Hello
Hola
Hi
Hello
Buenos dias
Hi everyone
Not all disability is visible
I have Parkinson's
It's really hard to explain to somebody who hasn't got Parkinson's
It's not talked about often
You may see it but not even realise what it is
What have you noticed about mummy having Parkinson's?
Oh, her hands kind of shake
She drags her leg
Feels like somebody's tied a dumbbell to my leg
I'm shuffling like an old man
My brain's telling that limb to move...
You normally get stuck in door frames... like this
...but that limbs got a blockage and it's non responsive
Are your legs pulling apart again?
I have balance problems
Sometimes I fall
And I have become forgetful
I get confused
I'm just so tired
Can't sleep
That's what I have to carry round with me
You never know if medication is going to work
Can't take any more meds... don't know why they are not working
With the tablets then come side effects
Today, not bad at all
I'll be on the floor later, completely paralysed
It's 4 o'clock in the morning
It's almost 5am
Dog barks
So this may look a little strange, but sometimes it's easier when we talk about stuff
So Kathleen had speech problems and she can't finish her sentences sometimes
Getting stuck in a middle of sentence, it's just another one of those... dam, ah! Dam, dam, dam
And then other people would finish them for her, yeah and they would get it wrong
Symptoms
All the muscles in my face get tensed up, grrrr!
That's what it feels like
It's that feeling of not being able to rely on your face
to do what 'normal' people take for granted
Parkinson's always sends you new challenges, which is nice
I absolutely love playing music, it's my passion
I am determined to keep playing for as long as I possibly can
'I've taken all the money and given it away'
I know what you're thinking, I bet he doesn't need an electric toothbrush
I've just written my first novel
Now I'm illustrating it
This is my latest painting
When I first had Parkinson's life wasn't good
I went through a really hard time, a lot of...
Difficult emotions, like being angry
Angry and really jaded and really frustrated
And I didn't want to be in this world
You can start to go into very dark places about what the future is going to be
The truth of the matter is Parkinson's is a daily fight
And it's the comments, it's the looks
People stare at us when we're having a bad day
Eating, especially outside, if you go for a meal
People think that perhaps you're drunk
Drunk
We are people, we have feelings and negative comments can be very upsetting
Do you want to tell them what you do Paige?
I go to different schools and then tell them about Parkinson's and what it can do
I do not consider myself as sick,
simply because if I thought I had a neurological, chronic degenerative condition with no cure
I'm not sure I would get out of bed in the mornings
Sometimes I am tempted to question why I have Parkinson's,
but in the end it doesn't really matter
You have to let go of the past, the person that you thought you were
This is the new me
I decided not to sit down and moan
I needed to do something to empower myself
I decided to really focus on the things I wanted to do and the things that I loved
I do as much as I possibly can to stay to stay as healthy as I possibly can
I'm going to fight
Fight, and fight
Fight
Fight it all the way
I was talking like this and then I went through the voice training
Take a deep breath and speak very loudly
'Extra, extra - read all about it!'
Ha, ha, ha, he, he, he, ho, ho, ho!
Ahhhhh!
Foot down, head up - last steps. Here we go
One, two, three, four
You can expect to see me defy those limitations that have bee imposed on me by Parkinson's
Parkinson's has definitely made me appreciate every single moment, of every single day
Someone said 'You shouldn't do extreme things'
70 year old woman with Parkinson's
A lot of people work very hard to keep me well, to keep me sane
My family have given me support, especially my wife
My children support me so much
Mummy can still be a mummy
This is my fiancée, Kelly
He's my carer, he's my friend, he's husband
And my husband always says that the one thing that keeps working is my mouth
Appreciate my family so much
Because I wouldn't be here without it
All the encouraged that everybody gave me to make this journey, it's overwhelming
This video is to help spread the word about Parkinson's
So that some of the stigma that is associated with this disease is reduced
Make people understand the condition
It's not just about people with Parkinson's uniting together, it's about everybody
The more people who know what Parkinson's is the better will be our chance
If we don't share, others will never be able to care
Let's unite for Parkinson's
Gratias