JUST
JUST THIS
JUST THIS YEAR, CLOSE TO 15-THOUSAND KIDS WILL BE DIAGNOSED.
AND THEN YOU HEAR, OF THE4@
BILLIONS OF
DOLLARS IN FEDERAL FUNDING, A
SMALL
FRACTION OF THAT MONEY GOES4@
TOWARD
PEDIATRIC CANCER RESEARCH. WE
WANTED TO KNOW WHY. BROOKE HASCH
EXPLAINS THE REAL COST OF
CHILDHOOD
CHILDHOOD CANCER AND THE STORIES 4@ OF FAMILIES ADVOCATING FOR
CHANGE.
CHANGE.
CHANGE. 12:05:35 THIS IS BREE, BREE
BROWN.
BROWN. 12:16:28 THIS IS MY DAUGHTER, SHELBY SCANLON. 12:06:10 SHE WANTED TO BECOME A
MUSIC THERAPIST TO HELP OTHER
KIDS WHO WERE GOING THROUGH THE
SAME THINGS SHE HAD.
12:16:58 SHE WANTED TO BE A CHILD ONCOLOGY NURSE.
12:10:53 THIS IS HARD....THANK
YOU...4@
12:10:00 SHE DIED AT 15.
12:16:39 SHE WAS 18 YEARS OLD
WHEN SHE
PASSED.
12:17:59 SHE WAS MY ONLY CHILD.
SHE WAS4@
SHE WAS4@
SHE WAS4@ EVERYTHING TO ME.
SHE WAS4@ EVERYTHING TO ME.4@
----------- IT'S THE LEADING CAUSE OF DEATH
BY
BY
BY 4@4@
4@4@
4@4@ DISEASE IN CHILDREN.
4@4@
4@4@ EACH
4@4@ EACH YEAR, MORE THAN 15-THOUSAND
4@ WILL FIND OUT THEY H4@AVE CANCER
BEFORE THEIR 20TH BIRTHDAY.4@
CLOSE TO
CLOSE TO
2,000
2,000 WILL LOSE THEIR FIGHT. BUT THERE IS GOOD NEWS.
WITH THE HELP OF CLINICAL TRIALS
AND ADVANCEMENTS IN
IMMUNOTHERAPY, MORE THAN 80 4@PERCENT OF CHILDREN WITH CANCR
ARE SURVIVING IT.
52:19 "WHAT SCIENCE IS DOING TODAY, WE COULDN'T EVEN IMAGINE
4@
7 TO 10
YEARS AGO," DR. ASHOK RAJ, WITH
NORTON SAID.
NORTON SAID. BUT IT COMES WITH A COST. 50:07
"WE NEED TO INVEST MORE AND WE
NEED TO INVEST MORE QUICKLY," DR. RAJ SAID.
LAST YEAR, THE AMOUNT OF FEDERA@
MONEY SPENT ON PEDIATRIC CANCER
RESEARCH TOTALED 413 MILLION
DOLLARS. A FRACTION OF THE 5.94@ BILLION DOLLARS 4@SPENT BY THE4@
NATIONAL C4@ANCER INSTITUTE. TH@
REST WENT TOWARD ADU4@LT
CANCER AND L4@ABORATORY RESEARC,
4@
4@ WHICH
4@ WHICH CAN ALSO HAVE GREAT IMPACTS ON KIDS.
THE NCI SAYS ITS "GOAL IS TO
FUND
THE BEST SCIENCE WITH THE
GREATEST
POTENTIAL TO REDUCE THE BURDEN
OF CANCER" ... RELYING "HEAVILY
ON SCIENTIFIC PEER REVIEW."
9:18:52 "I THINK WE NEED TO TAKE
A STEP
A STEP
A STEP BACK BECAUSE WE LOOK AT PEDIATRIC4@
CANCER AS ONE ENTITY. IT'S NOT.
IT'S
IT'S
IT'S A
IT'S A HUNDRED DISEASES," DR. JOSEPH 4@
FLYNN, THE PHYSICIAN CHIEF OF
NORTON CANCER INSTITUTE SAID.
THE INCIDENCE RATE IS A BIG PART
OF4@
OF4@
OF4@ WHERE THE MONEY GOES AND THE THOUSAND4@S OF PEDIATRIC CANCER
4@
4@ CASES
4@ CASES ARE CONSIDERED RARE COMPARED TO THE 1.7 MILLION
ADULTS4@
BATTLING IT EVERY YEAR... WITH
BREAST,
LUNG AND PROSTATE CANCER AT THE
TOP4@
TOP4@
TOP4@ OF
TOP4@ OF THE LIST. CANCERS THAT4@ TYPICALLY SEE
TYPICALLY SEE
THE
THE MOST
THE MOST FUNDING IN RESEARCH. CHILDREN MAKE UP LESS THAN ONE PERCENT OF THE OVERALL TOTAL.
12:46:16 "HMM...YES,
STATISTICALLY IT IS RARE. BUT
WHEN IT AFFECTS YOU AND YOUR
FAMILY, IT FEELS LIKE IT IS THE
BIGGEST MONSTER, THE MAIN
FOCUS," EMILY FOX SAID. FOR EMILY FOX...IT WAS DURING
MOTHER'S DAY WEEKEND WHEN SHE
HEARD THE WORDS...
12:45:44 "WE THINK YOUR BABY HAS
CANCER," FOX SAID.
3-YEAR-OLD BOONE FOX NOW PLAYS WITH
HIS TOYS ON THE 7TH FLOOR OF
NORTON
CHILDREN'S HOSPITAL.
13:00:00 "HE LOVES TO PLAY
FARM."
