S: Hey sweet stuff. M: Hi, pancha. S: What's happening here?
M: I'm so grumpy. S: Why are you grumpy girl?
Because I did something to my wrist, but I don't know what I did to it
But it hurts like, super bad and you're leaving for Poland in like four or five days
and so we were gonna film some stuff and go on some adventures...
Uhh..
It's frustrating, but this is life, right? It's uh, Golden Week holiday, which means like everything's closed
It's like doctors offices are, you know, closed.
Our physiotherapist is gone until... S: I think in two more days. M: ...until Thursday or Friday
Yeah, I guess today we're going to try to do a
gentle adventure somewhere. S: Let's get to it, girl! M: Alright! Gentle high-five!
S: Don't hurt this hand. We need this one
Gently... M: Man!
Cheese my peas.
Never thought we'd do a husband does my makeup tag.
So step one is...cream?
You need to put a little bit of cream.
How many pumps?
Just like, one or less. Yep! - Oh, too much.
Okay, so just take your finger, stick it in it. Yeah, and then put some dabs on my face
You always want to make sure your face is super moisturized before you put makeup on, so
Okay. Now you just - no, now you use your other hand. Not, no! Oh my god
Ahh! Video's cancelled!
Using this hand, S: Yeah? M: begin to rub this cream in, okay? I mean, however you rub cream in is fine
Just - you don't want to put too much cream on my face or the makeup won't *Meemers meows* That's right, Meemers!
So while this dries, do you want to try braiding my hair?
Sure! Okay, let's brush the ducky head. M: Okay? S: Okay
M: Here we go! So you actually know how to braid?
Yeah, of course! It's three, we did that at like Christian camp in summer where...
What are you talking about?
...they leave you in the woods with a bunch of other kids, where
all the parents are like, "I don't want my kids for the summer,
please take them off my hands." And my parents sent me to one and then...
M: Really? S: ...you make like friendship braids
One kid was playing with that ball that's on the string that's around the pole and you're suppose to like,
hit it back and forth and then one kid just like jammed his fingers through his hand, and everyone was like "Whooaah"
So you get three big chunks?
Yes. Make me look like the wife you'd like to see outside
Alright, let's get them push-up bras out
Alrightttt
Ow, pinchy! What are you doing?
I don't know what - all this sh*t is getting tangled around my fingers.
Ow! So pinchy!
Maybe we shouldn't have filmed anything at all today.
You look great.
Let's take a look and see if you can see it from here. S: Yeah, my god!
Is that - is that Martina or is that Daenerys, Queen of the dragons, first of her kind?
Now, this is - this is absorbed. S: BB Cream, yeah. M: Okay, shake it. Okay
You are using S: Yeah. M: ...only one pump.
S: One pump. M: It will oxidize. Holy sh*t, alright.
Good. One pump, let's go.
M: Alright. S: Now little dots, right? M: Yeah. Okay. You can start blending it now. Yeah
It dries and it oxidizes and changes color
Look at you, beautiful face
I love you so much.
Don't forget to go under my eyes
S: Is that good? M: How am I supposed to know if this is good?
You look great to me! M: Does it look coated?
Yeah!
So, you're supposed to take the BB Cream from your mouth. You lick it, and then you just rub your face with it.
Just like that. Oh, yeah. Oh my god so much fluff.
Powder. S: Powder!
Okay so, this is a pressed powder kit.
S: Yep! M: And what it does is it's going to absorb the oil
and make my skin look matte, and keep this from falling off
So we're doing this to kind of like, set it.
S: Okay. M: Okay, so, you're going to gently swipe it across.
Yep, yep! That's enough.
S: Okay. M: And you're gonna have to be like, here's a little here, here's a little here
So the start on the forehead so you can see what it looks like
See? S: It looks like nothing.
And it should look like nearly nothing, but is it looking matte instead of glossy?
Yeah, that's true. Okay.
So when you start doing this, you don't want to push too hard or you'll literally wipe off the makeup
So I have a question. M: Mhmm?
At what point do you get that line on your neck
like all the girls in my high school used to do?
So in order to get that amazing neck skin-color line,
that means that you're using foundation that doesn't match your skin color
and you're putting it on so thick.. S: I'm gonna get your ears also
No, you don't need to get my ears at all. S: Okay, well I got a little bit of your ear
That's done! You ain't putting no mascara on me because I will die. S: What do I do with this brush?
Okay, so, when I smile,
right? S: Yeah. M: I have these cheeks here. S: Yeah
And then it goes like this! S: Yeah.
