00:00 BRIANNE: She has definitely proved all those
doctors wrong, she has defied all odds.
00:18 COMM: Twelve-year-old Kenadie Jourdin-Bromley
has primordial dwarfism.
A condition that causes those with it to be very small but in proportion and affects around
a hundred people worldwide.
00:34 COMM: She's just started seventh grade where
she's almost two feet shorter than her classmates.
But despite her proving doctors wrong by living as long as she has, her mother still worries
about her future.
00:45 BRIANNE: How was school today guys?
KENADIE: Good!
00:47 BRIANNE: Most parents don't have to imagine
their kid not living past whatever age.
But it's a reality for us that I will probably lose her.
01:03 COMM: When Kenadie was born she weighed just
two and a half pounds and measured eleven inches from head to toe.
01:09 COMM: When she was born she was really perfect,
she was just miniature, she was chubby, she had pink skin.
Her eyes were bright.
01:17 COMM: Brianne baptised Kenadie straight away
as doctors told her she was too small to survive and was missing part of her brain.
01:24 BRIANNE: So we thought we were going to take
her home to die, because that's what they told us.
When we were home we were able to just live life every day and y'know eventually we realised
that she wasn't going to die, and that we were just going to live every day with our
baby.
01:40 COMM: Kenadie proved doctors wrong and it
now twelve years old.
01:44 BRIANNE: She is kind-hearted, she is loving
and y'know she wants to share everything with everyone.
She is feisty, she is determined, she is independent.
She don't take no crap from nobody.
02:02 COMM: Kenadie weighs 23 and a half pounds,
wears an infants size six shoe, and stands just 39 and a half inches tall.
Making her shorter than her younger brother, Tyran.
02:14 TYRAN: She's a good sister, sometimes it's
kinda hard to do things with her because she doesn't understand time.
She's no different to anyone else, I know she is but to me, no.
Sometimes if we're outside at the park, if anybody says something mean about her, I'll
just go up and say like what if you were like that, what if people said that to you?
02:40 COMM: Today Kenadie has started seventh grade,
and although she's the same age as her classmates.
She's not as developed academically and so learns different subjects and skills like
cooking.
02:50 JESSICA: Kenadie is, makes me laugh, she's'
very empathetic if you hurt your finger or she comes and gives you a hug, she's got an
infectious laugh, it just makes you want to laugh along with her.
I mean y'know kids will be kids and they will look at her just because she is crying, y'know
you don't often get a chance to see somebody that's that small going to your school.
I would hope that she has a wonderful and full life and that she feels that she fits
in with everyone, so that's what we try so hard to do to make sure she feels that she
is a part of things, and that's she's no different than anybody else.
Y'know despite her size.
03:34 COMM: When she's not in school Kenadie enjoys
skating a bowling and is going to start swimming soon.
03:41 BRIANNE: It makes me proud, it makes me cry,
I cry every time she's on the skating rink.
Everything she does I cry.
She has definitely proved all those doctors wrong.
She has defied all odds, she has overcome so many obstacles.
04:01 COMM: While she's thriving now, Kenadie is
still at risk from some serious medical issues.
Primordial dwarves' bones are very thin.
Many with the condition suffer hearing problems, and they can fact shortened life expectancies.
04:14 BRIANNE: It's a reality for us that I will
probably lose her, you lose your breath for a moment.
And it's just, that's reality.
I know there's other parents out there with kids in the same situation who know exactly
what I'm talking about.
04:31 BRIANNE: Having Kenadie has just definitely
tested my faith many, many times.
On the hard days and the days when you have to watch her struggle.
04:40 COMM: But for now, Kenadie is healthy and
Brianne takes things day by day.
04:45 BRIANNE: My hope for the future for Kenadie
is just that she is happy and that she finds things that make her happy and make her smile.
If we can get through today then we'll see tomorrow.
That's pretty much - I can't make too many plans for the future, my life will always
be dedicated to being there for her.
05:12 BRIANNE: I love you.
Can I have a big hug?
KENADIE: Yeah!
BRIANNE: And a kiss?