SEE THAT SIMULATE YEAH LIKE
FOOD GAME WE HAD A FEARSOME
OUT ALL RIGHT. THANK YOU. KEN
BANKS.
HEY IF YOU LIVE WITH OR
WORK WITH SOMEONE WHO SUFFERS
FROM MIGRAINES OR IF YOU
SUFFER FROM THE DISEASE
YOURSELF.
IT'S IMPORTANT UNDERSTAND
THE MIGRAINE IS SO MUCH MORE
THAN JUST ABOUT HEADACHE. I
KNOW ABOUT MY GRAND CS
UNFORTUNATELY, YOU KNOW
MIGRAINE IS A NEUROLOGICAL
DISEASE WITH DEBILITATING
SYMPTOMS. THAT CANNOT BE
IGNORED GIVEN THE IMPACT OF
DAILY LIFE, ESPECIALLY WHEN
LIVING THROUGH A GLOBAL
PANDEMIC WELL MARY FRANKLIN IS
THE EXECUTIVE DIRECTOR OF THE
NATIONAL HEADACHE FOUNDATION
SHE JOINS US NOW TO TALK ABOUT
HOW PEOPLE ARE LIVING WITH
THIS INVISIBLE DISEASE WELCOME
MARY.
THANK YOU THANK YOU FOR
INVITING ME, YEAH I WILL I AM
VERY INTERESTED IN THIS
BECAUSE I I GET MIGRAINES
MONTHLY AND I ALSO GET A LOT
OF HEADACHES. SO YOU KNOW THE
NATIONAL HEADACHE FOUNDATION
RECENTLY CONDUCTED A SURVEY
AND WHAT DID THE RESULTS TELL
YOU ABOUT HOW PEOPLE WITH
MIGRAINE ARE DEALING WITH
THEIR DISEASE.
THE SEA AND CNS RESPONSE
AND MY PART IS THAT 93% FELT
THAT THEY WERE MISUNDERSTOOD
SO HOW DID THEY GO FROM THE
AIR. THEY ALSO OVER 50%
THOUGHT THEY WERE A BURDEN TO
THEIR FAMILY THEIR FRIENDS.
THEIR COLLEAGUES. AND ABOUT
29% FELT THAT THEIR TREATMENT
WAS SNAPPED HELPING THEM. SO
THERE ARE A LOT OF OPTIONS FOR
THERAPY. BUT I THINK THE
IMPORTANT THING IS EDUCATING
FOLKS ABOUT WHAT MIGRAINE
DISEASES. AND HOW IT IMPACTS
IN SOMEONE'S DAILY LIFE.
THOSE ARE SOME PRETTY
SURPRISING SURVEY WAS OUT
THERE, ESPECIALLY SO MANY
PEOPLE SAYING THEY FEEL
MISUNDERSTOOD AND THEY'RE
WORRIED ABOUT BEING A BURDEN
HE I WHY IS THAT DOES THAT
HAVE TO DO WITH THE WAY MY
GREENS ARE OFTEN BEING
RECEIVED.
FOR YEARS DISCOUNTED
MIGRAINE IS JUST A HEADACHE
WHICH IF YOU HAVE MIGRAINES,
YOU KNOW IT'S NOT JUST A
HEADACHE. YOU HAVE A CAMPAIGN
TO SYMPTOMS SUCH AS NAUSEA
VOMITING. SENSITIVE
SENSITIVITY TO LIGHT OR SOUND
DIZZINESS OR MAYBE YOU HAVE
BRAIN FOG WHERE YOU CAN FIND
YOUR WORDS WHICH IS PRETTY
FRIGHTENING.
SO THEY'RE NOT ABLE TO
FUNCTION AT THEIR FULL
CAPACITY THEY CAN TAKE HERE
THEIR KIDS ARE THEY CAN'T GO
TO WORK OR IF THEY'RE AT WORK.
THEY'RE NOT AT THEIR BEST
LEVEL OR THEY CAN PARTICIPATE
IN SOCIAL EVENTS LIKE BIRTHDAY
PARTIES GRADUATIONS. SO
SOMEONE ELSE HE HAS TO TAKE
OVER SOMEBODY ELSE HAS TO
WATCH CHILDREN. SOMEBODY ELSE
HE HAS TO DO THE PROJECT. SO
THAT IS WHY THEY FEEL THAT'S A
BURDEN AND IF YOU DON'T HAVE
MIGRAINE ATTACKS YOU DON'T
UNDERSTAND THE FULL.
RESPONSIBILITY AND IMPACT OF
THESE HEADACHES AND SOMEONE'S
LIFE, YEAH AND I CAN I CAN SEE
THAT FOR SURE AND SO YOU KNOW
WHAT WOULD YOU SAY ARE SOME OF
THE BIGGEST AND
MISUNDERSTANDINGS WHEN IT
COMES TO MY BRAIN DISEASE.
