Welcome to the My STORI app, a mobile app developed by the National Cancer
Institute for Brain Tumor Patients and Caregivers.
Let us show you around.
First download the app
from your device's app store called National Cancer Institute.
My STORI Brain Tumor App.
This video uses the Apple iOS version of the My STORI app.
The Android version has a few minor operating system differences.
Once you enter the app, you will see the menu bar at the bottom.
First you can go to the symptom log section.
Here, you will be able to track your symptoms
and their severity and any functions they are impacting.
We would recommend logging these daily, but you can log more or less
based on how you feel and discussions you have with a member of your health
care team, which can include your doctor, nurse,
nurse practitioner or other health care provider.
Click on the log symptoms button.
Here you will select the symptoms
you are experiencing and hit next.
Then you will select the level of severity
for each symptom using the scale.
Level zero means not experiencing that symptom at all,
and level ten is experiencing that symptom at its worst.
Then select how you would describe that symptom in the fields below.
If you want to learn more about that symptom, you can click on the red
magnifying glass and it will give you more information on that symptom.
You can then hit back to go back to the symptom logs section.
Once complete hit save.
Now you can log how your symptoms are impacting your functions.
Select any function changes you are experiencing and hit next.
Then you will select the level
of severity for each function using the scale.
Then select how you would describe that function in the fields below.
Once complete hit save.
After you have logged your symptoms and functions for the day,
you will see a log completed bar at the top.
With the time you have completed.
You can also see faces on the right
to show the level of severity you logged.
Green is reporting mild, a severity from 1 to 4.
Yellow is moderate from 5 to 7
and red as severe from 8 to 10.
Once you have completed the log, you can generate a report.
Click here on the top.
Right.
On this page, you can generate
a report of the symptoms you have logged.
First select symptoms.
You can select
certain symptoms or functions individually
or select all at the bottom.
Once you have selected the symptoms you want to report, click done.
Now you need to select the date range.
You can select the date range from last week.
Last month.
Last three months.
Or put a custom date range in the field below.
Then hit. Done.
Now you can generate the symptom report.
Here.
You can see all of the symptoms you have logged,
but also any events you have added in other sections
such as treatments, appointments and self-care activities
that we will discuss later in the calendar section.
The top icons are labeled by sections.
Then the line graph shows the level of severity
for each symptom by date.
If you want to change the symptoms
or date range graphed in the report, hit the select symptoms
or select date range at the top.
If you want to save the report,
then hit the report button at the top.
Right, then save slash share.
The report file will be saved to your app in the Connect section.
Now we will explore
the self-care section of the app.
This section of the app shows
you ways to manage and recognize your symptoms.
First, click on search symptoms.
These symptoms included
are the most common symptoms people with a brain tumor experience.
You can click on each symptom here.
For example, we will look at fatigue.
For each of these symptoms, you will see
what the definition is for that symptom.
When you click on the plus sign, you can learn how to recognize that
symptom, then how to manage that symptom through self-care activities
including diet, exercise, medication and sleep.
And then tips on when and how to report that symptom
to a member of your health care team.
These are general guidelines and specific
reporting instructions should come from your health care team.
Once you are
done with that symptom, you can click back.
If you have any other symptoms you would like to learn
more about.
Next,
we will go to the catalog section of the app.
Here, you can track your self-care activities.
We would recommend logging these daily.
To start, click on log activity.
Under the self-care activity.
Click on the box below and select the appropriate activity type from diet,
exercise, sleep, medication or other.
Then click done.
Below the self-care activity.
This is where you would include more details.
So for diet, you could put in exactly what you ate.
Then select the time and click Save.
Once you have entered a self-care activity in the care log,
you should see the screen that will include any activities
you have logged for that day and the time and date you last logged.
Once you are done, you can generate a report that you can save.
You don't have to do this daily, but we would recommend creating
a report weekly or monthly.
On this page, you can generate a report
of the self-care activities you have logged.
First select activities.
You can select certain self-care activities
individually or select all at the bottom.
Once you have selected the activities
you want to report, click done.
Now you need to select the date range.
You can select the date range from last week.
Last month.
Last three months.
Or put a custom date range in the field below.
Then hit. Done.
Now you can generate the self care report.
Here.
You can see all of the self-care activities you have logged by day
in the graph.
You can also see them at the bottom of the graph.
How many days you have logged each activity,
but also details about each activity that you entered.
If you want to change the reports, hit the select activity
or select date range at the top.
If you want to save the report, hit the report button
at the top right then save slash share.
The report file will be saved to your app in the Connect section.
Now we will go check out
the calendar section of the app.
In this section you can view if you have logged
symptoms or self care activities previously,
but you can also attend any treatments or appointments.
You may also put in yesterday's symptoms if you forgot to do so
or past self-care activities.
First you will click on View and add events.
On this screen, you can scroll up
to see where you have logged activities.
They will be shown by a colored dots under the date.
If you click on the date, you can see the hourly breakdown for your day.
That will include the treatment and appointment events for that day.
To add an event, click on the plus sign at the top
or add event button at the bottom left.
Under the event category.
Click on the box below and select the appropriate event type
such as treatment appointment,
yesterday's symptoms or a self-care activity.
Then click done.
Below the event details.
This is where you would include more details.
So for appointments, you can select what type of appointment here.
Then select the time and click add event.
If you would like to generate a report,
you can click on the report button at the bottom, right.
And that will take you to this menu screen where you can create a symptom
or self-care report, which we discussed
previously.
Now we will go to the Connect
section of the app.
This is where you can share
your activities and reports you have saved with others.
This is helpful so you can share this with your loved ones
or a member of your health care team.
First, click on the share button.
This is where all of your reports are saved.
Each one is a PDF file that is named by the type of report
either symptom or self care and then by the dates of the report.
So you can easily find them.
These can be shared and saved by selecting the circle
and then click on the share button at the top.
Right.
You can select multiple symptom and self-care reports
to share at the same time.
Then your phone will give you options on how to share
using your other apps, email or saving to your files.
This can be an easy way for you to send your loved ones
to your support network or to your health care team.
Or you could share at an upcoming visit.
You can also save to a medical record app
if you have one stored on your phone.
If you are unsure which report you want,
you can click on the report title
to view that specific report.
You can also easily delete any files
by clicking on the trashcan corresponding
with the report you want to delete.
You can also go back and generate additional symptom
or self care reports if needed.
We hope you find this app helpful.
Once you get comfortable with the app.
We hope you can begin recognizing patterns
in your symptom and self-care activities
and share your findings with a member of your health care team.
If you are still having issues or have any questions regarding the app,
please email us at my STORI at NIH.
Dot gov.