So we're trying to make it look like my cheeks always go up. S: Okay.
We're trying to make it look angled.
S: Oh, f*ck
Yes! S: There you go. Wow that's so pink.
Give it a dab. S: Dab!: M: That's enough!
And now smile.
Like that?
Can you see the color going on? S: Yeah, I see a bit of pink, I guess?
Yes, there you go. Alright! You got it
Okay. See you put so much on. S: Did I? M: You can't remove it. S: I can't remove it?
No. So... S: There are all these rules! M: I know
Just, gently up.
Okay -
I'm doing the swipey up and down!
But you gotta look!
You got to be like, "Does it look pinker? Does it not look pinker?" You just don't go
ble ble ble ble ble ble ble
It really does look a lot pinker
You look in the mirror and see for yourself
I think you did a fantastic job.
Did I? M: Yeah! S: Oh my gosh, I thought I did a terrible job.
I'm so glad M: I think you, I think you did a stellar job!
Well, it's so easy because you're so pretty! M: Hmm, it's one of these, is it?
Martina can't accept a compliment... M: I can't! S: ..to save her life!
How do you guys feel? S: Ever! M: Okay,
if I had to save my life, I could. If someone was like, "You look so pretty right now!"
S: No, I think you'd rather die M: ... or you're gonna die, I'd be like
S: ...rather than accept the compliment
There's a bridge that's about to collapse and they're like,
"All you need to do is accept the compliment. You look so pretty right now!" I'll be like, "it's the makeup!"
Even after all these years, I think you're actually even more beautiful than when we first met
I think I look better than when we first met
I was pretty dumpy
So, Simon got me this awesome little tiny DGI camera for my birthday because I'm having a lot of problems holding the cameras lately
I can hold them but it's really exhausting for my tendons and my arms and I get really shaky
So we're gonna try to film our little mini adventure that we're going on to get lunch
So right now you guys are probably looking at footage through the main camera. And now, this is the footage of the other one
Whoop!
And that's me. So, I gotta go this way because it's bright. There we go!
So we're gonna walk over to the conveny because I cannot use my bike today because of this arm
I'm just gonna show you what we're gonna eat for today. This is a normal day in the life
With Simon and Martina
That's right. Goodbye, bike. Today, I will be walking, one of my all-time least-favorite things to do
Think of me while I move slowly
S: Whatcha looking at, girl? M: These are like, snapdragons
It's so pretty
It's just growing out of the side of the road here along with all these clovers, you know?
And like, it just looks so pretty. Like this whole area looks so nice.
Oh! They have pots here, too!
So like someone's taking care of this and there's a rosemary bush at the bottom. How nice!
One of the things I really like about Martina that maybe most people have but I don't is, she really knows
plants really well and she look at it and be like, "Ooh, look at that! That's a Snapdragon."
"Woo, there's lavender. Woo, here's lilies of the valley."
I'm like, "There's a plant."
There's a what? There's a plant
It's not concrete, there's a plant. Here's a doggie. M: I need to thank my granddaddy for that
Here's a nice little doggie comin' along!
Puppy in a basket!
This part of the video is for Martina's mom, who always likes Martina taking pictures in front of flowers
Hello -
Even when we were little, we'd be like somewhere in Vancouver
at the suspension bridge, and she'd see like a pot of planted flowers
that were growing and she'd be like, "Let's take a photo by that tree or like behind those bushes!"
So we have all these family photos of us behind trees being like... But it's not as a joke!
My mom really enjoys nature. And so she genuinely is like, "take a look at that!"
Maybe that's why I notice all the plants and stuff, you know? S: Could be!
If we're gonna take a photo,
we need to just like, plant ourselves behind a plant and just jam ourselves out of it
So pretty~ S: It's real pretty
Yeah~
So, one of the things that we absolutely love about Japan is that convenience stores are actually convenient
No matter where you are,
you're going to be able to find a convenience store, and they have really dope food
It's fresh,
they do coffee, like, it is more than a convenience store
I don't think it should be called a convenience store, but it is very convenient. And it's not overpriced
Ducky. A Kirby fondue pot?
Alright, let's get some food!
What are you getting today?
Today is a workout day, so I think chicken and rice
I might go for this today. Inari sushi and soba
This one is tororo, so you actually pour in sides and mix it up
And I'll be honest with you, I look like I'm talking to myself.
Pop it in! M: I can't, because of my hand. I'm barely balancing it. S: Oh sure, okay, I got it I got it.
