SAFETY EXPERT TROOPER STEVE. THIS IS NEWS. 6 AT 09:00AM GETTING RESULTS.
>> JULIE: IN THE DAYS
FOLLOWING THE DEATH OF ACTOR
AND COMEDIAN BOB SIDE THAT
WE’VE BEEN HEARING A LOT ABOUT
THE DISEASE SCLERODERMA. IT’S
A CAUSE SIDE THAT WAS
PASSIONATE ABOUT AND
SUPPORTING HIS OLDER SISTER.
DIED FROM IT IN 1994 AND HE
WAS INTENT ON HELPING TO FIND
A CURE RAISING MORE THAN
26 MILLION DOLLARS FOR THE
SCLERODERMA RESEARCH
FOUNDATION. BUT WHAT MANY ARE
ASKING? WHAT EXACTLY IS THE
CONDITION MORNING ANCHOR AND
HEALTH REPORTER KIRSTIN
O’CONNOR STANDING BY NOW TO
ASK A DOCTOR, ASK A DOCTOR IS
SPONSORED BY CAN BE PRIMARY
CARE PROCEEDINGS.
SPONSORED BY CAN BE PRIMARY
CARE PROCEEDINGS. and Adventure Island, >> CLEARED AS AN AUTO IMMUNE
DISEASE, WHICH MEANS THE BODY
IS ATTACKING ITSELF FOR AN
UNKNOWN REASON. IT IS A RARE
CONDITION AFFECTING ONLY ABOUT
200, 50 PEOPLE OUT OF EVERY
MILLION AMERICAN ADULTS. AND
IT’S MORE COMMON IN WOMEN. SO
WHAT HAPPENS? I WENT TO DOCTOR
MONICA FRIEDMAN, A PEDIATRIC
RHEUMATOLOGIST AT ORLANDO
HEALTH, ARNOLD PALMER HOSPITAL
FOR CHILDREN FOR SOME ANSWERS.
HEALTH, ARNOLD PALMER HOSPITAL
FOR CHILDREN FOR SOME ANSWERS. and Adventure Island, >> IT ACTUALLY IS GREEK WORD.
SO LEROS MEANS HARD I MEAN SO
IT’S A HARDENING OF THE SKIN.
SO ESSENTIALLY IT’S AN
CONDITION RELATED TO THE
CONNECTIVE TISSUE. SO THEY IT
CAUSES THAT CAN AND TIGHTENING
UP THIS. AND SO IT’S EXCESS
PRODUCTION AND DEPOSITION OF
COLLEGE AND WHICH WE ALL KNOW
COLLEGE AND THEN OUR CHEAT
WHEN WE GET A LITTLE EXTRA
ADDED. BUT AND THIS CASE, IT’S
IT’S OVERLY EXCESSIVE. AND YOU
GET HARDENING OF THE SKIN FROM
IT CAN ALSO AFFECT THE OTHER
ORGANS AS WELL. SO THAT’S WHEN
YOU GET THE SYSTEMIC
SCLERODERMA, WHICH IS PROBABLY
WHAT HIS SISTER UNFORTUNATE
TASK.
>> AND ACCORDING TO INTERVIEW
SECONDED, THAT IS EXACTLY WHAT
HIS SISTER DIED FROM. THERE’S
A LOCALIZED FORM OF SCHOOL OR
DOMA, WHICH JUST PRETTY MUCH
AFFECTS ONLY A PERSON’S SKIN,
MAYBE JUST IN A FEW SPOTS. BUT
WITH SYSTEMIC SCLERODERMA,
DEPENDING ON THE SEVERITY, IT
CAN SPREAD TO THE ORGANS,
MAKING BREATHING AND PROPER
DIGEST AND FUNCTION DIFFICULT
AND CAN ULTIMATELY CAUSE
KIDNEY FAILURE. SO THAT’S WHY
DOCTOR FRIEDMAN SAYS AWARENESS
IS VERY IMPORTANT AND IT CAN
BE DIAGNOSED AS EARLY AS
POSSIBLE. IF YOU ARE AWARE
IT’S USUALLY NOT FIRST
RECOGNIZED BY RHEUMATOLOGIST
EITHER.
