My name is Bella Arcand, I'm 17 years old and I was about
six years old when I started having seizures. My name is Aiden, I am nine years old and I was four
years old when I started having seizures. Hi my name is Jovie and I am 12 years old.
I was four years old when my first seizure happened.
So my name is Nicolló. I'm seven years old and i've had a seizure since I was born.
It affected it a lot because once I got it I was always really tired after I had one
and I had to be confined to a wheelchair because of how many I had and just not being
able to play with the kids on the playground. It has made me eat healthy, go to bed early,
show up to my doctor appointments and there's nothing that I cannot do.
It works with my corneas to make stuff worse. It was probably being in a wheelchair and not
learning the same way as the other kids would, and losing so much
control of what people, like what I would do or something. They would always just tell me
what to do, and relearning how to walk and talk and also not having a paralyzed arm and stuff.
It's not too hard but it's a part of who I am. That I have to be calm and not
very excited. Like I can be excited but it's hard for me because I can't be that excited.
Definitely having a seizure because you get less day time.
Just that if somebody is staring and repeatedly staring for like a long time like a really long
time and they're not responding to anything that means they're having a seizure. And then you just
don't want to be like 'oh they're judging you' or something. Just not to prejudge them before.
I would like others to know that it's a medical condition and there's nothing
that you cannot do that. it is very hard
and we can't, we don't know what it is like to not have epilepsy and to not be a normal kid
or normal and go and do stuff without having to not be that excited or not that stressed because
it is hard and that's what my seizures cause me when I'm excited or very nervous and scared.
It's very uncomfortable to have.
It's been seven years since I last had my seizure. It has been five years since my last seizure.
165 days
Thank you so much. Thank you for being so patient, like I remember sometimes I would
be crying and stuff because of how much needles I would have to get and shout out to nurse
Brenda and Dr Huntsman and Wendy. Thank you for you guys I could not I don't know what
I would do without you guys, so thank you. I would like to say you are very nice people
and thanks for being a part of my journey. Thank you very much and it's way more nicer when
I actually have nicer doctors that care. Maybe we could start a whole team
to find out a way to make a way to get epilepsy out of our bodies.
Thank you so much. I really appreciate you so much and we will always be there for each other.