I moved there three years ago,
so I was new there and I asked for help for a Chinese medicine place and I found an acupuncturist
So she actually took all the pain away in two sessions and I met a chiropractic
who just returned from
one of Dr. Joe Dispenza's workshop and she was gonna go to Tarragona in January. It was December 7th
So she said you have to go to this thing and she hugged me and cried and it was the first time I met her
so
Okay, so we bought the progressive online and I wanted to enroll to Tarragona
But it was already ..no I couldn't do it because I didn't have the progressive so it's not immediate
Anyway, that was not my time
I didn't finished by the time the Tarragona I started so I called in cell phone I said, okay. I'm going to wait until
the next one. So I went to Sardinia.
Well the last day I
was in one of these
coherent healings. It was not the last day, it was the day before it finished. I was in one of these coherent healing and
Oh
Wow, when I was lying there since it started on the preparation and everything. I
could not contain myself like so much love and gratitude and
finally I let myself go and
truly opened my heart and
I was just feeling these
amazing sensations
Forgot about everything and
It just happened, I don't know exactly what happened but
kind of hard to describe the joy and gratitude I felt and light and everything
up to the point that I when
that
finished I could not feel my body
My body was kind of like this and they my team around me
everybody were hugging me and
helping me and I could I try to talk I could not talk
They could not hear me. I was trying they could not hear me. I could not see I could not
kind of, you know feel my body. I could not feel my hands, my feet,
so it took me a while actually the workshop started and I was still lying on the floor
So something definitely happened there
And then I was exhausted
So I went to my room. I just went to sleep. So the next day so we came into the room and
start dancing, right? And then I was jumping and I was moving my arm that I could not move in eight years
I was just moving it just like this
cause I didn't have a biceps. So I started moving my arm. I
think I could not contain the joy, and the gratitude and
myself
so I started just crying and
my team leader came to me hug me stroke. I
was crying like a baby of gratitude and joy and
everything. I kept doing the work. I started to feel better
I actually told my husband I'm not gonna go to John Hopkins anymore because
they just do.. you know record my deterioration,
not my progress and I've really progressed. Actually my daughter had a terrible
accident she broke five cervical vertebra right after I returned from Sardinia
so
fortunately, I
became I I returned home really strong emotionally and physically, I could help my daughter
and I the way I stayed with her for ten days in the hospital we were going to go to the US for the
em.. for John Hopkins
My checkup and
okay
they didn't do anything and they
recorded some progress of my muscles. They really recorded. I saw the numbers increasing in every single muscle
This one went from zero to one at that time
My lungs increase from 70 to 85 percent
This muscle increased to I think two percent well from from one to two and all my muscles increased the number
so
Wow, of course that was fantastic!
So I started swimming and well, I've never stopped swimming but I started swimming more like 800 meters every day
and now I'm biking my E-bike, but I'm biking and then I
yesterday when I did the challenge
I could not believe I went all the way up to that ladder and that's how I decided to give my testimony because
I couldn't have done it when I started I was almost in a wheelchair
I mean my thought my family would take me would go to Disney and I had to go in a wheelchair because I could not
my body was so weak and now I don't get the fatigue anymore since I met Dr.
Joe, I really want to share the voice that not to be discouraged but what doctors said because what we can achieve
as dr. Joe says is
way way more than what we can think of!