two people in chairs there's a lot of
people say oh my god how cute
or if it's a boy and a girl do you think
it's kidding
do you think i'm cute i think you're
attractive
okay i'll take it
my name is bjork i'm reign i mean lacani
i'm a dating coach
do you know why you're here today i have
no idea they didn't tell me
today we're playing guess my disability
oh
okay we so everybody has one
yeah so y'all can't get mad at me this
was consensual
[ __ ] is there a disability community
i think so i have a disability but i
haven't
been super involved honestly because i
think i've
struggled to accept my own disability so
i kind of shied away from it
oh my god
[Music]
i'm so nervous
hi guys
[Music]
and then we're going to bring out each
i'm sweating i'm nervous and i'm anxious
and this is a lot
hello hello welcome to the party how's
it going
i don't know y'all telling me this is
crazy
[ __ ] does it make you uncomfortable to
have to tell the world it's not like you
can hide it
well let's talk about it then when did
you find out you have a disability
uh what was the birth defect okay so a
lot of the stuff that it affects
is like my balance like sometimes my
hands will just like randomly stop
doing things so
okay um this is like really hard
and i don't want her to have to stand
for this long you guys so you're fine
i got nothing dude nothing you were born
this way obviously so maybe something
didn't develop right or maybe something
developed the wrong way
that's my guess i can't say that more
scientifically than that that's what i
have to say
when you said birth defect i would go
with spina bifida because
i know a lot of people with cerebral
palsy and i want to say spina bifida to
be more out there
okay is that your final answer yeah did
i get you right or wrong
wrong you want to tell me what it is
cerebral palsy i knew it door number two
okay
i don't know [ __ ] about cerebral palsy
so that's a neurological condition
and it also affects my muscles so my
muscles are shorter
and tighter than they're supposed to be
and that kind of throws everything off
why do you choose to keep walking
instead of using wheelchair
uh well i actually do have a wheelchair
okay so i use the wheelchair for
like walking more than about two blocks
or you have to stand
for a long time yeah like i'm not
opposed to the word disability
but that doesn't necessarily mean that i
feel like i'm
unable to do things right you'd be
[ __ ] yeah
the one thing that i have had issues
with is like initially trying to figure
out like am i some kind of fetish
real [ __ ] do folks fetishize you yeah
you should make money
off of that thing i know right thank you
whatever you've done before
i like helping people find new jobs hi
hi nice to meet you nice to meet you
amin i'm ray
my first impression was that you don't
have a disability and
i'm sure you get that a lot you can't
you can't tell what's wrong
uh are you in pain right now yeah
usually i get a lot of it in my
abdominal area
and lower back is it something that only
affects women
men do not have necessary organs for
this to happen to them
is it endometriosis because i know
there's not too much research about it
it's a chronic fatigue syndrome
i can't webmd this [ __ ] can i just like
sickle cell
because i'm i'm educated you can totally
see sickle cells what is going on with
your [ __ ] cell no
i'm just gonna run around this goddamn
thing like i told y'all i'm [ __ ]
smart
so what's that right no
did i guess you're right or wrong you
got me right
which was like i was shocked but like
yes
good job i have endometriosis have you
heard of endometriosis
oh big surprise so endometriosis
affects one in ten women okay the
little cells like line the walls of your
uterus decide they want to move
elsewhere
so they start growing on other organs
inside the abdominal cavity
other places in the body as well but
they react to hormones the same way
so they shed nope bleed nope
yeah no yeah wait holy [ __ ] you got
period in your stomach yeah and it
doesn't have a weight out
because it's not going out through the
hoo-ha so that it like that's [ __ ]
whoa did y'all could do this that their
bodies go through [ __ ] like that i
didn't know people could go through [ __ ]
like that i'm gonna see that [ __ ] for a
while in my head of course
hello hi how's it going it's good i
don't want you to be nervous
i guarantee you there's nothing you're
going to ask me that hasn't been asked
or said
all right mental physical
both
does it affect your day-to-day yes is it
noticeable
what you hear is related to my
disability yes
is it a obviously i can see the symptoms
manifesting themselves
and i'm holding them back which is kind
of painful does that cause you to
i'm sorry this is offensive [ __ ] you
know you're the first person i felt like
i might offend
i don't know why but trust me i've heard
it i'm sure yeah
but does it is it going to cause you to
sneeze no so i feel like i already think
that the physical might be tourettes
because i've seen you take twice girl
how do you know i'm not doing the bank
head bounce then you've
used your breath
how do you know first of all i am not
that's the age check
so i'm sticking with tourette's is it
tourette's is that your final answer
i think that's my final answer if i had
to guess i'd say some sort of
sinus condition so was that right you
were wrong
was i right you were so wrong
i have tourette syndrome tourette's okay
i would have never
thought with what i know from tv and
movies
and all that stuff what do you know from
tv just the
the way it's depicted it's like you know
blurting out random stuff
yeah that's one of the biggest
misconceptions what are some of your
tics that present themselves
kind of a vocal thing that you hear
right there and sometimes if it's really
bad it's hard to walk
it can get so bad that it's hard to chew
right it's hard to breathe
it's hard to swallow it's hard to sleep
it hurts and i can feel them the ticks
coming yeah
the force is so strong that i've broken
bones and i'm not
pushed my ribs are always out
is there any treatment medication have
you tried anything
yes do they work dozens no i end up with
every side effect and so
it's kind of a question of do i take the
medication to make the world comfortable
or do i not take it and i'm comfortable
they're gonna be staring at me anyways
so i might as well just say
i have tourette's syndrome right well
