IMPEACHMENT TO THE SIDE OF SPEAKER BLESSED TO SAY THEY 4@
WILL FOCUS ON CONGRESSIONAL
INVESTIGATIONS TO SEE WHAT THEY
TURN UP.
TURN UP.
TURN UP. >>> A DISEASE WITH NO CURE THAT
WEAKENS THE MUSCLES AND IN SOME
CASES MAKES IT HARD TO BREATHE.
ALS, LOU GEHRIG'S DISEASE IS
PROGRESSIVE AT ABOUT 5000
PEOPLE EACH YEAR.
THE 4@ALS ASSOCIATION HOLDS
FUNDRAISING EVENTS TO SUPPORT
MORE THAN 700 LOCAL FAMILIES 4@
AND A LITTLE, IN A LITTLE MORE
THAN A WEEK, AND OTHER EVENT,
DYING TO PREVENT ALS WILL
CONTINUE THE EFFORTS.
THIS ONE, OUR 4@GOOD FRIEND, TH
WELL-KNOWN FITNESS TRAINER WHO
ALSO TRAINS 4@4@PRO CHEERLEADER
AND THE FORMER MISS USA, 20
SUSTAIN OF 2017, YOU'VE DONE A
LOT.
LOT.
LOT. AND
LOT. AND HE IS SOME4@ONE WHO IS IN T
FIGHT TO DEFEAT ALS.
THANK YOU FOR JOINING US.
MAY IS ALS AWARENESS MONTH.
I REMEMBER WHEN WE MET BACK AT @
THE WALK4@. I LEARNED ABOUT YOU
DIAGNOSIS, WHAT DOES IT MEAN SO
FAR TO JUST SEE HOW MANY PEOPLE
HAVE COME OUT AND 4@HOW MANY
PEOPLE ARE IN THIS FIGHT WITH
YOU ALL TO DEFEAT THIS?
>> THE SUPPORT IS 4@SOMETIMES
OVERWHELMING.
OVERWHELMING. I KNOW THAT I HAVE PEOPLE WHO
SUPPORT ME, BU4@T THE SEE THE
AMOUNT OF SUPPORT THAT I GET A
JUST PHONE 4@CALLS AND TEXTS, I
MEANS A LOT.
SOMETIMES YOU FEEL LIKE YOU ARE
IN THIS BY YOURSELF, BECAUSE
YOU DON'T REALLY KNOW HOW TO
REACT TO4@ IT WHEN YOU GET SUCH
DEVASTATING NEWS AND YOU DON'T
KNOW HOW TO NAVIGATE THAT IF
YOU'VE EVER HAD TO JUST FACE
SOMETHING SO DEVASTATING.
>> AND IT 4@AFFECTS SO MANY
PEOPLE DIFFERENTLY.
PEOPLE DIFFERENTLY. I'M A STRONG ADVOCATE AND I'VE
SEEN WHAT THIS IS DONE TO
PEOPLE 4@OVER TIME.
HOW HAS YOUR LIFE CHANGED SINCE
THE DIAGNOSIS?
THE DIAGNOSIS? IT'S BEEN ABOUT 2 YEARS NOW. 4@
>> 2 YEARS NEXT MONTH, JUNE 22.
I'M ON MY 4@SECOND YEAR WHICH I
PRETTY GOOD, BECAUSE THE LIFE 4@
EXPECTANCY AFTER YOU ARE
DIAGNOSED IS 2 TO 5 YEARS.
SO I'VE MADE IT TO THE SECOND
YEAR, MY LIFE IS CHANGED IN A 4@
WAY THAT I AM A 4@FITNESS
ENTHUSIAST AND I USED TO WORK
OUT FIVE DAYS A WE4@EK AND I
CAN'T DO THAT ANYMORE, I'M NOT
PHYSICALLY ABLE TO DO IT.
MY MUSCLES GET WEAK, AND I JUST
CAN'T DO IT.
