Because this patient had
been treated extensively,
she had the initial doxycycline treatment,
which resolves her symptoms
for about two years.
She, not she did not have another
known tick bite or exposure,
and started going on a downhill
path neurologically after about
two years of of her diagnosis,
and then she was treated with Ivy,
ceftriaxone, amoxicillin,
and did show up.
Fair amount of improvement,
but then later developed.
US symptoms and signs of dementia,
among other things,
and so my suspicion is that the physician,
probably, you know.
Ruled everything else out and we know
that that's the case because of all
the tests that were run and then just
basically treated her as a dementia
or Alzheimer's dementia patient.
So now we're very interested
in looking more at Alzheimer's,
dementia and Lewy body dementia.
Patient autopsy specimens for
the presence of Borrelia.
This is not a pathogen that you
want to have in your brain.
I don't.
I mean, you don't want to have
pathogens in your brain, period,
but.
We found a nice beautiful intact
spirochete in her spinal cord and we
were able to find DNA evidence in the brain.
And you know,
we've seen this similar.
We've had similar findings that
are non human primate studies,
so Borrelia can definitely
enter the brain and persist
in the brain.
I have ongoing leg pain and this
area on my leg is always either.
Tingley, or just painful, always.
And then I started experiencing numbness
in my hands and that got to be.
It would be intermittent now
it's a lot more often those two
things are the the two top things
I experience on a day to day.
It doesn't go away. No, not yet. So if
there's good days and bad days like good
days and bad days, how many times a
day am I getting numb versus not numb?
But you do believe that whatever
you got infected with that when the
spider create enter your system,
it did go to places to affect you
like either with the fatigue or
the tingling and different things
like that, right? I think so.
I mean, there's no other way to
explain the symptoms that I have.
I mean especially the depression.
The other things you were experiencing too,
right, right, right, right?
Is there anything new with
the prognosis and treatment?
Since we talked to you
last time, so the last time we talked
I was doing better and you know,
things were the things that were
really low were now a little higher
and I had blood work a few months
ago and all of it came back looking
pretty good and the Lyme disease that.
That eaters they look really good too,
which means that it's either gone or at Bay.
UM, unfortunately the Epstein Barr virus is,
you know, spiked again,
so we have to work on that.
Are you doing any type of
regime or protocols right now?
Just like you said you want to take
care of your health better and
do more things for yourself. I do
want to do more things for myself.
I think that I haven't been as attentive
to myself as I would like to be.
I'm on a lot of different
supplements right now.
No drugs, just supplements,
and I'm fine with that.
I believe in the supplements.
I believe that they help.
I think that there's something
that I need to take in order to
get myself to where I need to be.
Where you want. Were you on a
course of antibiotics as well?
You were right, yeah, So what?
Yes, So what happened was during
my time with the natural path.
Decided that I heard about another doctor.
A more conventional doctor that
was an infectious disease and she
was so close to where I live,
I decided that I would investigate that
as well and I was a little concerned
having not having two doctors per say,
but having two doctors from
different backgrounds,
like how is all this going to work out
and are we going to be butting heads with
treatment because it's two different?
Mentalities on healthcare.
But I went to see her and I really liked
her and I liked what she had to say.
She took me seriously and I decided that
I was going to work with her too and I
told him that I would be working with
her and I told her I'd be working with him.
So to answer your question,
yes she put me on a protocol and I've
gone through almost the entire protocol.
There's one drug left and I'm,
you know,
just trying to decide if I'm going to.
Go that route or not.
But the interesting thing about this is this.
I make sure that I scheduled both
doctors in the same week and they
don't know that I scheduled them
in the same week and I'll go to
one doctor and then I'll show up
to the other doctor and I wait to
see what they're each going to say.
And almost always,
they say almost the same exact thing,
and it's been so cool that they're not
conversing with each other and they're not,
you know, saying, oh,
don't go that, or don't do this.
You know,
because of the different method mythology,
but they both agree on treatment and it's
been excellent or diagnosis for that matter.
You know when we're looking at the
blood work and those kinds of things,
I think it's important for people to find a
doctor or a team that resonates with them.
If you can't,
you can't be open with your doctor.
And if you don't feel as though
the doctors responding to you,
it's not a good match.
You have to be able to
find that, and it's a constant journey.
You're probably you have
to take care of yourself.
You have to keep up with everything,
and patients need to realize that's
going to be part of their life.
Unfortunately,
unless they're really fortunate,
it's completely dormant,
doesn't get active again because I
guess it's state it does stay within
your body, right?
It does stay within your body,
although there are some doctors that
think it can be completely eradicated.
So you know it depends on what
you yourself thinks and feels,
but it is ongoing.
Your health is ongoing.
You need to stay on top of it,
and I think that I think that
goes for anybody whether you have
Lyme disease or you know you're
just a healthy person universal.
Yeah, it's universal.
So tell me you say you try to keep
up with a lot of things and you
know it doesn't mean you can be on
top of everything, but just reading
the article I came across that.
They're doing this really
incredible research.
Tulane in Colombia to try to find
out how pervasive the spirochetes
are from that causes Lyme,
and the fact that you're not
the same person as this woman,
but that she had some couple
similar symptoms.
She did have dementia,
she was treated for 15 years as.
I mean, you really going through
the same tier make treatment.
But what did that article like was
that kind of a surprise to you?
Or is it something you thought this is
possible based on what I've been through,
it's probably attacked.
My central nervous system.
To make me feel this way,
you know on the brain controls that.
So what was your reaction?
The first reaction was the article
scared the hell out of me.
It really did and it made me upset.
I've read both.
Yeah and I just thought you know
this this could happen to me.
This could happen at anybody and am I doomed?
You know what's my future going
to be so that first reaction
is just because to see this research
published research so pretty
dependably say this is what we found
and the caliber of experts that
are looking at it.
Yes, I think that's it and then just
just knowing that this is possible.
This is absolutely possible.
Despite treatment, yes.
But then again, you know in the back
of your head what did you really think?
You know? If you're experiencing
these kinds of symptoms,
then of course it must be, you know,
attacking some part of your body.
I think just seeing it in print like
that makes it more you know more there.
So it's a double edged sword. It
kind of makes you pause and
think oh, what about me?
But also the fact this is published.
This is published.
Researched very respectable, you know,
this is the neurological neurological.
Publication yet another neurologist
look at and they look too.
It's like the New England Journal,
right, right?
So you have this great evidence.
Research based evidence going
out there to the public to the
protection providers that are taking
care of parents as like yourself,
that's really important
that it comes out right.
Absolutely I think whether
it's good news or bad news,
it needs to be out there.
People need to be informed.
Doctors need to be informed.
Doctors need to have a light
under there to get them going.
You know there needs to
be more research on this.