So I generally ask Ryan a few questions first, 'Are there any limits to
how far you can walk?', 'No.', 'Run?', 'No.' ,'Ride a bike?' 'No.' 'Climb stairs?' 'And activity
wise what types of activities have you done in recent months?', 'Swimming. I play guitar,
basketball, I skateboard with the helmet.' 'Good [laughs]. Well reasonable limits for me were
usually set up by my parents. It was a lot of like ask and they tell you what
would be appropriate, and then as I started to as I started to grow older, I got
to realize like what were my own limits and what i could do myself. Like with
sports and school activities and stuff. We like them to be active. We like our
boys to be fully integrated into their their school's, their communities to be
doing things. We do recommend that they not take on unneeded risk, you know collision
type sports that's what I say. In terms of limits, I think that they shouldn't get
too rough for wrestling their friends or anything.
Playing football and hockey that's, you're still pushing the limits a little bit too much.
Don't play lacrosse. Right from the beginning you're talking to the family
about safety and choices so that family isn't going to often expose that person
to football. I find that ankles probably are the joint that gives most guys the
most problems that I see in this clinic. And we know that bleed upon bleed in the
same joint is not a good thing. And that's important also. You need to make
sure that you're pushing the limits to make yourself healthier and not pushing
the limits that could endanger you. The hard part is that it usually is feeling
better sooner than that, right? Often the pains gone, the movements
improving and you think, well I can walk on it. But it's what's happening inside that
very worried about. I'm not too concerned about having to give up anything because
I haven't had any really major bleeds into any joints in a couple of years now,
and so and I haven't had that many like prior to that. So for the next for this
foreseeable future at least I don't believe I'll have to give up any of my
activities ,but when it comes time to it I know it'll be best for my body in the
long run. It's important to exercise. It's a bit boring but it's something you need to do.
It's tough to get started but you need to get started and then once you get
started it it ends up being a lot easier to go to the gym. I love fulfilling my
goals but if something comes up where I can't reach it for whatever reason or I
decide that that's not what's best for me, then I just roll with it. In many ways
it's about making choices. And we hope that just like growing up, without
hemophilia, growing up with hemophilia you have been educated and supported to
make good choices and they're different choices at different ages.