RE THAN A DOZEN ARE MANNING
TOWERS UP AND DOWN THE BEACH
THIS WEEKEND.
>>> IT'S TIME FOR ANOTHER
INSTALLMENT OF FLASHPOINT.
THIS WEEK CANDACE CAMPOS SITS
DOWN WITH MEMBERS OF
PARKINSON'S ASSOCIATION OF
CENTRAL FLORIDA AND A
PARKINSON'S SPECIALIST ON HOW
TO BATTLE THIS DISEASE.
>> CANDACE: GOOD MORNING.
I'M CANDACE CAMPOS.
THERE IS A LOT TO KNOW ABOUT
PARKINSON'S DISEASE FROM
RESEARCH TO FINDING HEALTH.
AND HERE RECENTLY THE
PARKINSON'S ASSOCIATION OFA
CENTRAL FLORIDA IS DEDICATED TO
IMPROVING THE QUALITY OF LIFE
FOR ALL PEOPLE IMPACTED BY
PARKINSON'S DISEASE.
AND JOINING ME ON FLASHPOINT IS
DR. IRA GOODMAN, THE SPECIALIST
IN PARKINSON'S.
THE FORMER PRESIDENT OF
RAWLINS:ING COLLEGE AND PART OF
THE PARKLAND ASSOCIATION OF
CENTRAL FLORIDA AND JOHN
GABRIELLE, PFC BOARD MEMBER AND
THE ORLANDIC GENERAL MIX.
AND SAY GOOD MORNING FOR 3.
DR. BORNE STEIN, LET'S START
OFF WITH WHAT IS THE PACF AND
YOUR POSITION ON THE BOARD.
>> I'M A BOARD MEMBER AND HAVE
BEEN FOR SEVERAL YEARS NOW.
AND, UM, WE'RE VERY EXCITE BODY
WHAT WE'RE DOING BECAUSE
ESSENTIALLY WE'RE TRYING TO
BRING HOPE AND HELP TO PEOPLE
WHO ARE DEALING WITH THIS
DISEASE AND ALSO THEIR FAMILIES
AND FRIENDS.
AND SO WE WORK A LOT WITH THE
FLORIDA HOSPITAL BECAUSE THEY
HAVE A TREMENDOUS OUTREACH
PROGRAM AND ALSO WITH THE
ORGANIZATIONS AND THE MEDICAL
FACILITIES AND SO ON.
TO BRING TOPEOPLE THE
OPPORTUNITIES THAT THERE ARE
FOR SELF-HELP.
PARKINSON'S IS NOT A KILLER
DISEASE.
YOU CAN LIVE WITH IT.
YOU HAVE TO LIVE WITH IT.
YOU HAVE TO BE OPTIMISTICAND
SEEK WAYS OF DEALING WITH THE
DISEASE AND FAMILY AND FRIENDS
THAT WANT TO BE HELPFUL.
WE'LL GET INTO IT LATER, BUT WE
HAD A WALK FOR PARKINSON'S.
>> REPORTER: ON SATURDAY,
RIGHT?
>> 2 WEEKS AGO AND MANY WALKED
AND WE DID AND RAISED QUITE A
BIT OF MONEY APPROACHING
$70,000.
WHICH WE WOULD USE TO SUPPORT
RESEARCH AND ACTIVITIES AND SO
ON.
AND HELP FOR CARE GIVERS AND SO
ON.
>> CANDACE: AWESOME.
JOHN, YOU'RE ALSO ON THE BOARD
AND WHAT'S YOUR RELATIONSHIP
WITH THE PACF AND THE MISSION.
>> I'M ALSO A BOARD MEMBER AND
REALLYOUR GROUP'S GOAL IS TO
PROVIDE AT THE END OF THE DAY
AND CONNECTED TO PEOPLE THAT
FEEL LIKE THEY'RE ALONE IN THIS
AND WE WANT THEM TO KNOW THAT
WE'RE NOT.
IN DOINTHAT WE WANT TO RAISE
AWARENESS THROUGH OUR
ACTIVITIES.
>> AND DR. BORNE STEIN AND JOHN
WH, AND HOW DID YOU FIND OUT
YOU HAD PARKINSON'S?
>> I FOUND OUT QUITE A NUMBER
OF YEARS AGO BUT I DIDN'T TELL
ANYONE BUT MY IMMEDIATE FAMILY
BECAUSI DIDN'T HAVE SYMPTOMS.
SOME PEOPLE -- WELL, EVERYONE
WHO HAS PARKINSON'S SEEMS TO
PRESENT DIFFERENTLY AND THE
DOCTOR WILL PROBABLY GO INTO
THAT LATER.