Here we go
So we weren't able to get all of these things from the convenience store
I have cold soba noodles with inari sushi
We got our spray-on sunscreen
cause it's starting to get hot outside.
Simon got sardines in oil,
he got fried rice with chicken
He's got these steamed herb chicken breasts. Look at this. It's delicious and it's not even overcooked!
I'm trying some new summer tea, and we got ourselves some milk,
and I got myself this mozuku seaweed
and it looks totally nasty and just - you have to basically brace your mind and tell yourself that it's not
disgusting because it tastes so good!
Let's eat some food
M: So whatcha makin' ducky?
I'm just making a quick little stir fry, very easy
I got some leftover ham that I don't want to go bad, put a little bit of onion and
then that chicken breast and the rice.
The rice is a dollar and the chicken breast is two dollars
It's like, three dollars and a bit for a pretty solid protein-heavy meal
~*~*PROTEIN*~*~
And because I'm working out today, I'm trying to eat a little bit more protein!
~*~*~*PROTEIN*~*~*~
Well this rice is already cooked
Let me just - get a little bit of oil and crack an egg in there!
Mix up eggs so egg yolk explode and coat everything
Mayo on top
Remember I said this is like my new ranch? Mayo is the new ranch
Ranch is so 2008
M: Oh, ducky
Kewpie mayo is the future.
Leftover green onions?
Sprinkle that on
And I got myself a pre-workout meal
ready to go
M: I'm trying to figure out how to use this still, I'm sorry!
Look at all these bits inside of this little tiny package.
What is it all about?
First thing you're gonna do is dump the sauce. This is for dipping inside of this little bowl
Then you can add wasabi
if you like it and toss in these green onions on the side
Then this package of water is actually used to kind of rinse the starchiness and
stickiness off the noodles so that they separate like so, be delicate!
And then you can sprinkle some crunchy nori seaweed on top
So this is zaru soba and we're gonna dip the soba - in suppose to be cold.
It's got some wasabi and some
dashi flavors as usual
Yeah （＾・ω・＾✿）
Mmm~
Such a light, great meal. But you know,
ever since did that video where we learned how to make ni hachi soba
I'm - I now understand, like, what a good soba is
Like the nuttiness in it?
Conveny soba is delicious,
but it's more like flour based. S: Mmm
Inari sushi, and outside this is uh, tofu skin
that's like skimmed off and then deep fried and then they make little pockets
*Martina's mhmm's of approval*
S: I honestly think - as Martina chews this and she can't talk - what's most impressive about this all
is that Martina is doing this with her left hand!
She's not naturally left-handed, she usually uses her right hand. M: I'm right handed
S: But she's had so much practice -
So many dislocated shoulders and like, I guess I've become ambidextrous, really.
S: You have! M: You know?
S: Like there's a benefit to your disability in which you've learned how to use both hands.
You're doing a great job. M: Thanks~
S&M: Mmmm, it's so delicious!!! (CC author note: I'm literally just guessing idk japanese lol)
Yuh!
Hooooly f*ckeroni
One of the things that really gets in the way of me enjoying working out, is
me forgetting the whole purpose of this
I'm trying to be stronger. I'm trying to be healthier
But it seems like whenever I look up weightlifting advice online,
any YouTube video,
they're always really buff dudes that are super shredded
And it makes me feel like I'm not doing something right
I've been lifting weights for a while, but I'm not nearly as shredded as that!
But I know that
the people that have those bodies
have a very huge lifestyle commitment
that would take away from other things that I want to do with Martina
I'm not trying
to have that kind of body because I won't be able to go out with Martina as much,
we won't be able to eat out as much
Our lives would be very different.
I have to remind myself that
I know that women definitely have body image issues more than men do
But for me, I gotta remember that these super jacked guys
aren't what I'm trying to be.
I just want to be a better version of myself and strong for the future
That's not to say that I don't feel pressure
As Martina's condition changes and develops,
I feel very worried that I might not be strong enough in the future to help
And that's kind of why I think I have an issue with working out, that I feel like I have to.
I feel super uncomfortable if I skip a workout
because I don't want to get weak! And even when I'm working out
and I feel something in my knees going wrong or some kind of pain, it really scares me because
I can't get injured. I've got to make sure that I could continue being
as strong as I need to be. And that's a lot of pressure, but
I think in this case, it's good. Because it's actually motivating me to be healthy
So,
take a negative and make a positive out of that. I got another set to go
Oh, no. Oh, noooo!
Captain's log: May 5th, 2019.
