(MUSIC) GOOD MORNING EVERYBODY!
AND WELCOME TO THE BALANCING ACT.
WE'RE GLAD YOU'RE HERE!
I'M JULIE MORAN.
AND I'M OLGA VILLAVERDE.
OH HONEY, HAVE WE GOT A SHOW FOR YOU TODAY!
LITERALLY, AS TODAY WE LEARN MORE
ABOUT THE HEALTH BENEFITS OF THE UNIQUE KIND OF HONEY AND IT'S
EVEN BEING USED AS A WONDERFUL LINE OF SKIN CARE.
I'M REALLY LOOKING FORWARD TO IT.
YOU?
AND IT CAN TAKE CARE OF THE WRINKLES.
AND I'LL BE LEARNING MORE ABOUT A RARE AND GENETIC LUNG DISEASE
AS WE GO BEHIND THE MYSTERY.
IT'S KNOWN AS ALPHA 1.
MORE ON THAT COMING UP.
SO, LET'S GET TO IT ALL.
THE BALANCING ACT STARTS RIGHT NOW.
(MUSIC) WHEN YOU THINK OF NEW ZEALAND,
DO YOU THINK OF NATURE AT IT'S WILDEST,
MOST PRISTINE?
DO YOU THINK OF HONEY BEES AND HONEY?
THE ISLAND NATION OF NEW ZEALAND FAMOUS FOR IT'S UNSPOILED
NATURAL BEAUTY IS ALSO HOME TO MANUKA HONEY,
AN ALL NATURAL PRODUCT SOURCED IN
REMOTE AND POLLUTION FREE FORESTS.
A HONEY RENOWNED FOR IT'S UNIQUE FLAVOR
AND DEEP RICH COLOR.
IT'S EQUALLY KNOWN FOR ITS VARIOUS
HEALTH BENEFITS INCLUDING SKIN CARE.
WITH US TO DISCUSS ALL THE BENEFITS OF
ALL NATURAL MANUKA HONEY FOR ALL SKIN TYPES
IS KYLIE GLOVER, NATIONAL SALES MANAGER FOR
COMVITA.
A COMPANY WHOSE MOTTO IS SHARE NATURE, SHARE LIFE.
I LOVE THE MOTTO!
WELCOME!
THANKS, JULIE.
IT'S GREAT TO BE HERE.
IT'S SO GREAT TO HAVE YOU BACK.
YOU KNOW, MOST OF US ARE AWARE OF
HONEY AND HOW GOOD IT IS FOR US.
I LOVE HONEY.
BUT MANUKA HONEY'S HEALTH AND SKIN CARE
BENEFITS ARE PRETTY UNIQUE.
AND I WANT YOU TO TELL US ABOUT THOSE.
MANUKA HONEY IS UNIQUE FOR BOTH INSIDE AND OUT.
AND EVEN THOUGH HONEY HAS BEEN USED FOR CENTURIES
FOR HEALTH AND BEAUTY, NOT ALL HONEY IS CREATED
EQUALLY.
MANUKA HONEY IS FROM THE MANUKA PLANT,
WHICH IS A NATIVE TEA TREE TO NEW ZEALAND.
AND IT'S ANTI INFLAMMATORY, IT'S ANTI BACTERIAL AND IT'S
FULL OF ANTIOXIDANTS.
SO, BREAK THROUGH RESEARCH IS ACTUALLY NOW
TOLD US THAT A UNIQUE FORMULATION OF MANUKA HONEY
CAN ACTUALLY SLOW DOWN THE SIGNS OF AGING.
ALL WOMEN!
I DON'T CARE HOW OLD YOU ARE, WANT TO HEAR THAT.
AND YOUR COMPANY'S FOUNDER, I'VE READ A LOT ABOUT HIM,
A REMARKABLE MAN.
TELL US HOW HE IMPACTED THE COMPANY
AND THE PRODUCT LINE.
HE WAS A REMARKABLE MAN.
AND AT 63 YEARS OLD CLAUDE STRATFORD
STARTED MAKING AND SELLING BEE PRODUCTS.