thanks for sharing and answering my
questions no problem
yeah nice to meet you you too what's up
you're not gonna stand on that right
okay okay you're gonna rest your leg
okay cool i'm
just gonna stand in it like i'm gonna be
getting high get your ass down
do you laugh when you're nervous yes um
you're not gonna ask about the chair huh
i
am can you just hold your horses so
obviously something's going on with your
leg
is it your leg or is your hip neither is
your walking limited then
walking is limited but more so standing
in one place
are you able to exercise no not anymore
i'm so puzzled like the chronic fatigue
seems like
the answer but is that your final
sure it's my final answer i don't know
what this would be called
but maybe your nervous system just has
a hard time communicating with another
system
i don't know if that's your final i
don't know if that's like really vague
but i think that's my final guess okay
tell me
what what goes on
this beautiful body you were right for
one of them actually oh really
high five i think it's the first one
yeah so the first one is chronic fatigue
syndrome
other ones are postural orthostatic
tachycardia syndrome okay that sounds
something like heart related
yes basically means when i'm upright my
heart rate goes
up really fast and that causes my blood
pressure to lower
and my last one that i'm gonna talk
about today is narcolepsy
people have told me they think i'm
narcoleptic because i've fallen asleep
made a conversation but i don't think i
have like a clinical
diagnosis i just get bored
yeah you probably know of narcolepsy
right everything that's supposed to
happen normally like your sleep wake
cycles
i don't even have a sleep wake cycle
it's basically always go to sleep go to
sleep so certain
you know emotional responses can make
you kind of lose muscle tone in certain
parts of your body
also you could literally like fall over
no most people don't like fall over it's
just like get
just a weak feeling oh god well thanks
for sharing that's thank you fascinating
hello i'm sean i'm bjork nice to meet
you
man you are built that's my disability
that's yes
all right mental or physical mental
what do you do for work i am a mechanic
now
i mean i was a mechanic then too where
did you used to work before
uh i was in the air force oh you're a
veteran
so you're part of ptsd why would you
immediately go to that
because veterans that's that's that's
veterans of people from all walks of
life
i know that but it's like [ __ ] veterans
get treated like [ __ ]
yeah is this because of some trauma
yes it's ptsd yeah okay
it was yeah okay
i have mental health problems myself and
so i guess
i know that it's not just air force
people that suffer obviously
what would you like folks to know about
you
don't tiptoe around me what do you mean
by that
you get people who have no idea how to
react don't know what to say and yeah
on eggshells do you feel more
controlling that no
no no by no means you find ways to
manage it and plan your day accordingly
thank you for sharing and for serving
our country absolutely thank
hello i'm bjork i'm lonnie nice to meet
you nice to meet you
so tell me how your disability
affects your daily life because of it
i don't really do much if i'm not
working i'm just kind of
alone i want to be alone but also i kind
of hate being alone it's
it really it's like a yeah a fight do
you have to take any
regular medication for it yes i do
that's what happens if you don't
um if i don't take my medication i guess
the
easiest way to put it is i might not be
here
are you in pain not physically
oh sweetie
okay i'm sorry that you're in pain i
once said depression
i've struggled with anxiety and so
that's what i would think i have
borderline personality disorder okay
yeah so it's
an umbrella there's a lot of things in
it i mean i still have anxiety still
depression
like i had like dreams yeah yeah it's
always in the extremes and i had like a
friend who
i loved her and then she'd do one thing
that pissed me off and i suddenly was
like i [ __ ] hate her she's the worst
she's such a [ __ ] or something like
that i never would have guessed
oh so thank you for sharing yeah of
course
hello boo you look stronger than a
[ __ ]
have you been this way your whole life
actually what do you mean by
this way have you not been able to walk
your whole life there
was a small window where i was able to
walk but i've always
had a disability okay can i catch it if
i touch you
no i'm just teasing does this have to do
with your spine at all
it does i think i know what this is but
i can't remember what it's called
i'm so blanking on the word it's like
hurting my feelings
i think you have a problem with your
spinal cord i want to say muscular
dystrophy that's the only thing that
comes to mind
i'm going into my rolodex because i do
watch grey's anatomy i'm not a [ __ ]
idiot
i would say spina bifida you were dead
on
no [ __ ] way do you know other people
with it yeah
yes are you like best buds for those
people or
in general i've always really kind of
gravitated away from people with
disabilities why
there's always been that stigma that you
know i've never been in special ed and
stuff like that
i feel like oh they're going to see me
more that way if i'm
if i'm around people like that exactly
in 2014
i did this pageant called miss
wheelchair washington and i was crowned
with
wheelchair washington you're economist
realtor washington wow
so i'm in the presence of royalty
do they have a mr wheelchair in
washington no but we had actually
discussed having
men and women and i thought that was
pretty what do you think my chances are
pretty good yeah
nice to meet you nice to meet you
how was this experience for you it's
always
great because y'all like to challenge my
perception about life
and i got some right i have distanced
myself from people with disabilities
and when i see somebody with a very
visible disability
i think it brings up my own insecurities
but this was really great for
helping me realize that and continue to
work on that
i get anxious and so um
it's happening now but um yeah i have
severe anxiety
it is something that keeps me away from
a lot
so yeah i mean it affects my life but i
guess i just feel like
some people have it worse than me uh
hold on can we pause i'm not going to
cry
you did so good you really did
nobody can learn if you don't ask me
thank you sorry no don't apologize
there's nothing to be sorry