Cynthia: WELCOME BACK EAST
TEXAS WERE JOINED BY THE EAST
TEXAS LUPUS AND AUTOIMMUNE
AWARENESS GROUP.
THANK YOU SO MUCH FOR BEING
HERE TODAY.
THINK OF HAVING ME.
Cynthia: LET'S TALK ABOUT
WHAT IF PEOPLE AREN'T FAMILIAR
WITH THE DISEASE?
LUPUS IS AN AUTOIMMUNE
DISEASE WHICH MEANS IT'S
COMPREHENSIVE TO WHAT OUR
BODIES ARE USED TO AS FAR AS IF
YOU HAVE A CERTAIN DISEASE IT
AFFECTS ONLY THAT ONE DISEASE.
LUPUS ATTACKS COMPREHENSIVELY
THROUGHOUT THE WHOLE BODY.
THAT MEANS THAT EVERY ORGAN
INCLUDING THE SKIN IS INVOLVED.
THAT IS ONE OF THE REASONS WHY
IT'S SO IMPORTANT FOR US TO
BRING THIS AWARENESS AND ALSO,
TO BRING THE WALK TO EAST
TEXAS.
Cynthia: WHAT DOES THE GROUP
DO YEAR-ROUND TO HELP RAISE
AWARENESS?
WE DO MANY DIFFERENT THINGS.
DIFFERENT EVENTS IN THE
COMMUNITY SUCH AS THE WALK THAT
WE ARE GETTING READY TO DO.
POSSIBLY LIKE KARAOKE NIGHT AND
REALLY, JUST DINNERS AND EVEN
HOSTING SO WE ARE GIVING THAT
INFORMATION OUT
any other questions Texas. If
you have
HEALTHCARE PROFESSIONALS AND
FAMILIES, PEOPLE WHO ARE
SUFFERING FROM IT.
Cynthia: YOU WERE TELLING
YOUR PERSONALLY ATTACHED TO
THIS, TELL ME LITTLE BIT ABOUT
THAT.
THE SORT THAT WE DEAL WITH
ARE SO COMPLEX THAT IT TAKES SO
MANY YEARS TO DEAL WITH AND I
WAS DIAGNOSED AFTER FIVE YEARS
AND IT TOOK FIVE YEARS TO BE
DIAGNOSED AND AFTER THAT IT WAS
SO LONG BEFORE THEY COULD DO
ANYTHING ELSE THAT IT WENT
FURTHER AND THE OTHER DISEASE.
THE BIGGEST THING FOR ME
PERSONALLY WAS MY STRUGGLES AND
WHAT I WENT THROUGH AND THEN I
SAW OTHER PEOPLE DEALING WITH
THE SAME THING AND I DIDN'T
WANT ANYONE ELSE TO HAVE TO
DEAL WITH THAT.
MEMBER RIGHT NOW THAT IS
BATTLING WITH IT RIGHT NOW.
IT'S NOT ONLY AFFECTING JUST
THE PERSON THEMSELVES BUT THE
FAMILY MEMBERS STRUGGLE WITH
THAT AS WELL BECAUSE YOU DON'T
KNOW WHEN IS MY FAMILY MEMBER
GOING THROUGH AND HOW I CAN
HELP IN WHAT WAYS TO BE MORE
SUPPORTIVE.
IT'S ONE OF THOSE THINGS WHERE
IT TAKES AN EMOTIONAL TOLL ON
EVERYBODY.
NOT JUST THE PERSON THEMSELVES
BUT THE FAMILY ALSO.
THEREFORE WE CALL OURSELVES
WARRIORS.
RIGHT.
THE BIGGER THING TO ALSO IS THE
COMPLEXITY OF FROM TAKING IT
FROM A LOT OF PEOPLE WHO HAVE
TO WORK TWO JOBS, TWO DIFFERENT
PEOPLE IN THE FAMILY.
IT GOES FROM A TWO PARENT, TWO
INCOME HOUSEHOLD TO A ONE
INCOME HOUSEHOLD AND THAT
CAUSES REALLY SOME MAJOR STRESS
AND STRESS IS MAJOR WHEN IT
COMES TO LUPUS.
ACTUALLY ANY AUTOIMMUNE
DISEASES STRESS.
WHEN IS THE FUN RUN HAPPENING?
THAT IS MAY 25.
FROM 4:00 P.M. UNTIL 10:00 P.M.
AT HERITAGE PLAZA IN DOWNTOWN
LONGVIEW.
THAT IS ON THE CORNER OF MESTON
AND GREEN WHICH IS RIGHT DOWN
THE ROAD FROM LONGVIEW JOURNAL.
IT STARTS AT 4:00 P.M. AND
ENDS AT 10:00 P.M.. WE WILL
HAVE A LOT OF GOOD THINGS GOING
ON.
A LOT OF FUN EVENTS, A LOT OF
FUN THINGS GOING ON.
BUT THE MAIN THING IS AFTER,
WHEN IT GETS TONIGHT IS WHEN WE
HAVE THE WALK.
WE ARE GOING TO BE DOING IN
MEMORY OF THOSE WHO HAVE
ACTUALLY LOST THEIR STRUGGLE
AND THOSE THAT ARE STILL
FIGHTING.
Cynthia: ABSOLUTELY PEOPLE
ARE INTERESTED IN FINDING OUT
MORE ABOUT THIS WORK AND THEY
FIND THE DETAILS?
WE DO HAVE A FACEBOOK PAGE
WHICH IS LUPUS AWARENESS GROUP
JUST GO INTO THE SEARCH BAR AND
IT WILL PULL IT UP.
ALSO, WE HAVE AN EMAIL ADDRESS
WHICH IS AWARENESS FOR LIFE
2015 @GMAIL.COM.
YOU CAN GET ALL OF OUR
INFORMATION FROM THERE AND IT
HAS PICTURES OF PAST EVENTS
THAT WE'VE DONE, ALSO CONTACT
INFORMATION.
BECAUSE A LOT OF US WE DEAL
WITH DIFFERENT AUTOIMMUNE
DISEASES.
THERE IS CONTACT INFORMATION
FOR ANY OF US SO IF THERE IS
ONE THING THAT ONE OF US IS NOT
POSSIBLY DEALING WITH WE HAVE
IS ACTUALLY THE ORGANIZATION
PHONE AT 903-399-6496.
AGAIN MY NAME IS TAMARA AND I'M
THE PRESIDENT AND THIS IS