David as high-functioning autistic worth
explosive behavior Hanna's more of a
young carer and she has ever been being
self isolated the three of us is really
really hard
what happens if my pain gets worse
something has to happen to me perhaps
Tomatsu kids my name is Vivian I'm 43
I live in Dannan and Scotland I've been
selfish awaiting with my two children
Hannah is 11 and David is
high-functioning autistic with explosive
behavior
I have spinal nerve damage and
left-sided weakness I have chronic
fatigue syndrome and generalized chronic
pain Hannah is a young Kyra
there is DS we are my chronic fatigue or
my spinal damage pain limits what I can
do
whether it be betting on my shoes or
some time to get to know quite a bit
Hannah is very mature for her age and
she can meet cups of tea she can cook
for us she can bake for us she can speak
to David and she can count him down if
he's highly frustrated and getting
aggressive being self isolated the three
of us is really really hard everybody is
feeling very anxious
David is struggling basically follows
olden years to see what's happening and
we'll just constantly come into your
room or interrupt a conversation to tell
you how many people are there to
guerilla date so David how are you
finding it being of skill to see my
friends and all the work addition online
and how oh no take I just no routine I
just rather
we get up in the morning I try to keep
the kids and their routine this is what
we do with our eras activity each D D
Verdun Hanna no get there school and
she's delivered to the house
so David's weeks up every morning and
then literally weeks weeks for his
school lunch he's happy to get that
because it means he gets to weave it
somebody from the grammar school and the
bus and that 30-second interaction for
him is amazing and you like their fish
and chips David had the idea a few weeks
ago that could he put up his Christmas
light so that it would cheer people off
as they walked past so david displayed
all his lights people stopped if they
see him to give him a thumbs up
ambulances slow down beat the horn give
him a thumbs up from david getting up at
6 o'clock in the morning till lunchtime
he just doesn't stop he wanted to play
in the garden he wanted to play with his
knee afghans he wanted to paint things
he wanted to be he wanted to go out with
the dogs he wanted to walk can I go get
my friend and then I'm like no David
remember we're in isolation where and
what I'm fatigued as like something I've
never encountered before it's like
somebody just what she's off the power
switch doesn't matter how much sleep I
have some days that could be I could
sleep all day and night and we got the
exact same we
so by lunchtime I am exhausted and I've
had to say to Hannah Davis playing xbox
she's fine but I need to go and lie down
and then an hour or so later I can the
11 year old making me a cup of tea in a
language and bring it up to me David can
and has been very physical with me and
has attacked me on dozens of occasions
when he gets so anxious and so wound up
he becomes a different person so Jekyll
and Hyde he doesn't know how to control
it he doesn't know what he's supposed to
be doing what he's supposed to be
feeling any normal days bad enough
Hannah used to go for counseling
sessions with calms the child Adolescent
Mental Health Service she was told if
she felt unsafe what David was acting me
to call the police it's not a thing I'm
11 year old wants to hear and it's not a
thing I love you don't want to do and
this situation that we're in now
Hannah's more of a young Kiera than she
has ever been and I don't know how I
will ever repay I shall ever appreciate
how much I appreciate her and everything
she's done I probably worry more now
than I did before before I used to worry
okay what happens if my pain gets worse
and what happens if I have a really bad
episode of fatigue which I did over
Christmas and literally Christmases and
January if I could left my head off the
pillow enough to get Hannah to school
and David to school that was a good day
for me
something has to happen to me perhaps
Tamotsu kids although I can see to an
empty and a situation somewhat to Maine
or any part of somewhat to Maine or
nothing like me
just keep in touch with people and don't
stress about the whole world because
that's not the be-all and end-all
enjoying time together but finding your
space and finding time alone is the most
important part of our country getting
through this and all I can do is hope
that on the other side there actually
makes maybe our country and our
communities a better place