>> SO A LOT OF TIMES YOU’RE AT
THE DERMATOLOGIST. YOU CAN A
VARIETY OF CONDITIONS FROM
CALLED MORE. SO PATCH OF SKIN
THAT HARDEN. BUT WHEN YOU’RE
TALKING ABOUT, SYSTEMIC
SCLERODERMA TIME TO START ON
THE FINGERS.
>> AGAIN, TIGHTENED AND OF THE
FINGERS. SO YOU REALLY YOU
DON’T KNOW HOW LONG SOMEBODY
COULD LIVE WITH THIS.
DON’T KNOW HOW LONG SOMEBODY
COULD LIVE WITH THIS. and Adventure Island, >> IT’S REALLY WHERE THEY’RE
AT AND THERE TO THE STAGE.
WHEN YOU DIAGNOSE THAT
SOMETIMES IT TAKES YEARS TO
DIAGNOSE. THAT’S WHERE IT’S
I’M REALLY IMPORTANT TO BE
AWARE OF THE DISEASE AND WHAT
TO LOOK FOR. AND THAT EVEN A
GENERAL PEDIATRICIAN, A
GENERAL PRACTITIONER BECAUSE
THAT’S WHERE THEY START. YOU
KNOW, PATIENTS END UP GENERAL
THAT’S WHERE THEY START. YOU
KNOW, PATIENTS END UP GENERAL and Adventure Island, PRACTITIONER THAT SOMETHING
YOU ARE AWARE OF AND LOOKING
FOR THEM SOME TIME TO CATCH IT
EARLY ENOUGH THAT’S VERY
IMPORTANT. THERE. WELL, THE OF
LIFE IN THE END.
>> JULIE: AND THAT EARLY
TREATMENT IS WHY SIDE THAT HAD
SAID HE WORKS SO HARD TO RAISE
AWARENESS. FRIEDMAN SAYS THERE
ARE MORE TREATMENTS NOW THAN
THERE WERE IN PATIENTS CAN
LIVE LONGER THAN THEY USED TO.
BUT SHE DOES SAY AUTO IMMUNE
DISEASES DESERVED THE
ATTENTION OF RESEARCH TRYING
TO DIAGNOSE IT AND TREAT IT
BETTER BECAUSE THE DISORDERS
ARE SO RARE.
>> AS RHEUMATOLOGIST WE ALWAYS
TRY TO SHED LIGHT ON THE
DISORDERS, WHETHER IT’S
THROUGH, YOU KNOW.
>> A WALK IF WE HAVE ARTHRITIS
WALKER LEAVE THIS WALK. THOSE
ARE. KIND OF OUR WAY IS TO
REALLY SHED LIGHT ON IT. BUT I
THINK SAID IN GENERAL, THE
RESEARCH IS SO IMPORTANT. AND
IF YOU HAVE ONE PERSON WHO CAN
SHED LIGHT ON AT THAT MAKES A
DIFFERENCE. IT’S UNFORTUNATE
THAT A SISTER PASSED AWAY. BUT
IF WE HAVE THE OPPORTUNITY
FIND BETTER TREATMENTS BETTER
CARES FOR THESE PATIENTS
BECAUSE OF THAT THEM. I THINK
IT WAS IT WAS WORTH SOMETHING.
>> CANDACE: AND OF COURSE, IF
YOU HAVE ANY CONCERNS ABOUT
YOURSELF OR A LOVED ONE, IT’S
ALWAYS BEST TO CHECK WITH YOUR
DOCTOR. IT’S GOOD TO BE AN
ADVOCATE FOR YOURSELF AND MAKE
SURE THAT YOU’RE AWARE
POSSIBLE CONDITIONS TO BRING
UP. AND I WAS ALWAYS WE HAVE
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