Kelly Edwards: The behind the scenes work is the hardest
work, I think.
It’s -- I just stand here and clap.
[laughter]
But the -- so you all have half sheets in front of you again.
These are actually are our workshop evaluations.
So what I’d like to do is give you, you know, two or three minutes to -- it really,
really gives us important feedback to know what you are taking away from today.
On -- and so if you could take literally three minutes and give -- jot down some ideas on
there.
If we weren’t so tired, I would love to give you a minute to give a closing comment
to your neighbor but I’m going to ask us all to do that as one large group because
I think we all need a final word -- just one word.
And then I want to make sure the organizers and hosts: Jennifer, Liz, Charlisse, David,
Elaine, Symma -- if any of the organizers and hosts have anything you want to share
at the end, any of the next steps that you’re planning on, that’d probably be helpful
for us to hear, perhaps even as people are writing a little bit.
Jennifer Couch: Well I would just reiterate a couple of things
which are -- we will put together a report.
I know some of you were here when I said that at the last workshop and it never entirely
materialized.
To -- in my defense on that, the world changed very quickly, all the terminology changed
and so the report was out of date about a month after the report -- after the meeting.
So this is a follow-up to that.
We will do a report this time for sure.
And -- but we are very interested in continuing this dialog that started here today.
And I know that we’ve heard from some of you that you want to see materials, you want
to share, you want to keep in touch with each other, and also I think there are maybe there
are this whole group or there are sub groups here that are interested in continuing on
a, perhaps a more focused dialog, maybe focused in on one or two of the things that were highlighted
in those, sort of, closing slides so we’ll be back in touch with you all.
I’m going say that on behalf of Dave and Charlisse who will be back in touch with you
all and providing that opportunity.
But if any of you have thoughts here, now or after you’ve left on how you’d like
to keep that discussion going, that would be great.
We’re also going to take this information forward with what we learned at the games
think tank, what we learned at the original think tank and, sort of, field as a whole
to that panel at the citizen’s science association meeting, so any of you that might happen to
be the SCA, please join us for that.
And I think that will be an interesting meeting as well and if you want input on what we’re
thinking about taking to that group, let us know that as well.
And I’ll turn it over to Dave and Charlisse and Liz and the others, if you want to add
to that or subtract from it.
Kelly Edwards: And a Dave and Charlisse are negotiating,
one other seed I want to plant for you all -- what I -- as our closing round robin for
everybody today, I want to just hear from everyone, sort of, the one word, you know,
what’s the top priority for you coming out of this meeting?
What’s like the biggest idea, most important issue or area that you want to walk out of
here -- that you are waking out of here with?
So that’s, kind of, the one word that I’m going to ask for as we go around the room
to close.
But -- so just give that some thought while you listen attentively to David and Charlisse
next.
Charlisse Caga-anan: Okay, so Dave will fill out his half sheet
while I talk and then I’ll fill out my half sheet while Dave talks.
So let’s just start with thank you to everybody in this room.
I know like we tried reaching out to you for months and I know like there were a lot of,
kind of, back and forth and trying to get everybody to participate in the sessions.
This was really a commitment, you know.
A lot of you traveled like across the country to come to this meeting.
We asked you to do a lot more participation than I know a lot of the NIH meetings that
you might have attended in the past, or other, you know, academic type meetings that you
might have attended.
We really asked you to do a lot of work and we got so much out of it and we’re going
to have so much to process from all of your invaluable comments and, you know, it -- my
word for the day yesterday was gratitude and that -- I continue to have that feeling as
I look around the room and I look at all the notes that I’ve taken.
And we know that the work will be hard but we know that it will be worth it to try to
get some shape to everything that you’ve given us.
So once again thank you for your participation.
Thank you for coming here.
Thank you for being so engaged for a long two days of meetings [laughs].
Dave Kaufman: Well said.
Thanks.
Yeah, I mean, obviously a second thank you to everyone for -- I mean, you don’t get
any -- I don’t, you know -- I mean, motivations, you know -- yeah, you get no money for this.
You don’t get coffee.
So we really appreciate you taking your very, very precious time and coming to share with
us.
It’s very challenging to figure out who should be in the room.
One slide we didn’t show you, our group one came up with a list of other stakeholders
that we need to talk to and so we know there’s a huge community out there but we’ve -- I
mean, I think speak for both of us when I say we’re really proud of who came and what
you all contributed.
In terms of our next steps and I mean I haven’t even -- I haven’t checked this with our
folks but, I mean, one thought -- so -- but -- I mean, I guess I’m just asking your
willingness or interest in -- you don’t have to raise your hands or anything -- but,
I mean, one thing I think would be very useful is once we process this information and, you
know, write up, I mean, some kind of summaries to our two main questions of, you know, what
we think we heard, you know, I think feeding that back to you guys and using you as sounding
board, is that really what was said and what did -- you know, what are we missing?
So, you know, to an extent you are willing to do that, I think, you know, my guess is
we will probably be asking something like that of you -- and then sub groups and duh
duh duh.
And -- you know, to follow up on specific issues.