BUT SO I DIDN'T HAVE ANY
VISIBLE SIGNS FOR QUITE AWHILE
AND IT I EVERY YEAR HAD A
BIRTHDAY PARTY FOR MYSELF AND
SAID IT'S ABOUT TIMEAND SINCE
THEN IT'S BEEN VERY REWARDING
AND SUPPORT WITH THE
ORGANIZATION.
IT'S BEEN INTERESTING.
>> JOHN?
>> I SAT READING OF ALL THINGS
A MICHAEL J. FOX ARTICLE AND I
NOTICED BECAUSE I'M A FAN AS
MANY PEOPLE ARE AND CONCERNED
ABOUT HIS PLIGHT AND LIFE AND
NOTICE MY RING FINGER WHICH
QUICKLY PROGRESSED TO A FULL
FLEDGED TREMOR AND THEN IT WAS
AFTER SOME TIME TO DIGEST WHAT
WAS TAKING PLACE IN MY LIFE
DECIDED THERE WAS NO MAKING IT
GO AWAY.
HOW WAS I GOING TO USE IT AND
MAYBE THE PLATFORM ONCE HAD AS
A GENERAL MANAGER IN THE NBA TO
MAKE A DIFFERENCE.
AND THEN IN DOING SO, AND LET
PEOPLE KNOW THAT HIIT, I FOUND
OUT THE WONDERFUL THING AND
THAT'S BECAUSE THERE WERE SO
MANY PEOPLE THAT WERE LIVING
THEIR LIVES WITH PEOPLE IN
THEIR LIFE IF NOT THEMSELVES
HAVING PD AND AGAIN IT WAS A
TIME TO SEND A MESSAGE THAT A,
THEY WERE NOT ALONE AND
CONTINUE TO USE THE PLATFORM
AND CONNECTIONS AND THE GOOD
PEOPLE AT THE ORLANDO MAGIC AND
OTHERS THAT WOULD PROVIDE
SUPPORT AND FINANCIAL SUPPORT
SO WE COULD CONTINUE TO RAISE
MONEY.
>> WOW!
>> JOHN IS MY HERO BECAUSE HE'S
COME OUT SO VISIBLY AND SUCH A
WELL-KNOWN PERSON AND USES THAT
PLATFORM TO MAKE A DIFFERENCE.
>> CHANGE LIVES.
>> YEAH.
>> WELL, WHEN WE COME BACK,
WE'LL HEAR FROM THE DOCTOR
GOODMAN ABOUT THE DIAGNOSIS AS
WELL AS THE TREATMENT FOR
PARKINSON'S AND HOW CENTRAL
FLORIDIANS CAN HELP.
WE
>> CANDACE: WELCOME BACK TO
FLASHPOINT.
AND ESPECIALLY WITH PARKINSON'S.
AND THEN THE PCF'S MISSION TO
HELP SERVE PATIENTS AND DR.
GOODMAN, HOW IS THIS DISEASE
DIAGNOSED AND HOW IS IT
TREATED?
>> IT HAS CARBON MOTOR
MANIFESTATIONS AND ALSO SEVERAL
NON-MOTOR MANIFESTATIONS.
WE'RE LOOKING FOR 4 SIGNS.
SLOWNESS CALLED BRADYKENESIA
AND STIFFNESS CALLED RIGIDITY.
THERE'S POSTURE INSTABILITY AND
MOST PEOPLE, IF THEY'RE GOING
ONE DIRECTION, THEY HAVE TO
RIGHT THEMSELVES.
PEOPLE WITH PARKINSON'S
DISEASE, ONCE THEY START GOING
IN ONE DIRECTION, IT'S VERY
DIFFICULT TO RIGHT THEMSELVES
AND 3 OUT OF THE 4 PATIENTS
WITH THE TREMOR AND PRIMARILY
IT TENDS TO DAMPEN A BIT MORE
IN DOING ACTIVITY.
AND THAT'S A CLINICAL DIAGNOSIS
AND WHENEVER YOU HEAR THE WORD
CLINICAL DIAGNOSIS IT'S BASED
ON HISTORY EXAMINATION.
FREQUENTLY IT'S EASY TO MAKE
THE DIAGNOSIS.
HOWEVER SOMETIMES IT'S NOT
ABOUT 25% OF PEOPLE WHO PRESENT
WITH PARKINSON'S AND DIAGNOSED.
AND ON THE OTHER HAND ABOUT 20%
OF PEOPLE WHO HAVE PARKINSON'S
DISEASE TRY NOT TO HAVE IT.
SO WE DO HAVE A SCAN NOW, A
TYPE OF BRAIN SCAN THAT HELPS
US WITH THE DIAGNOSIS THAT
REMAINS THE CLINICAL DIAGNOSIS
BASED ON HISTORY AND SOMETIMES
IT'S NOT CLEAR INITIALLY AND IT
WILL TURN OUT TO BE CLEAR AS
TIME GOES ON.