HIS VISION WAS TO CREATE NATURAL PRODUCTS THAT
WORK AND TO PRESERVE THE ENVIRONMENT FOR
GENERATIONS TO COME.
SO, HE WAS JOINED BY OUR CO FOUNDER ALAN BOUGEN
AND THEY WERE PIONEERS AHEAD OF THERE TIME.
CLAUDE ACTUALLY LIVED UNTIL HE WAS 102 YEARS OLD.
OH MY!
SO, I THINK HE WAS ON TO SOMETHING.
HE HAS ON TO SOMETHING!
I'M TELLING YOU.
NOW, COMVITA USES A PROPRIETARY FORMULA
FOR ALL SKIN PRODUCTS THEY USE.
I KNOW IT'S A SECRET, BUT CAN YOU SHARE JUST A SMIDGEN OF IT
WITH US?
I CAN TELL YOU A LITTLE.
OK, GREAT.
SO, EVIDENCE SUGGESTS THAT THIS UNIQUE
FORMULATION OF MANUKA HONEY CALLED
HONEY XA, ACTUALLY WORKS TO INHIBIT
THE ACTION OF A GROUP OF ENZYMES CALLED
MMP'S.
NOW WHAT MMP'S DO IS THEY CAN ACT TOGETHER TO DEGRADE THIS
COLLAGEN IN THE SKIN.
NOT GOOD.
AND SO WHAT WE HAVE HERE IS A NATURAL PRODUCT THAT
IS GOING TO HELP PROTECT THE COLLAGEN.
EXCELLENT.
AND JUST TELL ME ABOUT THE BENEFITS OF THE FORMULA.
SO, THE BENEFITS ARE WIDE RANGING.
THE ANTI INFLAMMATORY ACTIVITY OF THE HONEY
REALLY HELPS WITH THAT ANTI AGING.
IT'S GREAT FOR ROSACEA AS WELL.
WOW.
AND THE ANTI BACTERIAL ACTIVITY OF THE HONEY
IS ALSO GOING TO HELP AGAINST THINGS
LIKE ACNE.
I KNOW YOU BROUGHT SOME THINGS FOR US.
CAN YOU SHARE A BIT OF IT WITH US?
ABSOLUTELY.
SO, WHAT WE HAVE IN FRONT OF US HERE TODAY
IS FROM OUR NORMAL TO DRY RANGE PROTECTIVE DAY MOISTURIZER.
NOW, WHAT THIS HAS IN IT IS, SUNFLOWER, IT ALSO HAS MACADAMIA
AND OF COURSE THAT HONEY XA TO FIGHT
THOSE WRINKLES.
RIGHT.
NOW, IT'S NOT AT ALL THAT STICKY.
IT'S ACTUALLY VERY LIGHT AND IT ABSORBS
RIGHT INTO THE SKIN.
I'VE GOT TO TRY THIS.
OH.
WOW.
IT'S NOT STICKY AT ALL!
THAT FEELS FANTASTIC.
NOW, I KNOW IT'S NPA CERTIFIED.
WHAT DOES THAT MEAN?
SO, NPA STANDS FOR THE NATURE PRODUCTS ASSOCIATION.
AND IF A PRODUCT CARRIES THAT NPA SEAL,
IT MEANS EVERY SINGLE INGREDIENT IN THE PRODUCT
HAS BEEN TRACED RIGHT BACK THROUGH THE SUPPLY CHAIN.
THEY'VE CERTIFIED IT AS BEING COMPLETELY NATURAL.
NO PRESERVATIVES.
AND IT'S SUSTAINABLE AND SAFE.
THERE ARE PRODUCTS OUT THERE WITH A LOT OF THINGS
IN THEM, RIGHT?
THERE HAVE BEEN STUDIES DONE ON YOUR AVERAGE
PRODUCT ON THE SKIN CARE SHELVES TODAY.
RIGHT.
AND THEY HAVE 126 CHEMICALS IN THEM, ON AVERAGE.
WAIT?
YOU MEAN I'M PUTTING THINGS ON MY SKIN WITH 126 CHEMICALS IN
THEM?
THAT'S NOT GOOD, I DON'T WANT THAT.
