>>VIC MICOLUCCI: IT IS MULTIPLE SCLEROSIS, AWARENESS MONTH, THE DISEASE AFFECTS MORE THAN 2.3
MILLION
PEOPLE WORLDWIDE.
>>VIC MICOLUCCI: SO JOINING US
NOW TO TALK MORE ABOUT IT AND
HOW YOU CAN MAKE A DIFFERENCE
RIGHT HERE IN OUR COMMUNITY
HEIDI KATZ AND JUST
CAN EVANS. GOOD MORNING TO YOU
BOTH FIRST OF ALL IF WE COULD
LET’S BEGIN WITH WHAT M S’S I
KNOW
THAT YOU ARE LIVING WITH M S
RIGHT NOW. YES THAT
IS CORRECT.
>> AND MULTIPLE SCLEROSIS IS A
IT’S AN
AUTOIMMUNE CONDITION. IT
AFFECTS THE CENTRAL NERVOUS
SYSTEM AND IT REALLY DEAN MYLAN
EATS THE NERVES IN THE BRAIN
AND THE SPINAL CORD
WHICH OF COURSE CAN AFFECT ALL
BODILY FUNCTIONS.
SO.
>>VIC MICOLUCCI: IT’S A BIG
WORD AND A LOT OF PEOPLE HEAR
IT BECAUSE IT IS VERY COMMON
HERE.
HOW MANY PEOPLE IN OUR
COMMUNITY AND ACROSS THE
COUNTRY IN THE WORLD HAPPENED
IT IT
IS PREVALENT.
>> IT IS VERY PREVALENT A MUCH
MORE SO THAN WE
EVEN REALIZED A YEAR AGO I
PROBABLY WOULD’VE TOLD YOU
THERE ARE ABOUT 400,000 PEOPLE
IN THE UNITED STATES LIVING
WITH M S
WE PARTICIPATED IN A FUNDING, A
PREVALENT STUDY BECAUSE WE KNEW
THAT WAS TRULY.
AT A 2 SMALL
IN NUMBER. ONCE THE PREVALENCE
STUDY WAS COMPLETED WE SAW THAT
THEY’RE CLOSE TO 1 MILLION
PEOPLE IN THE UNITED STATES
LIVING WITH AN S AND THAT’S
PROBABLY A CONSERVATIVE NUMBER
BECAUSE THAT IS BASED ON
SELF-REPORTING YOU’RE SO SELF
REPORTED JUST UNDER A MILLION
IN THE UNITED STATES
AND JUST MAYBE 2.5 THROUGHOUT
THE WORLD AND THERE’S PROBABLY
PEOPLE THAT DON’T KNOW THAT
THEY
HAVE IT.
>> YES, AND THEY’RE JUST HAVING
THE SYMPTOMS AND THEY HAVEN’T
GOTTEN THE FULL CHECKUP WITH
THEIR DOCTORS. SO TELL ME IS
THERE SOMETHING WE
CAN DO.
>> OF COURSE YOU CAN GET
INVOLVED BY VOLUNTEERING AT ANY
ONE OF
OUR EVENTS WALKING AT ARE
WALKING MESS EVENTS COMING UP
WE HAVE BY KIM S EVENTS AS WELL
IN
THE FALL. AS WELL YOU CAN ALSO
DONATE TO THE NATIONAL M S
SOCIETY WE’RE FUNDING RESEARCH
INITIATIVES, ADVOCACY EFFORTS
AT WASHINGTON AND WE’RE ALSO
FINDING SERVICES AND PROGRAMS
TO HELP THOSE AFFECTED BY A
MASS
EVERY DAY.
>>VIC MICOLUCCI: TELL ME WHAT
IT’S LIKE FOR YOU PERSONALLY
LIVING WITH M S HOW HAS IT
CHANGED YOUR LIFE AND HOW
DO YOU GET UP EVERY MORNING
YOU’RE HERE YOU’RE DOING IT AND
WE PROJECT FOR THAT THANK YOU.
