28 year old Karine's rare condition makes her skin so sensitive to the sun
that even the slightest exposure can lead to serious skin damage.
Over the course of her life, Karine has had to have over 130 surgical procedures
to prevent her from getting skin cancer.
Including one which removed her lower lip and part of her nose.
Due to her condition, Karine spends most of her days inside her home.
With the curtains shut tight.
Due to the effects her condition has had on her appearance,
Karine has struggled to gain acceptance from the outside world.
And there was one person that saw past Karine's condition.
Three years ago, she met her partner Edmilson
after he came across her story online.
As the couple revealed their love online, many people doubted the sincerity of their relationship.
Karine has since turned that negativity on it's head and now promotes body positivity online.
And not long after,
Karine and Ed tied the knot.
Despite her condition, there are rare occasions when cloud cover makes it safer for Karine to leave her house.