ABSOLUTELY.
AND A WOMAN USES ABOUT 9 DIFFERENT SKIN CARE PRODUCTS
ON ANY GIVEN DAY.
AND THIS IS GETTING ABSORBED STRAIGHT INTO YOUR SKIN.
IT CAN ADD UP TO ABOUT 4 POUNDS OF CHEMICALS BEING
ABSORBED INTO YOUR SKIN IN A YEAR.
TALK ABOUT SKIN TYPES.
WE'VE GOT DRY, OILY, AGING, YOU KNOW, DARK, LIGHT,
YOUNG, OLD.
DO YOU HAVE A LINE OR CAN THEY BE USED FOR ALL SKIN TYPES?
THERE ARE SO MANY DIFFERENT SKIN TYPES,
YOU'RE ABSOLUTELY RIGHT, JULIE.
AND WE'VE DESIGNED SOMETHING FOR EVERY ONE.
WE HAVE FOUR RANGES.
AND WE HAVE SOMETHING FOR NORMAL TO DRY SKIN.
NORMAL TO OILY SKIN.
WE HAVE A BRIGHTENING RANGE THAT CONTAINS
OLIVE LEAF EXTRACT, WHICH IS A VERY POWERFUL
ANTIOXIDANT.
SO IT'S GOING TO BRIGHTEN THAT SKIN.
AND WE ALSO HAVE A FULL BODY RANGE.
OH MY GOSH.
WHERE DO I FIND YOUR LINE?
YOU CAN FIND ALL THESE PRODUCTS ON
COMVITA.COM I WANT TO THANK YOU FOR STOPPING
BY AND I THINK ALL WOMEN ARE
LOOKING FOR THAT NEXT STEP AND I DON'T WANT
TO PUT ALL THOSE CHEMICALS ON MY FACE.
I'M GLAD YOU SHARED THAT WITH ME TODAY.
WAS GREAT HAVING KYLIE.
NO PROBLEM.
IT'S BEEN GREAT.
THANKS JULIE.
WELL, IF YOU'D LIKE TO LEARN MORE ABOUT
THE BENEFITS OF MANUKA HONEY FOR YOUR INSIDE
AND YOUR OUTSIDE, VISIT US AT THEBALANCINGACT.COM
OR GET BUSY AS A BEE BY BUZZING OVER
FACEBOOK/THEBALANCINGACTFANS (MUSIC)
(MUSIC) TIMELY AND ACCURATE MEDICAL
DIAGNOSIS IS KEY TO SUCCESSFULLY MANAGING
A DISEASE AND SUSPECTED HEALTH ISSUES.
BUT A LUNG DISEASE KNOWN AS ALPHA 1.
IS OFTEN MISDIAGNOSED TAKING UP TO 7
YEARS AND MULTIPLE PHYSICIANS BEFORE AND ACCURATE DIAGNOSIS
CAN BE MADE.
OUR NEXT GUEST IS HERE TO TALK ABOUT ALPHA 1
AND THE LONG JOURNEY PATIENTS EXPERIENCE
BEFORE BEING PROPERLY DIAGNOSED.
AS WELL AS HOW MEDICAL PROFESSIONALS
CAN BETTER DIAGNOSE ALPHA 1.
WITH US TODAY IS DOCTOR ROBERT SANDHAUS,
DIRECTOR OF THE ALPHA 1 PROGRAM AT THE
NATIONAL JEWISH HEALTH IN DENVER COLORADO.
GOOD MORNING DOCTOR.
THANK YOU VERY MUCH FOR HAVING ME HERE.
I'M SO GLAD YOU ARE HERE BECAUSE THIS IS SOMETHING THAT A LOT OF
PEOPLE HAVE NOT HEARD OF.
ALPHA 1.
TELL ME EXACTLY WHAT IT IS.
WELL, IT'S A GENETIC CONDITION.
ALPHA 1 ACTUALLY STANDS FOR ALPHA ONE ANTITRYPSIN
DEFICIENCY.
LITTLE HARD TO SAY.
YES, THAT'S A BIG WORD THERE.