AS FAR AS TREATMENT WE HAVE
MULTIPLE AND VERY EFFECTIVE
MEDICATIONS.
AND THEY NOW TREAT THE SYMPTOMS
AND THEY DON'T TREAT THE
DISEASE AND THEN IT'S THE TIME
DEDICATED TO THE RESEARCH AND
PARKINSON'S AND WITH THE
COMPASS RESEARCHER AND WORK
WITH WHY THEY'RE FOCUSING ON
GENDER DISEASES AND CLINICAL
TRIALS AND FOR PARKINSON'S
DISEASE AND MANY OF WHICH WILL
HOPEFULLY HAVE THE DISEASE
MODIFIED AND THEN WITH THE
SYMPTOMATIC TREATMENT.
AND WE'LL BE FINE OVER THE LAST
SEVERAL YEARS AND THE TREATMENT
OF PARKINSON'S DISEASE WHAT'S
IMPORTANT IS EXERCISE.
STUDY AFTER STUDY AFTER STUDY
DOCUMENTING EVERY MOTOR
MANIFESTATION TREATS
PARKINSON'S AND IF YOU GET THE
GREEN LIGHT FROM THE DOCTOR TO
GO AHEAD AND EXERCISE, IF YOU
HAVE PARKINSON'S DISEASE, THE
AMOUNT THAT -- THAT HIGHEST
AMOUNT OF EXERCISE YOU CAN DO
WILL TURN OUT TO BE THE MOST
EFFECTIVE TREATMENT.
>> CANDACE: EXERCISE IS AMAZING
AND WHAT ADVICE DO YOU HAVE FOR
THOSE LIVING WITH PARKINSON'S.
>> ONE OF THE BEST ADVICE IS
OPTIMISM.
AND THEN WE HAVE MANY EFFECTIVE
TREATMENTS AND WE HAVE MANY
EFFECTIVE TREATMENTS IN THE
PIPELINE AND THE PROBLEM IS
WE'RE IMPLEMENTING THESE
TREATMENTS AND EASY TO TAKE A
PILL AND EXERCISE IS ANOTHER
STORY PARTICULARLY WITH
PARKINSON'S AND THAT'S WHERE
THE PATIENT'S FAMILY AND THE
CARE GIVERS AND ORGANIZATIONS
LIKE PARKINOS AN ASSOCIATION OF
CENTRAL FLORIDA ARE AN
IMPORTANT CATALYST TO TAKE
ADVANTAGE OF THESE TREATMENTS
AND OPTIMIZE THE LIFESTYLE AND
QUALITY OF LIFE AND ALSO THEIR
CARE GIVERS.
>> AND THAT'S THE NEXT QUESTION.
THE CARE GIVERS FOR THOSE
LIVING WITH THE DISEASE.
AND I GUESS GOING TO THE CARE
GIVER.
>> AND IT'S IMPORTANT FOR THE
CARE GIVER TO PUT THEMSELVES IN
THE PATIENT'S SHOES.
TO THIS PICTURE YOU HAVE TO
PLAN 20-30 MINUTES EXTRA IN THE
MORNING TO GET DRESSED.
DIFFICULT TO EVEN DOT BUTTONS.
TO BE WALKING AND NOT KNOW IF
YOUR FEET WILL FREEZE AND CAN'T
MOVE.
AND THAT'S SOMETHING
MAILEXPERIENCE AND IT'S
DIFFICULT TO OVERCOME AND I
THINK BEING EMPATHETIC OR
HAVING EMPATHY FOR THE PATIENT
IS THE CARE GIVER AND THAT IS
WHERE ORGANIZATIONS LIKE THE
PARKINSON'S OF CENTRAL FLORIDA
PLAY A GOAL.
THE REAL CATALYST TO BRING THE
CARE GIVER AND THE PATIENT
TOGETHER TO OPTIMIZE THE
QUALITY OF LIFE.
>> TEAMWORK.
>> TEAMWORK, YEAH.
>> AND HOW CLOSE ARE WE TO
FINDING A CURE?
>> IT'S VERY DIFFICULT,
OBVIOUSLY, TO PREDICT THAT.
HOWEVER I THINK OF ALL THE
DISORDERS, WE'RE THE CLOSEST TO
THE CURE WITH PARKINSON'S
DISEASE.
I MENTIONED WE'RE CURRENTLY
DOING MULTIPLE TRIALS WITH
DISEASE MODIFICATION AND THE
VACCINE THAT WE'RE USING NOW
FOR SEVERAL DIFFERENT
PHARMACEUTICAL COMPANIES AND
ACTUALLY ADDRESSING THE
SIGNATURE PROTEIN AND IT'S
GOING TO BE VERY VIABLE WITH
THE STRATEGY.