Today I want to talk about something a little bit strange
I want to talk about the importance of understanding your pain
For those of you that don't know,
I have Ehlers-Danlos syndrome, which means every day
I'm in a lot of pain.
Some of you guys are also in a lot of pain every day
But some of you guys don't have an illness, but you will naturally hurt yourself at some point
You might break an arm, you might pull out your back
You're going to inevitably experience some kind of pain.
What I want to tell you guys about is the importance of
describing the type of pain you have and how helpful it can be to your doctor or your physiotherapists.
When you hurt yourself, you've really got to think to yourself what kind of pain you're feeling.
For example, something can be a stabby pain.
Something that's going like this - it feels like it's kind of like, stabbing at you
You can have a shooting pain - a pain that starts on one point and then moves to another part of your body,
like it's going up something, moving like that.
You can have a throb, which is more something like this.
That's how it's hurting, like *whom*
*Whom* It's not like a sharp, direct pain
All these different things are critically important for your caregiver, whether it be a doctor or the ER nurse or your physiotherapist,
to understand what's actually happening in your body.
The next time that you guys are actually in pain, to really think about the location of the pain
and maybe use some more descriptions when you tell somebody who's trying to help you out.
And hopefully they'll be able to get to the root of the problem a lot faster than the stuff that I've gone through
But now I'm a pain description expert.
It's also EDS Awareness Month
So, May is the month for me to spread the awareness of EDS.
Ehlers-Danlos syndrome has a spectrum of different problems and different things.
There's not a lot of funding and research to look into discovering what EDS actually is.
You might have heard of some people calling themselves zebras.
When doctors hear the sound of hooves,
they often assume that it's a horse.
But sometimes, it's a zebra. Because zebras also gallop and make that noise as well
If I go to the doctor - and this is a very common EDS story - and I told them that I had this pain in my shoulder,
or like I had this problem with my knee,
they would always do the most basic and easiest answer which was, "You've got growing pains."
I was told that I had growing pains all the time
I just had growing pains after growing pains
When I started dislocating things,
everybody thought that it was related to sports.
"Oh, I'm just clumsy. Oh, I just have loose joints."
But there wasn't really like a Doctor House or somebody who really wanted to dig in and
figure it out, like a Sherlock Holmes.
Everyone just kind of gave the base answer
And that's why I also wanted to talk to you about these descriptions of the pain scales
Because some of you guys might have EDS and you might be undiagnosed
Hopefully you can maybe be more descriptive with the way you're explaining things,
and maybe that will kind of like, clue something into a doctor that, "Hmm. Maybe this isn't what we think it is."
"Maybe they do have something different."
And hopefully by doing videos that talk about EDS and EDS Awareness Month,
we can raise some interest in this,
maybe get some funding going on, and I hope that my future EDS people -
you know, the people that are younger than me that are growing up now
I hope that you guys are gonna have care providers that totally understand what's going on for you
I don't think there's gonna be any kind of like, a cure or solve for my EDS in my lifetime
But I do really hope that I can pay it forward and help the people that are coming up
Cause let me tell you, EDS sucks.
But, pushing through, aren't I?
And if I can push through and I have EDS,
that means if you have EDS, you too can push through
I mean, this is an awfully steep slide for a child. S: Yup
Have you seen this?
S: Is that all just concrete? M: Yeah!
M: Is this supposed to be safe?
S: I'm not sure, but considering you already f*cked up your hand, let's not go down it
M: Uh oh~ uh ohh~
S: Ducky, stop scooting your butt! You get back up there missy.
M: Uh oh~~ S: Ducky, stop the scooting!
S: Ducky, don't be in trouble~ M: It's gonna happen and my skirt's gonna go up
S: Yeah, and you know what, it'll be on YouTube! Now I'm gonna show everyone!
M: Tada~!
I burnt my butt!
I can't get up because I only have one hand
So, if I use this hand, I'll show everybody my cooter jooter
But if I use this hand, it could be broken, so...
S: So are you asking me to help you up?
M: Yes
S: Hey, stop being a bad - holy sh*t that was a steep stair.
That was the biggest f*cking stair of my life!
S: Okay, watch your hand, girl. M: Jeez louise. Cheese and rice
We just came from a walk
Our friend Annika came over to the house
She's our friend that's visiting from Australia
and she also has a chronic illness
And so we just walked her to the bus stop and uh - and now we're on our walk together, ducky!
S: What do we do on our walks?
Mm, we talk about life. S: Mhmm
And about how frustrated I get with being sick,
and try to find ways to deal with this
hand that we've been given!