ALPHA 1, IT IS MUCH MORE COMMON THANK PEOPLE REALIZE.
IT'S ABOUT THREE TIMES AS COMMON AS CYSTIC FIBROSIS, A GENETIC
CONDITION THAT EVERYONE HAS HEARD OF.
AND YOU KNOW, I'M A CARRIER OF CYSTIC FIBROSIS.
REALLY?
MY HUSBAND IS NOT, THANK GOODNESS.
AND THE HEAD OF THE NIH IS A CARRIER FOR ALPHA 1.
LOOK AT THAT.
SO, THERE ARE ABOUT 20 MILLION CARRIERS
OF ALPHA 1 IN THE UNITED STATES ALONE.
SO, WHY IS IT SO OFTEN MISDIAGNOSED?
WELL, IT CAN BE SORT OF A CHAMELEON DISEASE.
IT MASQUERADES AS OTHER DISEASES.
IT CAN CAUSE LIVER DISEASE IN NEW BORNS.
IT CAN CAUSE LUNG DISEASE IN ADULTS
AND EVENTUALLY LIVER DISEASE IN ADULTS AS WELL.
AND IT'S LIVER DISEASE THAT LOOKS TO ALL THE
WORLD LIKE CIRRHOSIS.
IT'S LUNG DISEASE THAT LOOKS TO ALL THE WORLD
LIKE EMPHYSEMA OR CHRONIC OBSTRUCTIVE PULMONARY
DISEASE, COPD.
SO WOULD YOU CATEGORIZE AS A RARE DISEASE?
IF YOU WILL.
WELL, IT TECHNICALLY IS A RARE DISEASE
BECAUSE A RARE DISEASE IS DEFINED AS A DISEASE THAT
AFFECTS LESS THAN 200,000 INDIVIDUALS.
AND WE ARE PROBABLY JUST BELOW THAT LEVEL.
AND TYPICALLY, DOES IT AFFECT MORE MEN
OR WOMEN OR BOTH?
IT ACTUALLY AFFECTS MEN AND WOMEN EQUALLY.
AND SO UNLIKE THE IMPRESSION THAT'S COPD
AFFECTS MEN, IN FACT, COPD AFFECTS MEN
AND WOMEN EQUALLY NOW.
AND THE PROBLEM IS THAT THERE'S NOTHING
SPECIFIC ABOUT HOW AN ALPHA 1 PATIENT'S
LUNG DISEASE LOOKS TO A DOCTOR OR
TO THEIR FAMILY.
THE ONLY WAY TO KNOW THAT SOMEONE
HAS ALPHA 1 IS TO DO A SIMPLE BLOOD TEST.
AND COUPLE MORE QUESTIONS.
IN TERMS OF AGE, IS THERE AN AGE RANGE?
AND WHAT ARE THE SYMPTOMS THAT WOULD MANIFEST?
WELL, IN NEW BORNS, IT'S ALWAYS LIVER FAILURE.
FORTUNATELY, IT'S A RARE COMPLICATION
OF ALPHA 1 TO HAVE LIVER FAILURE BUT IT'S THE SECOND MOST COMMON
REASON THAT KIDS GET LIVER TRANSPLANTS.
AND IN ADULTS, IT SHOWS UP AS SHORTNESS
OF BREATH, OFTEN WITH EXERTION, WHEEZING,
FREQUENT LUNG INFECTIONS.
THERE'S A GROUP OF SYMPTOMS, BUT THEY
LOOK IDENTICAL TO THE SYMPTOMS OF SOMEONE
WITH CHRONIC ASTHMA OR COPD.
AND IF SOMEONE IS DIAGNOSED, I MEAN IS THERE HOPE?
IS THERE SOMETHING THAT CAN BE DONE
TO HELP THEM?
ABSOLUTELY.
THERE IS FOR THE LUNG DISEASE, YOU CAN REPLACE THE MISSING
ALPHA 1 PROTEIN
OH.
WITH INTRAVENOUS INFUSIONS.
AND THAT HALTS THE PROGRESS OF THE DISEASE.
UNFORTUNATELY, EMPHYSEMA CAN'T BE REVERSED YET.
