WELCOME
WELCOME BACK. ALAR4@S COMMONLY4@ KNOWN4@ AS LU GEHRIG'S DISEASE IS A REALLY A
BEAST DESPITE DECADES OF
RESEARCH.
STILL NO CURE AND CURRENTLY
ONLY4@ FOUR FDA APPROVED DRUGS
FOR TREATMENT.
>> BUT UNLESS TENNESSEE CHAPTER
CURRENTLY4@ SERVES 300 CLIENTS
LIVING WITH A LESS PANDEMIC OR
NOT, THESE FAMILIES DEPEND ON
DOLLARS RAISED FROM THE ANNUAL4@
WANT TO DEFEAT ALCS.
RECENTLY I TALKED WITH ALICE
SULLIVAN4@ WITH THE AGELESS
ASSOCIATION AND VOLUNTEER DON
MANLEY ABOUT THE EVENT THIS
WEEKEND.
>> WE'RE GRATEFUL4@ THAT WE
ACTUALLY CAN SHIFT THIS EVENT
IN A WAY THAT PEOPLE4@ CAN STILL
PARTICIPATE.
WE'RE GOING TO HAVE WE HAVE
OVER ONE HUNDRED AND TWENTY
FIVE TEAMS THAT ARE REGISTERED
ACROSS THE STATE OF TENNESSEE
AND THEY'RE GOING TO WALK
LOCALLY IN THEIR NEIGHBORHOOD
AND THEIR POCKETBOOKS.
AND I DON'T KNOW THAT JUST
GIVES ME SOME JOY DESPITE ALL
OF THE HARDSHIP AND NEGATIVITY
THAT WE'VE EXPERIENCED4@ THIS
YEAR.
THIS WALK IS CRITICAL AND OUR
PROGRAMS4@ AND OUR SERVICES IT T
RAISES ABOUT A HALF A MILLION
DOLLARS SO THAT WE CAN CONTINUE
TO GROW AND SERVE4@ OUR A-LIST
CLIENTS AND THEIR CAREGIVERS
AND THEIR FAMILIES.
>> WHAT IS4@ YOUR LAST?
AND HOW DOES IT IMPACT THE
BODY?
SO IT'S ENCOURAGING IT
DEGENERATI4@VE DISEASE SO IT4@ N
AFFECT PATIENTS IN A LOT OF
DIFFERENT WAYS WHETHER THEY
LOSE FUNCTION WALKING USING
THEIR ARMS SUMMIT, FIX THEIR
SPEECH AND THEIR ABILITY TO
SWALLOW4@4@ AND BREATHE.
>> SO A LOT OF TIMES YOU MAY
SEE ALA'S PATIENTS IN4@ A
WHEELCHAIR POWER WHEELCHAIR.
THEY MAY NEED ASSISTANCE EATING
OR BREATHING.
IT'S AFFECTING PEOPLE4@ IN
DIFFERENT WAYS.
AS SOON AS WE KNOW SOMETHING
SOMEONE ELSE IS DIAGNOSED4@ AND
IT'S IN A DIFFERENT WAY. 4@
ARAT APPEARS IN A DIFFERE4@NT WY
AND SO THAT'S WHY WE POUR SO
MUCH MONEY INTO4@ RESEARCH.
DONNA, I WANT TO BRING YOU IN.
YOU KNOW, OBVIOUSLY THIS
ORGANIZATION HAS REALLY HELPED4@
YOU AND YOUR FAMILY.
LET'S TALK ABOUT YOUR
COMMITMENT4@4@ TO THIS.
YOU LOS4@T YOUR BROTHER TO AL
LASTES JUST LAST YEAR4@, OCTOBER
10TH OF LAST YEAR AFTER YOU HEY
,IF YOU'RE BATTLE YES.
>> IT'S HARD TO WATCH4@ SOMEBODY
GO FROM A STRONG4@, HARD WORKING
BUSY FUN-LOVING GUY TO4@
BASICALLY LOSING EVERY ABILITY
HE HAD4@ WALKING, TALKING AND
EVENTUALLY BREATHING SLIPS.
IT'S A DEVASTATING DISEASE4@ SAD
FOR HIS MOST PEOPLE DON'T KNOW
ABOUT IT.
4@AND ONCE THEY HEA4@R IT SO YOU
CAN BE DEVASTATED.
THEY'RE IN SHOCK TO KNOW THAT
THAT'S HOW BAD THE DISEASE IS.
>> MY GRANDFATHER DIED OF A
LASTES4@ IN HIS EARLY 50S LONG
BEFORE ME.
AND STILL IT SEEMS THERE'S NOT
A WHOLE LOT KNOWN4@ ABOUT UNLESS
THEY HAVE MADE ADVANCEMENTS AND
IMPROVEMENTS AND THERE'S4@
PROMISING TREATMENTS.
ALL THE MONEY RAISED AND THE
WALKOFF TO DEFEAT A LOT LESS.
HOW WILL IT SUPPORT4@ CLIENTS AD
FAMILIES HERE IN TENNESSEE AND
TENNESSEE4@?
ONE OF OUR GREATEST ASSE4@TS THT
THE ASSOCIATION OFFERS IS OUR
CARE SERVICE COORDINATORS SO
THEY CONNECT IMMEDIATELY WITH
OUR4@ FAM4@ILIES UPON DIAGNOSIS
TRY TO GIVE THEM ONE CONNECTED
WITH SOME TYPE OF ALA'S CLINIC
.
WE HAVE TWO HERE IN TENNESSEE
THAT WE SUPPORT ONE IN
CHATTANOOGA AND ONE IN MEMPHIS
ESSLEY NEUROLOGY DOGS.
WHERE ARE YOU GUYS GONNA BE
WALKING?
>> GRIGNON WALIGA.
>> VICTOR RASCHE PARK MONIC4@
LOG'S SATURDAY MORNING.
NO MATTER WHAT THE WEATHER IS
WE'LL BE TAKE PHOTOS AND VIDEOS
AND SHARED ON SOCIA4@L MEDIA4@ D
WE'RE GONNA HAVE AN ONLINE
CEREMONY AT 104@ A.M. CENTRAL
11:00 A.M. EASTERN WHERE
EVERYONE CAN TUNE IN TOGETHER
FROM WHEREVER THEY ARE4@ AND YOU
CAN REGISTER AS A PARTICIPANT4@
OR SELECT A TEAM AND DONATE AND
WEB DOT HLS4@ A DOT ORG SLASH
TENNESSEEW4@ALK.
>> AND THIS IS INTERESTING.
IT4@ TAKES BETWEEN TWO AND THREE
BILLION DOLLARS TO DEVELOP A
DRUG TO SLOW OR STOP THE
PROGRESSION OF A CLASS.