YES, I HAVE TO SAY USE AS MAN’S
CREATION
EVERY DAY.
>>LAUREN VERNO: YOU KNOW, I’M
VERY LUCKY AND VERY BLESSED TO
HAVE A VERY MILD CASE OF THE
DISEASE IS AS I’VE LIVED IT SO
FAR AND I HOPE THAT THAT IS
GOING TO CONTINUE THROUGHOUT MY
LIFE AND THAT’S JUST WHAT KEEPS
ME GOING EVERY DAY KNOWING THAT
OTHER PEOPLE ARE AFFECTED MORE STILL BIOMASS TO MYSELF AND IT’S MY MISSION AND MY
INSPIRATION TO GET UP EVERY DAY
AND DO THE BEST THAT I CAN’T
HELP ALL THOSE WHO ARE
SUFFERING FROM A MASS OR OTHERS
WHO ARE AFFECTED BECAUSE THEIR
LOVED ONES ARE LIVING WITH
M S.
>>VIC MICOLUCCI: I DO WITH THE
SOCIETY, IT’S ABOUT RESEARCH.
IT’S ABOUT AWARENESS AND IT’S
ABOUT INVOLVEMENT ABSOLUTELY
AND TELL ME HOW PEOPLE CAN GET
INVOLVED AND JUST LEARN MORE
ABOUT IT AND THEN ALSO HELP THE
COMMUNITY.
>> ABSOLUTELY SO ON A
LOCAL LEVEL HAS JUST MENTIONED
WE HAVE A COUPLE OF
FUND RAISING OPPORTUNITIES
COMING UP EVENTS THAT HELPED US
RAISE THE MONEY THAT WE NEED TO
DO THE WORK THAT WE DID WE DO
TO RESEARCH TO A CURE.
ADVOCACY TO GO OUT AND MAKE
SURE THAT WHEN WE GO TO DC AND
WE GO TO TALLAHASSEE
PEOPLE LIVING WITH M S ARE
GETTING WHAT THEY NEED AND OF
COURSE PROVIDING SERVICES AND
PROGRAMS TO HELP THOSE LIVING
WITH M S CURRENTLY LIVE THEIR
BEST LIVES. SO WALK WITH
APRIL 18TH IS A ALONG ABOUT A
MONTH YOU CAN REGISTER WALK EMS
DOT ORG.
OUR BIG CYCLE EVENT IS THE END
OF OCTOBER OCTOBER 23TH AND
24TH I BELIEVE OVER THAT
WEEKEND A 24TH AND 25TH
OVER THAT WEEKEND AGAIN YOU CAN
REGISTER FOR THAT AND THAT IS
BIKE AND THAT’S DOT ORG FEEL
FREE TO CALL OUR LOCAL OFFICE
GO ON
OUR WEBSITE. WE HAD A BIG
DINNER OF CHAMPIONS COMING UP
IN APRIL WHERE WE HONOR A
SOMEBODY LOCALLY WHO HAS BEEN A
BIG PART OF OUR COMMUNITY.
A DOCTOR BUSTER BROWNING WILL
BE HONORED AT THIS LOOK I WANT
TO GET INVOLVED IN THAT WE’D
LOVE TO HAVE YOU. THERE’S
ENDLESS WAYS, ENDLESS WAYS WE
NEVER SAY NO.
>> WONDERFUL WELL WE
POSTED THOSE ON THE SCREEN
RIGHT THERE WE’RE ALSO GOING TO
POST THIS INTERVIEW ON OUR
WEBSITE NEWS 4 JAX DOT COM
IT’LL BE UP IN ABOUT 2030
MINUTES
GO BACK. YOU CAN LOOK AT IT YOU
CAN SEE EVERYTHING YOU WANT TO
GET INVOLVED AND MAYBE BRING A
PEN AND PAPER AND WRITE THOSE
DOWN SAVE ON
YOUR CALENDAR. THANK YOU BOTH
FOR COMING ON THE NTL ABOUT
THIS ISSUE AND WE WISH YOU THE