CORRECT.
OK DOCTOR, I WANT YOU TO STAY RIGHT THERE BECAUSE
WHEN WE COME BACK, WE ARE GOING TO
GET UP CLOSE AND PERSONAL AS WE MEET AN ALPHA 1 PATIENT.
SHE HAS GOT AN AMAZING STORY.
YOU ARE GOING TO WANT TO TUNE IN.
THE BALANCING ACT, WE'LL BE RIGHT BACK.
(PIANO MUSIC)(Music) WELCOME BACK EVERYONE.
CONTINUING OUR DISCUSSION NOW, OF ALPHA 1, A LUNG DISEASE
AFFECTING ONE OUT OF EVERY 2500 PERSONS.
HERE TODAY AGAIN, DOCTOR ROBERT SANDHAUS,
DIRECTOR OF AN ALPHA 1 PROGRAM AT
THE NATIONAL JEWISH HEALTH IN DENVER, COLORADO.
AND JOINING US NOW, A WOMAN WHO HAS
GRACIOUSLY OFFERED TO SHARE HER VERY OWN
ALPHA 1 EXPERIENCE AND HER PATH TO DIAGNOSIS
AND MANAGEMENT OF THIS GENETIC DISEASE.
HER NAME IS PEGGY IVERSON.
GOOD MORNING PEGGY.
GOOD MORNING, OLGA.
THANKS SO MUCH FOR BEING HERE.
THANK YOU.
DOCTOR, THANKS FOR STICKING AROUND.
PEGGY, LET ME START WITH YOU.
WHAT'S BEEN THE MOST DIFFICULT PART,
LET'S SAY OF THIS JOURNEY, OF ALPHA 1 JOURNEY?
I WOULD SAY IT'S THE LOSS OF MY MOM.
OH I'M SO SORRY.
SHE WAS DIAGNOSED WITH ALPHA 1 ANTITRYPSIN DEFICIENCY.
MY CHILDREN ARE CARRIERS.
I HAVE TWO SONS AND THEN, WATCHING
OTHERS BE DIAGNOSED LATE WITH ALPHA 1 AND SUFFERING WITH
LUNG DISEASE, ADVANCED LUNG DISEASE.
BUT AS A RESULT, OF YOUR MOTHER'S DEATH,
AND I AM VERY SORRY, YOU OBVIOUSLY THEN FOUND OUT A
BIT EARLIER I WOULD THINK.
I DID.
I'M REALLY FORTUNATE TO HAVE BEEN DIAGNOSED IN MY 20'S
BECAUSE MY MOM WAS SHORT OF BREATH, YOU KNOW,
AND COULDN'T FIGURE OUT WHAT WAS WRONG BECAUSE
SHE HAD NEVER SMOKED.
AND SHE WAS DIAGNOSED CORRECTLY, AND LIVED FOR 9 YEARS AFTER HER
DIAGNOSIS BECAUSE THERE WAS NO TREATMENT
BACK THEN.
THIS WAS IN THE 70'S AND 80'S.
AND SO BECAUSE I WAS DIAGNOSED YOUNG,
I'VE BEEN ABLE TO MAKE HEALTHY LIFE CHOICES
AND WE ALSO WERE ABLE TO FOLLOW ME AND KNOW
WHEN LUNG DISEASE BEGAN.
SO, I WAS ABLET GET ON AUGMENTATION THERAPY
TO HELP KEEP MY LUNGS STABLE AND PROTECT ME.
DOCTOR, I WOULD THINK PEGGY IS VERY FORTUNATE
BECAUSE YOU AND I WERE TALKING A FEW MINUTES
AGO ABOUT HOW IT'S SO MISDIAGNOSED.
SHE'S NOT OBVIOUSLY ONE OF THE COMMON
DIAGNOSIS'S THAT WE'VE BEEN TALKING ABOUT.
AS YOU MENTIONED, MOST PEOPLE DON'T
GET DIAGNOSED UNTIL MANY YEARS AFTER THEIR
SYMPTOMS BEGIN.