S: But we're doing a good job!
M: Yeah! And I think you raised a good point,
which was that I'm always really hesitant to hang out with friends because I always feel
like I just want to like, push people away like, "I'm fine."
I don't want to burden them with my problems
You know? I just - I don't want them to be
dealing with anything that's difficult in my life because everyone has their own thing going for them, you know?
S: Well you don't understand well enough yet, and I can't convince you is that,
you're a blessing in many people's lives
You're a blessing in my life, and a lot of your friends really like you and are happy to have you as a friend.
You're an amazing girl. You need to know that
M: I hope I'm not dragging them down. S: No girl
But when I'm hanging out with, you know, Annika and she said to me, you know,
she also has those frustrated times when she's having like a real body bad day
and she just wants to like throw pillows around and - and then I realized like sometimes when you share your
embarrassing moments with people and they
understand it, you no longer find it embarrassing.
You realize that it's something that's normal
I felt so much better afterwards
And if I hadn't met with a friend today -
You know, if I had listened to my brain that's telling me to like, go build a cave - S: And push people away
M: You know push people away, if I had done that, if I hadn't built a ladder and said,
"Alright," you know, "we're gonna hang out."
Then I never would have had this feeling of relief come over me
You know? S: Yeah.
So even if its like an - even if its reaching out to somebody online
You know, or being part of like a chat group or a community of any kind
Like rock climbing or whatever it is
I think having people to talk to,
it's extremely important. S: Yeah. M: You know?
S: Good job, girl. M: Yeah
S: We're gonna keep doing it, alright? M: Alright
S: And next time you become a grumpy gremlin and you don't want to call friends,
remember this, I got video evidence now.
Well, I'm accidentally gonna delete this memory card
*Simon falls* Oh sh*t!
I fell off the swing
M: You didn't even fake that
S: F*ck this, man. I wanna go home
M: Oh my god, he didn't even fake that! He literally pretended to get up
S: What's happening today, girl?
M: Well its um, the end of Golden Week
Which means it's beautiful holiday time in Japan and all the stores are shuttered down and everyone's on
you know, vacation, and I think I broke my hand!
Five days ago I think I broke my hand
But I've just been powering through it thinking it was like an EDS injury, because how am I supposed to know the difference?
S: Right
Um - and, uh -
It's just not gonna get - been getting any better
And it hurts to even like, put pressure on my finger
So, I think I might have broken my wrist actually,
but we're not sure yet.
M: Fuji Medical thingy -
S: Alright! M: Really stairs to a broken bone clinic? That just seems cruel
S: You got this, girl!
M: *inaudible* Yeah, I'm don't know - I haven't learned any of these terms. I mean I haven't learned pain terms yet. S: All this kanji - No.
S: Yeah? M: Yeah. S: Alright, so the verdict is...?
Thank God it's not broken.
Oh my gosh
It looked pretty jank-ass on the screen. Like there looked like I might have
maybe subluxed a bone and then brought it back out again, because he's like this kind of gap
And he's like looking at this gap, but man does it ever hurt!
S: Ducky~
It's my most important hand! S: Yeah!
I'm gonna have to switch to my left hand to edit
S: Alright, we can do this girl. High-five!
Falls down the stairs, comes back up again
It does seemed kind of cruel that there is a second floor broken bone clinic.
S: Well here is the chair that we're supposed to take.
Yeah... But I mean if you broke your leg or knee or something
You don't wanna... you know
S: You got this hot stuff
In conclusion, I would say that this week sucked
I have very low scores regarding happiness level about what happened this week,
but I am very grateful that this is not broken, that it's just good-old EDS
I think I almost got shat on!
Good-old EDS
That is poop! That's a bird, and I almost got- I'm done with this week!
I'm done with it!ヽ(*｀ﾟД´)ﾉ
S: In conclusion, you can't always get what you want, but you could have a good time.
Thanks for watching everybody.
I nearly got pooped on!
S: You sure did!
I nearly got pooped on on camera!
You heard it, it went *pfft* and then I looked up and looked at a pigeon
and went, "this - " Done. I'm done!
See you guys in two weeks. S: See ya!
S: Whoa~~~~
Baby, why'd you move your body?
Baby, why'd you move - Okay, if you want to see some more videos about EDS,
we've done a few. Make sure you click on the playlist here.
Or if you want to see some of the extra scenes that didn't make it into our final video,
click on the video on this side, and we'll see you next week with another video.
Goodbye~