THEM ARE
RICH.
IF YOU HAVE A GOOD QUESTION
GO TO
WCCO.COM/LINKS.
A RARE CONDITION, IT IS
COMMONLY
CALLED SLEEPING BEAUTY SYNDROME.
DELANEY WIRE WILL SUDDENLY
BECOME
TIRED AND SLEEP FROM ANYWHERE
FROM TWO TO
FIVE WEEKS.
IT'S ALMOST LIKE A BEAR IN
HIBERNATION.
BUT IN THIS CASE, IT CAN COME ON
AT AN
ANY TIME.
THERE IS NO CURE TO SLEEPING
BEAUTY
SYNDROME, BUT THERE IS HOPE.
.
Reporter: DELANEY WIRE IS
ADVENTUROUS,
FISHING, TRAVELING, SKYDIVING.
LIKE MANY 23-YEAR-OLD SHE WANTS
TO
EXPERIENCE THE WORLD.
BUT AT 18, SOMETHING HAPPENED ON
A SCHOOL
TRIP THAT WOULDN'T BE EXPLAINED
UNTIL
YEARS LATER.
WHEN I WAS 18 WAS MY FIRST
EPISODE IS
WHAT THEY CALL IT.
I WAS SLEEPING A LOT WHEN I WAS
AWAKE, I
WAS DELUSIONAL.
Reporter: DELANEY BARELY
REMEMBERS IT.
IT WOULD GO ON TO HAPPEN ANOTHER
FOUR
TIMES OVER THE COURSE OF FIVE
YEARS.
I SLEEP ANYWHERE FROM 15 TO
20 HOURS A
DAY.
I JUST HAVE NO MOTIVATION TO DO
ANYTHING.
VERY DEPRESSED FEELING.
REALLY FRUSTRATED BECAUSE I
DON'T KNOW
WHAT'S GOING ON.
Reporter: DURING AN EPISODE
SHE ONLY
GETS UP TO EAT, DRINK, AND USE
THE
RESTROOM.
THE LAST ONE LASTED FIVE WEEKS.
DELANEY HAS SEEN MULTIPLE
DOCTORS,
THERAPISTS, ALL THE WHILE HER
MOM
WORRIED.
I'M A TYPICAL MOM THAT WOULD
MAKE HER,
FORCE HER, TO GET UP.
AND SHE IS VERY IRRITABLE AND
AGAIN, YOU
KNOW, THE BLANK STARE.
YOU KNOW, I QUESTION, WAS SHE
LYING TO
ME, WAS SHE BEING LAZY, WAS SHE
TAKING
SOME KIND OF DRUG?
WIE WE DON'T KNOW WHAT THE
FUNCTION OF
SLEEP IS.
Reporter: A DOCTOR DIAGNOSED
DELANEY
WITH CLINE LEVENSON SYNDROME.
PEOPLE CAN BECOME DISFORIC.
Reporter: AND ANSWERED
QUESTIONS THAT
WILL BE PLAGUING THE WIRES.
IT IS REAL, NOT PRECIPITATED
BY ANY
PSYCHIATRIC PROBLEMS.
NOT PRECIPITATED BY BAD
BEHAVIORS, NOT
LAZINESS.
IT IS A BRAIN DYSFUNCTION.
Reporter: HE SAYS OF THE 500
DOCUMENTED CASES, THIS TYPICALLY
HAPPENS
IN TEENAGE BOYS AND THEY CAN
GROW OUT OF
IT.
DELANEY IS THE FIRST HE HAS
DIAGNOSED.
KLEIN LEVENSON AFFECTS ONE IN 50
MILLION.
WE HAVE IDEA IT IS AN
INFLAMMATORY
PROBLEM IN THE BRAIN.
Reporter: WHAT SHE MISSED
WEIGHS ON
HER MIND.
I'VE MISSED MAJOR LIFE
EVENTS, A
THANKSGIVING, I MISSED MY
GRANDPA'S 85th
BIRTHDAY.
I MISSED MY 21st BIRTHDAY.
Reporter: DELANEY DON'T
REMEMBER
TAKING THIS PICTURE WITH HER
SIBLINGS.
HER MOM HAD TO FLY TO WYOMING TO
BRING
HER HOME BECAUSE SHE WASN'T
COGNIZANT TO
FLY ALONE IN EPISODE.
STILL, THE DIAGNOSIS GAVE
DELANEY AND HER
FAMILY HOPE.
THAT'S WHAT'S ENCOURAGING
NOW, TOO, TO
KNOW THAT IF SHE GOES THROUGH
ANOTHER
EPISODE AND IT'S LIKELY, THAT
THERE IS AN
END TO THE TUNNEL, THAT SHE WILL
COME OUT
OF IT.
WE HAVE A SPECIAL
PRESENTATION TODAY.
THANK YOU FOR COMING.
Reporter: SHE HAS CHOSEN TO
USE HER
CONDITION TO HELP OTHERS
UNDERSTAND IT
INCLUDING DOCTORS AT HCMC.
IT HELPS HER MAKE SENSE OF
MISSING OUT.
MY VERY FIRST EPISODE WAS MY
SENIOR
YEAR.
I CAN EDUCATE THEM.
THIS IS WHAT I HAVE.
MY EPISODES AREN'T A CHOICE.
.
WHILE THERE IS NO CURE,
MEDICATION CAN
HELP DECREASE THE NUMBER AND
INTENSITY OF
EPISODES.
THE NEXT TIME IT HAPPENS TO
DELANEY, HER
MOTHER WILL TAKE HER TO THE
SLEEP
DISORDER CENTER AND THERE SHE'LL
BE