BUT THANKS TO FAMILY TESTING, WHICH IS ONE
OF THE THINGS WE ARE REALLY PUSHIN NOW,
ONCE WE IDENTIFY AN ALPHA 1 PATIENT
WE EXTEND THAT TESTING TO THEIR ENTIRE
TESTING AND PICK UP A LOT OF PEOPLE
BEFORE THEY GET DISEASE.
AND WHAT KIND OF TESTING IS BEING DONE
NOW, AS OPPOSED TO THE FAMILY TESTING?
THAT'S IS A LITTLE BIT MORE ACCURATE.
THE TESTING IS SIMPLE, IT'S USING JUST A FINGER STICK
BLOOD TEST.
THERE ARE THREE TEST KITS THAT MANY,
THAT ARE PROVIDED MY MANY COMPANIES THAT
ALLOW DOCTORS TO DO AS MUCH TESTING
AS THEY NEED TO DO ON THEIR PATIENTS.
IN FACT, THE AMERICAN THORACIC SOCIETY OF
THE EUROPEAN RESPIRATORY SOCIETY AND
THE WORLD HEALTH ORGANIZATION HAVE RECOMMENDED
THAT EVERY PATIENT WITH A DIAGNOSIS
OF COPD OR CHRONIC ASTHMA AS AN ADULT,
GET TESTED FOR ALPHA 1.
AND IT'S REALLY EASY TO DO IF YOU THINK
ABOUT IT, BECAUSE IF YOU DO HAVE THOSE SYMPTOMS,
AS A RESULT OF MAYBE ALPHA 1, JUST TO GET THAT
TEST COULD REALLY MEAN THE DIFFERENCE BETWEEN
LIFE OR DEATH?
ABSOLUTELY.
BECAUSE THERE'S THAT SPECIFIC THERAPY THAT
WOULDN'T BE PROVIDED IF YOU DIDN'T HAVE THAT DIAGNOSIS.
PEGGY, I WANT TO END WITH YOU.
AND I WANT TO THANK YOU SO MUCH FOR SHARING YOUR STORY
WITH US THIS MORNING.
THANK YOU.
ANY ADVICE YOU WOULD GIVE TO SOMEONE OUT THERE THAT
COULD BE SUFFERING FROM THOSE SYMPTOMS
AND WONDERING WHAT IS IT THAT I HAVE?
OR GOES TO THE DOCTOR, HAS BEEN TO 6 DOCTORS
AND IS CLUELESS?
ABSOLUTELY, PLEASE BE DILIGENT AND GET TESTED FOR ALPHA 1
ANTITRYPSIN DEFICIENCY.
IT'S THAT SIMPLE BLOOD TEST.
GO THE EXTRA MILE.
AND PLEASE DO IT.
AND REALLY EXTEND YOUR LIFE AND LEAD
A PRODUCTIVE LIFE AS WELL.
YES.
PEGGY, I WANT TO THANK YOU SO MUCH FOR BEING HERE.
THANK YOU, OLGA.
THANK YOU FOR SHARING YOUR STORY.
THANK YOU.
DOCTOR.
THANK YOU.
THANK YOU FOR ALL THE INFORMATION.
AND IF YOU'D LIKE TO FIND OUT MORE ABOUT TODAY'S
IMPORTANT MEDICAL INFORMATION, VISIT US AT
THEBALANCINGACT.COM AND OF COURSE, SHARE WITH US
ANYTHING RELATED TO TODAY'S TOPIC ON OUR
FACEBOOK AT THE BALANCING ACT FANS.
(MUSIC) THANKS MUCH FOR SPENDING PART OF
YOUR MORNING WITH US.
WE HOPE YOU LEARNED A THING OR TWO.
AND TO LEARN MORE ABOUT TODAY'S TOPICS,
BE SURE TO CHECK OUT OUR WEBSITE,
THEBALANCINGACT.COM AS WELL, LOTS THERE FOR YOU.
AND DON'T FORGET ABOUT FACEBOOK AND TWITTER.
LOOK US UP THERE.
WE'LL SEE YOU AGAIN SOON.
AND REMEMBER, FIND YOUR BALANCE.
SO LONG EVERYBODY.
(MUSIC)