IT'S A SMALL DISTRACTION FROM4@
NEARLY 6 MONTHS OF INTENSE CHEMO
TREATMENTS FOR ACUTE MYELOID
LEUKEMIA. WHILE HE'S RESPONDING WELL
NOW...4@
12:52:26 "WE ARE ONE STEP AWAY
FROM RELAPSE," FOX SAID.
FOX TRIES TO KEEP IT POSITIVE,
BUT KNOWS
MO4@RE RESEARCH IS NEEDED FOR KS
LIKE BOONE.
LIKE BOONE. 12:47:13 "I WOULD LIKE TO SEE MY
SON NOT HAVE TO BE TREATED WITH
DRUGS THAT ARE DECADES- OLD. I
LOVE FOR THERE TO BE NEW RESEARCH, NEW PROTOCOLS AND NEW
DRUGS..."
DRUGS..." FOX SAID. SHE, LIKE SO MANY PEDIATRIC CANCER4@4@
FAMILIES ARGUE THE NUMBERS OF4@@ CASES
CASES
CAN'T
CAN'T BE
CAN'T BE THE MAIN FACTOR IN HOW FUNDING IS DISTRIBUTED.
YOU HAVE TO LOOK AT THE NUMBER4@ OF
YEARS LOST TO CANCER, TOO.
12:50:16 "WHEN YOU'RE DIAGNIOSED
AS AN OLDER ADULT, THE YEARS
THAT ARE ROBBED FROM YOU, WHILE THOSE ARE
STILL VERY VALUABLE, THE
LENGTH OF PEDIATRIC CANCER AND4@ THE4@
YEARS THAT ARE ROBBED FROM THESE
CHILDREN
CHILDREN ARE LONGER AND BIGGER AND HAVE A HUGE IMPACT," FOX4@ SAID.
THERE ARE 70 POTENTIAL LIFE
YE4@ARS LOST ON AVERAGE WHEN A4@
CHILD DIES OF CANCER COMPARED
TO
TO ABOUT
TO ABOUT 15 FOR ADULTS. 9:31:45 "IT'S VERY PERSONAL FOR PEOPLE
AND IT SHOULD BE," DR.4@4@ FLYNN SAID.
TO ABOUT 15 FOR ADULTS. 9:31:45
"IT'S
"IT'S VERY PERSONAL FOR PEOPLE AND IT SHOULD BE," DR. FLYNN SAID.
12:21:16 "I JUST WANT MORE
4@AWARENESS. I JUST WANT MORE
PEOPLE TO CARE ABOUT IT," MARK
SCANLON SAID. 12:11:38 "I
ADVOCATE A LOT FOR CHILDHOOD
CANCER, BUT IT'S NOT GOING
TO DO ME ANY GOOD. IT'S NOT
GOING TO
BRING MY DAUGHTER BACK. BUT MY
HOPE IS
THAT FUNDING WILL CONTINUE TO
INCREASE AND OTHER FAMILIES WILL
HAVE4@
HAVE4@
HAVE4@ MORE PROMISING FUTURES," JENNI BROWN SAID
11:21:18 "MY NAME IS MATTHEW
WALKER
AND I AM 16 YEARS OLD." 11:21:22
"I WANT TO BE A WELDER OR A
PROFESSIONAL PAINTBALLER," WALKER SAID.
11:31:45 "BENTLEY IS MY
5-YEAR-OLD LITTLE BOY," CANDICE
FULK SAID. 11:39:01 "WHAT DO YOU
WANT TO BE? -- 'A FIREMAN AND A
CONSTRUCTION WORKER.' 11:32:18 "HE SAID HE'LL FIGHT 4@THE FIRES
4@AND REBUILD THE HOUSES FOR THE
PEOPLE WHO HAD THEIR HOUSES BURN
DOWN," FULK SAID.
BUT TODAY, THESE KIDS ARE FIGHTING A
DIFFERENT BATTLE.
11:32:31 "HE WAS DIAGNOSED JULY
31, 2017," FULK SAID.
11:22:05 "I WAS DIAGNOSED AUGUST
2015," WALKER SAID.
AND ONLY ONE THING IS GOING TO END IT. 11:28:10 "RESEARCH IS
PARAMOUNT,"
MATTHEW'S DAD, DION WALKER SR.
SAID.
11:28:40 "JUST THIS YEAR, HE
BENEFITED FROM RESEARCH THAT WAS
DONE THE YEAR BEFORE THAT WASN'T
EVEN AVAILABLE THE YEAR BEFORE
THAT,"
THAT," WALKER SAID. 11:23:21 "I'M HOPING WE CAN FIND
A CURE FOR CANCER. I'M HOPING WE
CAN EVENTUALLY GET IT TO WHERE
IT'S FREE AND WE DON'T HAVE TO PAY TO STAY ALIVE," MATTHEW
SAID. 11:23:46 "BECAUSE NONE OF
US ASKED FOR CANCER IN THE FIRST
4@ PLACE,"
4@ PLACE," MATTHEW SAID.
MATTHEW SAID. 4@
4@
4@ IN
4@ IN LOUISVILLE, BROOKE HASCH WHAS
4@ 11 NEWS.4@
11 NEWS.4@
4@4@4@
4@4@4@ 4@
4@
4@ BEYOND
4@ BEYOND THE MONEY SPENT BY THE
NATIONAL CANCER INSTITUTE-- LOCAL
HOSPITALS ARE STEPPING UP TO
HELP4@
FILL THE FUNDING GAP.
LOCALLY-- NEARLY 10-
MILLION-DOLLARS IS
PROVIDED FOR PEDIATRIC CANCER
RESEARCH FROM GRANTS FROM THE
CHILDREN'S HOSPITAL FOUNDATION
AND