AND THEN IT'S GOING ON AND MAKE
IT MORE OPENLY AND IT'S
INCREASING PARKINSON'S DISEASE
AND IT'S ADDRESSING THE USE
WITH THE FACTORS AND IT'S GOOD
FOR THE BRAIN CELLS.
AND THEN WE TREAT A DISORDER
AND WE LOOK AT SYMPTOMATIC
THERAPY AND THE DISEASE
MODIFYING THERAPY AND THEN
HAVING DISEASE MODIFYING
THERAPY NOW WITH THE PIPELINE
FOR PARKINSON'S DISEASE IS THE
BIGGEST LEAP FORWARD TO GETTING
THAT CUR
>> CANDACE: THE POSITIVE
OUTLOOK AT LEAST?
>> IT'S FOR THE POSSIBLE CURE
AND WHEN IT'S GOING TO OCCUR
AND THEN THEY GOT A BAD RAP
OVER THE YEARS AND A LOT OF
TIMES PHARMACEUTICAL COMPANIES
DESERVE IT.
HOWEVER THEY'RE VERY
COMPETITIVE AND NOT GOING TO BE
SUCCESSFUL UNLESS THEY DEVELOP
A COMPOUND THAT'S EFFECTIVE AND
SAFE.
AND THAT'S WHY THEY'RE THE
RESEARCH SPONSORED BY
PHARMACEUTICAL COMPANIES.
IT'S VERY, VERY STRICT AND
VERY, VERY REGULATED.
I THINK THAT IMPETUS OF TRYING
TO DEVELOP A SUCCESSFUL AGENT
AND THAT'S GOING TO GET US TO
THE DISEASE MODIFIED TREATMENT
AND THE CURE IN THE FUTURE.
>> AND DR. BOINSTEIN, HOW CAN
CENTRAL FLORIDIANS HELP WITH
PARKINSON'S DISEASE AWARENESS?
>> THEY CAN SUPPORT THE
PARKINSON'S ASSOCIATION OF
CENTRAL FLORIDA.
THEY CAN BECOME KNOWLEDGEABLE
ABOUT THE DISEASE.
THEY CAN HELP PEOPLE WITH
PARKINSON'S.
ONE OF THE MOST IMPORTANT
THINGS FOR PEOPLE WHO KNOW
PEOPLE WHO HAVE THE DISEASE IS
TO HELP THEM REMAIN INDEPENDENT.
NOT TO BE.
BUT TO HELP THEM WHEN THEY NEED
HELP.
IT'S A VERY COMPLICATED
SITUATION, BUT IT'S VERY
IMPORTANT.
INDEPENDENCE HELP WHEN YOU NEED
IT.
AND WE ENCOURAGE PEOPLE WITH
PARKINSON'S TO COME FORWARD TO
SEEK THE HELP AND REALLY MAKE A
DIFFERENCE IN THEIR LIVES.
AND THERE ARE CAREGIVER GROUPS
THAT ARE IMPORTANT FOR
CAREGIVERS THAT GET STRESED OUT
BECAUSE OF THEIR -- STRESSED
OUT BECAUSE OF THEIR
RESPONSIBILITIES.
I AGREE WITH THE DOCTOR.
EXERCISE AND OPTIMISM.
OPTIMISM AND EXERCISE AND
SUPPORT OF YOUR FRIENDS AND
FAMILY.
VERY IMPORTANT.
>> AND, JOHN, WHERE CAN WE
LEARN MORE ABOUT PCF?
>> I THINK THE EASIEST WAY IS
TO GO ON OUR WEBSITE BUT
OBVIOUSLY THE EXPOSURE WE HAVE
TODAY IS WONDERFUL.
WE WANT TO THANK YOU FOR THAT.
>> THANK YOU FOR BEING HERE!
>> THE DR. ADDRESSED THE FACT
HE HAD TO WORK OUT HARD TO FEEL
RESULTS.
I WISH HE HAD SAID YOU COULD
LAY ON THE COUCH AND WATCH
BASKETBALL AS THERAPY BUT IT
DOES FIT ALONG THE LINE OF WHAT
WE DO AND THAT IS TO TRY TO
ENCOURAGE PEOPLE TO COME OUT
AND BE INDEPENDENT AND KEEP
MOVING.
>> RIGHT.
>> WELL, THANK YOU GUYS SO VERY
MUCH FOR BEING HERE SO EARLY IN
THE MORNING AND DO WANT TO
THANK OUR GUESTS, OF COURSE,
FOR BEING WITH US TODAY AND
WE'LL BE BACK WITH MORE NEWS