WE DON'T RECOGNIZE IT IS A
DISEASE. WE DON'T UNDERSTAND
AND IT'S A LIFELONG EXPERIENCE
YOU MAY START YOUR HEADACHES
IN PUBERTY IN GO ALL THE WAY
TO RETIREMENT AGE.
YOU THE PRIMARY TIME FOR
PEOPLE WITH HEADACHES IS
BETWEEN 1850. SO THEIR
ASPIRATIONS AND THEIR CAREER.
OUR LIMITED. THEY MAY CHANGE
JOBS THEY ME BEFORE STAT OF
THE JOB THEY MAY NOT BE ABLE
TO FINISH COLLEGE OR GRADUATE
SCHOOL. SO WE JUST ON HAVE TO
UNDERSTAND WHY DESCRIBING
INVISIBLE DISEASE IS TURNING
SO MANY PEOPLE.
YEAH, I MARRY I KNEW YOU'RE
AN ADVOCATE YOU'RE SOMEONE WHO
SUFFERS FROM MIGRAINES AND YOU
WORKED WITH THIS TOPIC AREA
FOR A LONG TIME. ANYTHING
SURPRISE YOU ABOUT THIS MOST
RECENT SURVEY.
I THINK JUST THE FACT THAT
SO MANY PEOPLE DIDN'T FEEL
THEIR TREATMENT WAS HELPING IN
ALSO THAT THEY FELT
MISUNDERSTOOD IT JUST SHOWS.
THE WORK EITHER HE HAS TO BE
DONE TO CHANGE PEOPLE SEE
ATTITUDE TO MAKE THEM FEEL
THAT THERE'S HELP OUT THERE
BUT ALSO GET THE PUBLIC TO
UNDERSTAND WHAT. IMPACT
MIGRAINE DISEASE HE HAS AND
THE INDIVIDUAL YEAH, I KNOW I
GET THE AURA MIGRAINES WHERE I
CAN SEE IT'S HAPPENED TO CAR
AND I DON'T WANT TO SAY
ANYTHING BECAUSE I JUST THINK
WELL PEOPLE YOU KNOW THEY
DON'T WANT TO BE HER AGAIN SO
I JUST I TRY TO JUST GO
THROUGH IT, YOU KNOW READ THE
SCRIPTS BUT EVEN I CAN'T
REALLY SEE WHAT'S ON THE
PROMPTER SO YEAH I CAN
UNDERSTAND HOW PEOPLE FEEL
LIKE THEY'RE ALMOST A BIRD AND
YOU KNOW TO THEIR.
EITHER THEIR COLLEAGUES OR
THEIR FAMILIES SURE YEAH, I
THINK YOU KNOW THE ONE THING
AT HELPING PEOPLE TAKE AWAY
FROM THIS IS THAT STAYING
SILENT IS NOT GOING TO HELPFUL
TO YOU OR ANYONE SO WHERE CAN
PEOPLE GO IF THEY DO WANT TO
LEARN MORE OR MAYBE.
LOOK FOR NEW TREATMENT ONE.
THEY CAN VISIT AND THE WET
DEMAND MORE FROM MIGRAINE DOT
COM OR DOES IT THE NATIONAL
HEADACHE FOUNDATION AND
HEADACHES THAT WORD AND
HOPEFULLY THEY'LL FIND
INFORMATION THAT WILL HELP
THEM AND MAYBE THEY CAN SHARE
WITH THEIR CO-WORKERS THEIR
FAMILY AND EDUCATE ABOUT
MIGRAINE DISEASE MARY THANK
YOU SO MUCH SOME GOOD
INFORMATION THERE AND THE KEY
HERE IS WE WILL PUT A LINK TO
THE NATIONAL HEADACHE
FOUNDATION ON OUR WEBSITE KOIN
DOT COM HAVE A GOOD MORNING.
YEAH, GOOD RESOURCE, THERE
ARE A LOT OF PEOPLE AND YES,
SOME SOME GOOD AWARENESS
BECAUSE.
LIKE YOU SAID UNLESS YOU'VE
HAD ONE OR RAIN LIVES WITH
ITS. IT'S IT'S HARD TO
UNDERSTAND JUST HOW IMPACTFUL
THE S AND YOU STILL WANT TO BE
THAT YOU JUST FEEL LIKE YOU
WANT TO BE THAT PERSON LIKE OH
SHE HAS A MIGRAINE AND AND NOT
SAYING ANYTHING AT ALL AND
WILL YOU LET ME KNOW WHATEVER
YOU KNOW YOU'RE GOING TO GO
AHEAD OF THE OTHER COUNT. YEAH
WITHOUT ALL THE GREAT YEAH,