When I go away for the weekend, my chronic illness comes with me. So I guess I better
pack it a bag too.
[Upbeat intro music]
All the boring stuff, that's already in there,
you don't need to know what I'm gonna wear, you'll probably see it because I'm gonna film
this weekend, and gonna introduce you to Layla. My plan for the weekend is cat sitting and
I'm gonna go see one of my favourites, she's called Layla and she's lovely. So I am going
to pack all the chronic illness stuff. And show you what I take with me to manage that.
My pills. In their lovely pill box. I'm away from tonight, which is a Thursday night, and
I've got Friday, Saturday, Sunday, and some spares, taking some spares um, because I'm
there- I'm staying overnight on Sunday night, leaving on Monday, and I don't know how many
pills I'm gonna need. And I don't just wanna refill one day cos that's gonna mess up my
system. But I've got my little spare pill box as you've seen in my Cold Urticaria must
haves video. I've got painkillers in there too. You've seen this before as well in Vlogging
With Cold Urticaria, one of those, um- I know it's in the wheelchair basketball one, so
I'll link that above as well. These, are going to go in there, because they do pop open a
little bit, but not so much that I need to clingfilm it shut. And pills in there. Next-
Next what I'm gonna take is spare vogmask, because you never know, and Layla got hold
of my- the one that I'm wearing currently and she decided to play in that, and then
left me some cat dribble, and some- a whisker, and some cat hair. So, that- that was not
my favourite thing to put back on. So we've got a spare one of those.
[Talking over pills rattling] Next is supplements.
Everyone's favourite. Um, there's a good video by Doctor
Mike, if I can link that, I will, and he talks about supplements and how they are mostly
a waste of money. But these were about 60p for 60 tablets, one a day, and this was about
£1.50, and there's 90 in here. So *sigh* if there's nothing in it that's fine because
it's like, it's so cheap and I've gotta give it my best shot because my diet is not excellent.
So vitamins, important. Current vogmask, and I'm gonna keep that over here because I need
it to leave the house. Compression socks! Because I faint, all of the time. It's a miracle
that I'm actually standing up right now, I am quite impressed. That's thanks to electrolyte
drink. They're supposed to be really tight so they like squeeze you, and I find it really
helpful. It's got a nice zip on it as well so you don't have to like fight too much to
get into it. So, they can go in there. I'll bring these just in case over the weekend
I go anywhere. Because there's nothing worse than trying to get into a bathroom that's
not accessible or there's a huge line, so radar key, and people being... silly. Um,
so if we have another incident like what happened on the bus, or any of the situations that
kind of happen to me all the time anyway where people come up to me and demand my medical
history, I can just show them my keyring cards, especially the "I faint, this is normal" cos
I do, all the time, it's ridiculous. Pulse ox! I struggle with things like heart rate,
um, palpitations, all sorts of stuff that's like POTS, so when I stand up my heart goes
a bit mad and then blood pressure drops and faint. So I have this that will tell me what
my heart rate is, so that if it's really high I can- I don't have to like try and count
it. And it's really useful for anxiety as well so if you feel like your heart's racing
you can pop it on and be like "Oh ok, it's not actually doing that bad". That can also
go in the pouch. Because it's small. Currently I'm relying on Germolene because if you follow
me on Instagram or Twitter, you will see that in waking up and nearly falling out of my
window, I landed on a cactus so I have a nice scratch there. Um, and I- my immune system
is appalling, so I need all the help I can get, so this is important. That's gonna go
in my bag actually. Heat pack. I want to marry this. This is my favourite thing. So it can
be hot or cold, obviously, allergic to cold, I'm not gonna use it cold, but you put it
in the microwave for about a minute, and then you can just, you can wrap it around any part
of you, and it's- I love it and it's coming with me. Polos! I'm nauseous like 90% of the
time and these take the edge off. Inhaler! [sing-song voice] Because breathing is useful,
at best. [Normal voice] Lastly, this is my big bag of spoonie related things. Let's have
a look. Ow! Not gonna take this whole thing with me. Um- Hydro-cortisone cream because
I am allergic to pretty much everything, and especially in someone else's house I can be
allergic to whatever they clean the bed sheets with, um, the cat... That's always useful
to have on hand. Ooh, here's a hack. So these are spectacle wipes, for glasses obviously,
but they're also really good for cleaning the ear piece on a hearing aid. If you ever
need one, I usually do hearing aid first, then my glasses. I'll bring some of those
just in case. Paracetamol... And a TENS machine. Because... Chronic pain, I don't want to take
pain killers all the time, so I'll take this with me. Let's find... My electrodes. And
some tape! Because my fingers dislocate at literally everything, so I can tape them onto
my body. I think that is it! That is pretty much everything chronic illnessy that I'm
gonna take because I'm going to slob out for the weekend with a cat, so I don't need to
panic. So that's... that's how I pack for chronic illnesses when I go away. Don't forget
to like this video, drop a comment, subscribe, and ring the bell to get notified every time
I post. We have an exciting series coming at the end of April for Allergy Awareness
Week, so you definitely want to stay tuned for that. And meet Layla! That will be in
next week's video. And I can't wait for you to meet her, she's so cute! Enough about that,
if I go onto cats I'll be here all day. See ya!