>>>
>>> A
>>> A BIPARTISAN BILL IS HEADING TO PRESIDENT TRUMP'S
DESK AND A GIRL HOPES TO BE
THERE TO SEE HIM SIGN IT INTO
LAW.
LAW.
LAW. IT
LAW. IT IS THE CHILDHOOD CANCER STAR
ACT. SHE HAS WANTED IT FOR A
LONG TIME, AND A BILL THAT
MICHAEL McCAUL ADVOCATED FOR.
GOOD MORNING.
GOOD MORNING. LET'S START WITH THE BASICS.
THIS IS NEW MONEY FOR RESEARCH.
TELL US WHAT CANCER?
>> STAR STANDS FOR SURVIVORS OF
RESEARCH.
RESEARCH.
RESEARCH. SADIE IS MY STAR AND SHE IS THE
BEST ADVOCATE ON CAPITOL HILL
TO GET THIS BILL PASSED INTO
LAW.
LAW.
LAW. IT
LAW. IT IS A BIG MOVEMENT FOR THE
CAUSE AND I THINK THE FUNDING
WILL COME WHEN WE HAVE A
CHILDHOOD CANCER PEDIATRIC
ONCOLOGIST ON THE NIH BOARD.
THIS WILL ADVOCATE FOR MORE
FUNDING.
FUNDING.
FUNDING. RIGHT NOW, THE ONLY APPROPRIATE
4% OF THE TOTAL FUNDS FOR
PEDIATRIC CANCER.
PEDIATRIC CANCER. >> THAT IS INCREDIBLE.
HOW DID YOU FIND THIS OUT?
YOU WERE BATTLING LEUKEMIA?
>> IT WAS LIKE, AWFUL WHENEVER
I HEARD IT AND I JUST THOUGHT,
THAT IS NOT ENOUGH AND KIDS,
THERE ARE KIDS DYING EVERY DAY
AND KIDS HAVE THEIR WHOLE
FUTURE AHEAD OF THEM AND I JUST
THOUGHT IT IS AWFUL BECAUSE THE
OUR KIDS THAT ARE YOUNGER THAN
ME AND OLDER THAN ME WHO HAVE
TO GO THROUGH WORSE CANCERS AND
HAVE SIDE EFFECTS FROM THEIR
CHEMOTHERAPY, EVEN AFTER THE
TREATMENT THAT THEY HAVE TO
LIVE WITH FOR THEIR WHOLE LIFE.
AND I JUST WANT TO HELP ALL
THOSE KIDS.
THOSE KIDS. >> WHAT WILL THIS MEAN TO
CANCER PATIENTS?
CANCER PATIENTS? >> IT IS THE MOST COMPREHENSIVE
CANCER BILL EVER PASSED BY
CONGRESS AND AFTER 9/11 THEY
TALKED ABOUT CONNECTING DOTS.
DOCTORS DON'T ALWAYS CONNECT
THE DOTS ON PEDIATRIC CANCER.
IT ALLOWS THEM TO SHARE
INFORMATION ON CHILDHOOD CANCER
AND ALSO HAS A DISCUSSION
DATABASE WHERE THEY CAN DO
RESEARCH AND DEVELOPMENT.
THESE ARE WHAT THEY CALL RARE
DISEASES AND THEY ARE HARD TO
FIND CURES FOR AND A
MARKETPLACE FOR THEM.
AND WE THINK THAT BETWEEN THAT
AND THE RESEARCH ASPECT AND THE
DATABASE, AND HAVING AN ADVOCATE
AT NIH, ADVOCATING FOR MORE
FUNDING, THAT WILL BE A BIG
BREAKTHROUGH.
BREAKTHROUGH. >> SADIE, WHY DO YOU THINK YOU
CAN GO TO WASHINGTON, DC AND
MAKE A DIFFERENCE?
PUCK I THOUGHT I COULD DO IT AND
KIDS LIKE ME, BECAUSE A LOT OF
KIDS DON'T HAVE A VOICE TO
STAND UP AND SAY SOMETHING ABOUT
ALL THOSE KIDS DYING EVERY DAY.
AND I DIDN'T THINK IT WAS RIGHT.
THE FUNDING AND PERCENTAGE AND
I REALLY WANTED TO DO
SOMETHG, SO --
>> SO YOU WERE MAD BECAUSE THE
FUNDING WAS LOW?
WILL YOU BE HAPPY WHEN THE
PRESIDENT SIGNS IT?>> VERY
HAPPY AND VERY EXCITED.
>> CONGRESSMAN, THIS IS NOT IN
YOUR WHEELHOUSE.
YOUR WHEELHOUSE. YOU HEAR FROM A LOT OF
CONSTITUENTS.
CONSTITUENTS. WHAT WAS IT ABOUT SADIE?>> I
LOST MY BEST FRIEND TO LEUKEMIA.
I WANT TO PROTECT AMERICANS AS
CHAIRMAN OF HOMELAND SECURITY.
THIS IS A NUMBER ONE KILLER OF
CHILDREN.
CHILDREN.
CHILDREN. I FORMED A CAUCUS TO RAISE
AWARENESS ON HEALTH.
THEY DON'T HAVE LOBBYISTS ON
THE HILL.
THE HILL.
THE HILL. THEY DON'T HAVE HIGH PAID
PEOPLE ON THE HILL.
THE BEST ADVOCATES ARE PEOPLE
LIKE SADIE, WE BRING THEM TO
THE MEMBERS OFFICES AND THEY
CAN SAY NO TO ME, BUT CAN, WHEN
I BRING IN SADIE, THEY CAN'T
SAY NO TO HER.
SHE GOT THIS ACROSS THE FINISH