>> The first time we heard that LJ had congenital heart defects, we were absolutely devastated.
And the ride home, I don’t think Joe and I spoke one word to each other, we just wept.
>> We found out the news about our baby, it was the most difficult time for us.
Hello Dr. Rychik
>> Hey Joe, hey Kristin, how are you?
>> How are you Dr. Rychik? Great to see you.
>> Hey LJ. How are you doing?
The first time I met the Spitales, Christine was, I think, about 21 weeks pregnant.
After a fetal echocardiogram, we were able to identify that in fact LJ had something called transposition
of the great arteries. Normally the right side of the heart, which receives the low-oxygenated
blood, gives rise to a vessel called the pulmonary artery, that then delivers blood to the lung.
Blood picks up oxygen from the lung, returns to the left side of the heart and then is
ejected into a vessel called the aorta that delivers that oxygenated blood to the body.
In transposition of the great arteries, those two vessels are switched. Such babies can
get very, very sick very quickly.
>> As you can imagine, it was extremely difficult for us to digest this news.
>> With the arterial switch operation, we can now essentially turn the heart back into
something that’s almost identical to a normal heart.
>> When we visited Children’s Hospital and we first met Dr. Rychik, it was the first
bit of comforting news that we had received.
Learning that we were candidates for the SDU, we relocated to the area.
>> The Special Delivery Unit is a critical aspect of the overall management for our patients
who have important congenital heart disease and need to have management as soon as they’re born.
>> I had gone into labor sooner than expected, and we delivered at the SDU.
They stabilized him with the breathing apparatus, and once I was in recovery, they let me know that he
would in fact need a balloon procedure.
They scheduled his surgery for two days after he was born.
That was a tough day, knowing
that not only couldn’t we see him for five hours, but just the idea of such a small,
little being being opened up like that was very difficult.
>> I’ve been in a lot of difficult situations with my job as a detective,
but this was the most difficult time ever.
>> It’s one of the most memorable
days because after nine months of carrying a baby that
I knew would have some challenges, it was so emotional.
The surgeon came into the room and told us that the surgery went very well.
>> Dr. Mascio, when he told me that it was a perfect surgery, it was just so much relief.
>> We follow up with our local cardiologist. She’s extremely pleased with everything
that she’s seen and she does not see any issues for the future.
>> Typically we see kids once a year, young adults once a year perhaps, or something like
that, for general checkups. But when you’re not at your doctor's office, these kids are
out doing normal stuff, leading completely normal lives.
>> This is Louis James. He was born at The Children's Hospital of Philadelphia on August 17, 2014.
>> And he’s very, very happy.
>> And currently hungry.
>> Very hungry.
>> Every heart has a story, and this is LJ’s story.