SO THAT IS A HUGE CHANGE FOR ME
BECAUSE I'M SO CUSTOM TO 4@
WORKING OUT.4@
WORKING OUT.4@ I'M LIKE, WHAT DO I DO?
I JUST PHYSICALLY CANNOT DO IT.
>> AND YOU ALSO HAVE SOMETHING
ON YOUR HAND THAT YOU WERE
TELLING ME ABOUT.
>> WHAT THIS IS, IT IS AN
APPARATUS THAT HELPS TO
STRAIGHTEN MY FINGERS, BECAUSE
OF4@ MY RIGHT SIDE I HAVE 4@FRO
FINGER SYNDROME.
FINGER SYNDROME. MY HANDS TEND TO STAY LIKE 4@TH
ALL OF THE TIME.
SO EARLY MINUTES, MAYBE THREE
OR FOUR TIMES A DAY, I PUT THIS
ON TO STRAIGHTEN MY FINGERS TO
GIVE THEM4@ SOME FLEXIBILITY
BECAUSE THEY JUST GET STUCK
HERE.
HERE.
HERE. SO
HERE. SO IT'S STRETCHING YOUR
HAMSTRINGS OR MUSCLES.
30 MINUTES A DAY AND THAT I
HAVE AN ARMREST THAT I SLEEP
WITH AT NIGHT.
>> YOU DEFINITELY HAVE SOME
THINGS THAT WORK FOR YOU.
I LOVE THAT THE ASSOCIATION HAS
VIRTUAL SUPPORT GROUPS AND
THERE'S A 4@WHOLE TEAM HELPING
OUT.
OUT.
OUT. WHAT
OUT. WHAT MESSAGE DO YOU HAVE FOR
PEOPLE WHO ARE GOING THROUGH
4@
PEOPLE WHO ARE GOING THROUGH THIS AS WELL OR RECEIVED NEWS
LIKE THAT?
LIKE THAT? 4@>> THE MESSAGE I 4@HAVE IS FI
ON HOW YOU REACT TO ANYTHING.
AND THE WAY 4@I REACT 4@TO THIS
THERE'S NOTHING I CAN DO ABOUT
THE DISEASE.
THE DISEASE. I HAVE IT, SO LIFE GOES ON.
AND MY ATTITUDE WAS OKAY, I
HAVE THIS FOR A REASON.
I'VE BEEN A FITNESS ENTHUSIAST
SINCE I WAS 16 AND NOW I'M 53.
IN 2 YEARS AGO,4@ I SAID OUT OF
ALL OF THE DISEASES, I WOULD
GET THE ONE THAT WEAKENS YOUR
MUSCLES THAT I'VE WORKED SO
HARD TO STRENGTHEN.
BUT YOU, THERE'S A REASON, MY
MESSAGE IS, NO MATTER WHAT,
KEEP WORKING OUT, KEEP
EXERCISING, BECAUSE THER4@E ARE
BENEFITS TO IT.
I DO BELIEVE THAT I'M STILL
HERE 2 YEARS LATER BECAUSE I
HAVE SUCH STRONG MUSCLES AND
THE DISEASE CAN'T NAVIGATE.
>> WE WISH YOU THE BEST4@ AND W
HOPE THAT PEOPLE WANT TO
SUPPORT THIS CAUSE AND YOU CAN
GO TO ALS AID.ORG AND MAKE A
DONATION AND IT WILL HONOR A
LOT OF PEOPLE THAT STEPPED UP
AND MADE CONTRIBUTIONS.
THANK YOU FOR COMING ON THE
SHOW.
SHOW.
SHOW. >>
SHOW. >> THIS IS MY OFFICIAL SHIRT
FROM MY CAMPAIGN.
THIS IS THE HOUSE OF
REPRESENTATIVES HR BILL 1171,
WE'RE TRYING TO GET PEOPLE WITH
ALS TO GET THE SOCIAL SECURITY
AND DISABILITY MONEY AND NOT
HAVE TO WAIT FIVE MONTHS TO GET
IT.
IT.
IT. THAT'S ONE OF THE FOUR SHIRTS