- What about that guy over there eating sunblock?
(chewing)
- That's the most offensive one.
- I eat sunblock for breakfast.
- Yeah, you know you gotta get it from the inside.
It's actually not about putting it on your skin,
you gotta get it in the bloodstream.
- And then I bathe in it every night.
- Yeah.
I definitely thing albinism
is unfairly represented in most media.
- You don't see that much of us on screen.
- Or if I do, I feel like we're always seen as, like,
the villain or we look kinda crazy,
like they'll put a lot of makeup on us.
- Our characters revolve around our condition
and it's like that really shouldn't be the case at all.
- The first time I saw and albino person
on film or TV was The Benchwarmers.
(pained scream)
- Hot, hot.
- Oh he's supposed to be the albino?
(both laugh)
- He doesn't look like he has albinism.
- No not at all.
- The Benchwarmers is one of my favorite movies
and how we like,
they have him living in a closet.
(scoffs)
Cause he's scared of the sun,
he's legitimately terrified of the sun.
- Oh my God.
(both laugh)
- Oh wow.
- The sun is hot.
He did get that right.
- Yeah that's about it.
- Yes we do burn when we get in the sun,
but its after a certain extent of time.
- Yeah, Yeah.
It's not that dramatic.
- No.
You pretend to be my friend the way you pretend everything.
- This is Jeremy from Powder.
- I haven't seen this in a super long time.
- Yeah except for Powder, there's literally no movie
or TV show that has albino characters as good guys.
- A lot of people, when they ask me about albinism,
they say, oh like Powder, and I'm like, no.
In a lot of novels and films
people with albinism are supposed to be magical.
There's even cultures where they believe
people with albinism, their body parts are magical.
- People in Tanzania or different parts of Africa
are getting their limbs cut off
so people can give it to witchcraft doctors
to create potions for them.
It's happening to this day in certain parts of Africa.
- You know this is the main representation that they've seen
if they've never seen a person with albinism in real life.
And I feel like it's very irresponsible to only have this
as what people know about albinism.
(breathing heavy)
- In nomine Patris et Filii et Spiritus Sancti.
- Silas from The Da Vinci Code.
- He looks like a zombie. - A ghost.
- Yeah he just looks evil honestly.
I hope I don't look like that.
- His hair is bleached white.
He can kinda pull it off I guess but,
- Nah.
- I'd prefer if it was someone who actually had albinism.
- Yeah.
- Why are we painting people?
- Yeah I'm not gonna lie,
it did kinda look like a person with albinism.
- Yeah.
- Definitely way better than Benchwarmers.
- It bothers me when I see people
who don't have albinism playing characters with albinism
because I have a lot of friends
who are performers with albinism.
They're actors, they're looking for work
and they're not being offered these roles.
- I don't feel like it's bad.
You know if that's the character
and you're doing everything correctly
and spreading a good message I have no problem with it.
- If you're trying to get a person with albinism,
get a person with albinism.
- Where am I?
- The pit of despair.
Don't even think (coughs)
Don't even thing about trying to escape.
- The Albino from The Princess Bride, oh my gosh look at it.
- The Albino. - Just, The Albino.
- Oh that's his name?
(both laugh)
- Come on man, that's not original.
- How creative.
- Yeah that's just too straightforward.
Give him another name.
- He doesn't look like he has albinism.
- At all.
He looks like he should, I don't know,
drink some water or something.
(giggles)
- The Prince and the Count always insist
on everyone being healthy before they're broken.
- He doesn't even look hygienic.
- Yeah definitely weird.
And of course he's in a dungeon.
- In the dark. - Hidden in the darkness.
- He's all twisted, his mind.
- They thing we're supposed to be
in the shadows, I don't know.
- The shadows just lurking.
- Yeah just lurking on the rest of the world.
I always feel like people thing that, I guess,
we're the ones that aren't supposed to have any friends.
Even people in my life, I think,
are surprised that I'm as talkative as I am.
- Looks like this guy just played
too much World of Warcraft.
(laughs)
(police sirens)
- We are getting aggravated.
- The Twins from The Matrix Reloaded.
- I guess when they came out there was a really big
controversy from the albinism community.
The filmmakers came out and said
they're not actually albinos.
They're supposed to be ghosts.
- To cover their ass.
- I just felt like they used ghosts
to just cover themselves up.
- Cause they could have made it,
like they could have colored their hair differently.
- Glasses too.
(uptempo music_
- I think they look kinda cool.
- If they were gonna do this,
if they're supposed to be people with albinism.
they should be played by people with albinism.
- That was fire I like that.
- That was good.
- This is my favorite one.
- I never killed anyone before.
- What?
- You're an admitted schyzo who's wanted
for murder and your laying in bed next to me
gabbing like a 16 year old girl on the telephone.
- Whitey from Me, Myself & Irene, okay.
- Whitey?
Come on.
- That's the most offensive one.
- I really like this movie cause the actor
actually has albinism in real life
This was something he wanted to do, is act.
- It does make a difference to see people with albinism
really playing people with albinism
because you really get a sense of who they are
and their real features and not just
who people in Hollywood thing they are.
- Holy Jesus in heaven.
It's a giant q-tip.
- Hey. (giggles)
- I'm joking with the guy,
bringing a little sunshine into his life.
Careful you'll peel.
(laughs)
- Yeah that's messed up.
- I like how this character was represented in the film.
I didn't really have a problem with this one personally.
= I think it's easier to laugh at yourself when
its not someone else playing that part
that doesn't experience it.
When I was younger
I had never seen anyone else with albinism.
I felt very alone and felt like,
this is how the world views me.
Seeing what the media portrayed albinism as
it kind of formed my idea of how people see me.
Everyone feels like I'm evil or bad or that I look weird.
This is the only representation that I'm seeing
and that they're seeing and when I walk out the door
they're coming up to me and saying rude things to me.
- Let's say the new Avengers movie that comes out next year,
there's an albino character in it
and we're supposed to be the new evil villain.
Imagine being a regular albino
and then going out the next day
after this billion dollar movie just came out.
Kids that seen it are gonna look at us like,
there goes him, you know what I mean, if I was Thanos.
There goes Thanos, you know what I mean.
I feel like if we were actually seen more and more normal,
it wouldn't be such like, oh my gosh there's him,
it would just be like, oh wow just regular.
We wanna probably see more people like us
in different roles than villain roles.
You know I don't mind that there's evil or funny characters,
but I feel like there should be a balance
where there's more positive characters as well.
- Should actually have a person with albinism
if you're gonna portray that at least.
I mean how hard can it be?
- No one in society today is gonna look up
a condition and research it or themselves.
- Exactly they have to see it.
They have to be in the new Purge or or Black Panther,
something like that and they'll actually be like,
oh okay its, you know, normal.
(upbeat music)