And just one insight that I’m taking forward -- one thing that strikes me is that, you
know, so many of you already know about enormous efforts that have gone on related to ELSI
issues, work that has been done, tools that have been developed and so I think, you know,
our charge is to not reinvent but build upon that and to take advantage of -- I mean, the
other thing I noticed is the enormous energy and commitment to this work from such a diverse
community of -- who have diverse interests and but -- all -- in our group three discussion
it was, sort of, the tech people and, I mean, they are just like -- they’re probably -- I
mean, we didn’t share that information but there were probably like 30 ideas that came
out.
I was like “Dag” -- and never -- they were all nodding their heads at one another.
And I was like, “I have no idea what you’re talking about but I’m writing it down.”
[laughter]
So, I mean, it’s clearly a hyper energized community.
I mean, you see that with the Twitterers and, you know, that was only a couple of them.
So, you know, we really want to build on this energy and this commitment that this community
has and that’s what I saw.
Kelly Edwards: Yeah.
Thanks, David.
And I think -- thank you for the reminder of -- because round three was important this
morning because, I think, well this charge of this meeting was to come together to give
-- to advise on NIH funded research.
I think it’s also we’re here as actors in this world, as well, from all the different
places where we stand and sit and so I think -- thinking that we’re personally walking
out of here with to bring into our own communities of practice I hope that and trust that you
all -- that we all have been enhanced in that way by this conversation and exchange, so
--
Dave Kaufman: And we’ll summarize the round three stuff
and give it back to you all as well because, I mean, I think in some ways, at least what
I heard, is, you know, possible next steps, you know, ELSI or not for, you know, some
of the various communities represented here and to the extent that’s useful.
Kelly Edwards: Right.
Dave Kaufman: We’ll send it out.
Kelly Edwards: That’s great.
Yeah.
Female Speaker: Again, I want to reiterate that it would be
useful to get the raw slides, not your summaries, so that way we can continue to add to them
and thank you.
Kelly Edwards: And I think we’ll -- it sounds like we’ll
work on a shared space so we can make that available.
Okay.
Are you ready -- I think we’re ready to bring it to a close.
Oh, we’re going to -- and we’ll get Pearl back for her very last word here in a minute.
And Jean just to warn you, I want to start on your side of the room this time.
But I -- so I think what I do feel it’s important -- you all have been really active
participants throughout including all of you back here.
That’s why I try to back the microphone up so I don’t have my back to you all.
It -- so just for everyone to just have a literal last word.
What are you walking away with?
What’s your priority coming out of here?
And we’ll just start over here and work our way around.
Jean McEwan: I’m, sort of, mentally flooded with ideas.
Kelly Edwards: Great.
Jennifer Couch: I’m going to use my 10 seconds to thank
people we should’ve thanked which is out there in the virtual space, the folks that
joined us and were very active on the Twitter feed and elsewhere.
Very interested in continuing to hear from you and engage you as well.
And thanks to our capable Twitter master over there, Katrina, and our video cast folks who
have made the broadcasting outward and back inward possible.
Kelly Edwards: Gratitude.
That to Deb?
Deborah Collyar: Find common ground for a starting place.
I know it’s not one word but --
Kelly Edwards: Phrases are welcome.
Female Speaker: Synergies.
Andrea Wiggins: Connections.
Jason Bobe: If you don’t know what citizen sciences
is, go participate in one and learn.
[laughter]
Denise Dillard: Cultural change in the research enterprise.
Lea Shanley: Agency change in research enterprise, as well.
Bob Galman: Still confused about definition.
[laughter]
Nick Anderson: Translational.
Kelly Edwards: Let’s go through the middle there, Sacoby?
Sacoby Wilson: Potentially transformative.
Female Speaker: Conversations.
Male Speaker: Actionable steps.
Dave Kaufman: Helping us identify priorities.
Charlisse Caga-anan: Commitment to relationships and processes
as well as outcomes.
Kelly Edwards: Thank you.
I’m going to sweep back here and pick up this group and then come back that way.
Can we start up there?
Female Speaker: [unintelligible]
Eric Brown: Action and innovation.
Female Speaker: Paradigm shift.
Female Speaker: Citizen scientists participate all through
the research process.
Male Speaker: Case compilation.
Female Speaker: Opportunity for making the science more access
to real needs.
Male Speaker: New public interfaces to research.
Male Speaker: Scientific continuum.
Female Speaker: Equity in partnerships.
Steven Wing: Let’s remember that like other tools, however
excited we are, citizen science can be used for good or for bad.
Symma Finn: Pushing boundaries and empowerment.
Karen Rothenberg: No easy answers.
Jeff Khan: An interesting start.
Female Speaker: Working together to solve biomedical issues.
Sara Hull: How can NIH intermural and other parts of
NIH help?
Effy Vayena: Adaptation.
Female Speaker: The politics of power.
John Wilbanks: Follow the money.
[laughter]
Female Speaker: Opportunities for new research models and
innovation at NIH.
Kelly Edwards: Thank you.
And I think for mine, I would say -- did we get everybody?
Who else?
I would think, “We’re all in this together.”
So I think because of that, thank you so much.
And thanks again to Charlisse and Dave for all your behind the scenes work to get this
meeting pulled together and Jennifer and Liz for your leadership throughout this whole
process and really to all of you.
So thank you.
[applause]
[end of transcript]